Anyone else have a Redundant / Tortuous Colon?

Les, Did it take long to get GI appointment in Rochester? Good for you for going!!
I encourage you to “hang in there” with taking tests and doing what they ask.
Stay in and warm in hotel.
I understand what you are going through but this could be the best thing you have done by seeing best doctors!
Stay positive. Sending prayers for you.
Babs

I just made it to Rochester last night barely…
I am suffering terribly trying to not take medication to do testing…
I have a ton of tests the next few days and anticipate next week because I don’t see the GI until Friday. On night 5 of no sleep tonight. It is so cold here!

Hi. I have IBS C and take Amitiza. I have a tortuous colon as well. Mine must be less severe bc I was never told surgery. I have hiatal hernia too. I think the tortuity causes me pain and makes it horrible to be constipated. I switched from Linzess to Amitiza.

Hi,
I got a great tip from another woman thro Mayo chat with redundant colon. It's PHYSICAL therefore advice about fiber, laxatives etc. needs to fit vs taking IBS (doesn't show a close relationship to redundant colon) or FODMAP or constipation advice without testing. For me psyllium husks and oatmeal bind me up. I come from permaculture organic gardening and Naturopathic Drs so have avoided laxatives both medical and natural because all say don't use longer than a week unless recommended by a doctor. Also at 71 I don't plan on surgery and haven't even looked into it. My last colonoscopy was great. My gastroenterologist had me go with him un-sedated and it was great. On a TV he showed me where the very tight folds were to keep my longer than usual colon in the space. Being a farmer + having had biology classes I was game. Pain - I have had a child naturally and been in a near fatal auto accident so this pain was minimal and really only when he went around a bend. Good luck with management or other options you choose but we need to keep our longer pipes consistently moist for easy evac.
@Farmer

Have you thought about going to Mayo? I asked because you will need a focused group of specialists I think. I hope you find help.

Hi there,
I just found out I have this too. For the past few years I have had a terrible time digesting anything. I’m hardly ever regular. It’s either constipation or diarrhea. I had my gallbladder taken out in 2021 and it has just gotten worse. I also have other medical issues but this one hurts every day just like my failed back surgery. I felt it was important to let you know you weren’t alone. Kind regards.

I am waiting to get into the Mayo now and have a tortuous/redundant colon and dysergenic defecation as well. I am using the Linzess too but it takes anywhere from 3-6 hours to get away from a toilet and I don’t sleep at night with the pressure I my body. Using the tea are you able to sleep??

I have been experiencing slow motility transit for more than 18 months. I underwent two colonoscopies to rule out any obstruction, but the results showed that the problem is caused by a redundant function. Although I tried using Linzess, it did not work for me. Currently, I am taking Motegrity (1.5mg), which is okay, but what really helps me is a tea called Smooth Moves, which is made from Senna Leaf. I take it every night, and if I miss a night or overeat, I use two tea bags, and after about 12 hours, I get the desired results. You can purchase this tea from any health store. Best wishes!

I agree with you.

I take the highest dose once a day and it was working great at 1st 4 months ago now nothing. I sometimes feel like I’m close to having a blockage. It’s miserable. And scary too. Like.. what’s next?