Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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Profile picture for bborth @bborth

About a year ago I had a colonoscopy that revealed this diagnosis. I have had GI issues for years, and this was the first time I had heard of this. For this procedure, I took a double dose of the cleanse drink given my slow transit issues. The doc said I still needed an enema of some sort to clean me out given stool was still in the colon. How is that possible when you basically are all liquid coming up the back end, and could not understand how anything could be left in you. Well, 10 months later I am back to where I was feeling miserable, and jammed up. I did a colon cleanse 5 days ago (regular strength) and nothing changed. Is there a more high powered enema that I need to have? Trying to convince my doc to do that, but they insist on trying medication first which to this point has not helped. So frustrated.

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Miralx take the purple cap a.m & p.m.
Take 1 equate stool softner dulcosate sodium 100mg gel caps @ p.m. I've been told a suppositorie also. Attack it from mouth to bottom. Drink water. Juices. Dilute juices. Add lemon to water. Ginger is hot get powder n add to Herbal tea. We've needed answers 5 y's.

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Is this group still open. I couldn't find on facebook. how will I know if I'm in the group?

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I would like join this group as I have a torturous twisted sigmoid colon

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Profile picture for bborth @bborth

About a year ago I had a colonoscopy that revealed this diagnosis. I have had GI issues for years, and this was the first time I had heard of this. For this procedure, I took a double dose of the cleanse drink given my slow transit issues. The doc said I still needed an enema of some sort to clean me out given stool was still in the colon. How is that possible when you basically are all liquid coming up the back end, and could not understand how anything could be left in you. Well, 10 months later I am back to where I was feeling miserable, and jammed up. I did a colon cleanse 5 days ago (regular strength) and nothing changed. Is there a more high powered enema that I need to have? Trying to convince my doc to do that, but they insist on trying medication first which to this point has not helped. So frustrated.

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I just had my 1st colon cleanse with SUTAB pills. 12pills and 16 oz.. of water with 6, then 16 oz.. of water with the last 6. Then two more 16 oz. of water for two more 30- minute periods. The same thing the next morning 9 hours later.
No drink and no Miralax.
My result on my final exam- Excellent clean out.
Have you tried the pill. I feel for your dilemma.

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Profile picture for researchmaven @researchmaven

barjar -- Glad you found relief. I Googled the drug and NIH said it is used for bile-acid diarrhea or ileal resection/disease. Is that what you had/have? Note that I have read that even with a tortuous colon, it doesn't always bother people and a gut health problem can lie elsewhere.

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Thank you for your reply. You make a very good point. My diarrhea
followed surgery on my colon following a cancer diagnosis. The tortuous
colon may not be the problem. It is bile malabsorption that causes
my diarrhea. However, the Cholestyremine stops the diarrhea.

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Profile picture for shelleyW @shelleyw

researchmaven,
Thanx so much. I really appreciate the detailed explanation, I am 65, but my brain is more like 95, due to my 2 recreational accidents 18 years ago. 👋ShelleyW

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shelleyW - I am sorry you had two recreational accidents and that they are still bothering you. I assume you mean your gut and other body parts aged due to the accidents. I am so sorry to hear that happened, but very glad you are coping as best you can.

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Profile picture for barjar @barjar

I have a tortuous colon and suffered with chronic diarrhea. A new
Gastroenterologist prescribed Cholestyremine. I believe it is a natural
product. I take one a day. It really works.

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barjar -- Glad you found relief. I Googled the drug and NIH said it is used for bile-acid diarrhea or ileal resection/disease. Is that what you had/have? Note that I have read that even with a tortuous colon, it doesn't always bother people and a gut health problem can lie elsewhere.

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About a year ago I had a colonoscopy that revealed this diagnosis. I have had GI issues for years, and this was the first time I had heard of this. For this procedure, I took a double dose of the cleanse drink given my slow transit issues. The doc said I still needed an enema of some sort to clean me out given stool was still in the colon. How is that possible when you basically are all liquid coming up the back end, and could not understand how anything could be left in you. Well, 10 months later I am back to where I was feeling miserable, and jammed up. I did a colon cleanse 5 days ago (regular strength) and nothing changed. Is there a more high powered enema that I need to have? Trying to convince my doc to do that, but they insist on trying medication first which to this point has not helped. So frustrated.

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Profile picture for shortiseltzer @shortiseltzer

I’ve been dealing with weight loss, diarrhea, bloating, gas feeling full and acid buildup. I had my first colonoscopy/ upper endoscopy and it revealed that I have a torturous colon.I’m currently taking anti diarrheal, acid reducer and nausea meds as needed.
I’m very interested to hear about what foods are easier with this issue/ issues. I have not had much luck with most foods except bland.

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I have a tortuous colon and suffered with chronic diarrhea. A new
Gastroenterologist prescribed Cholestyremine. I believe it is a natural
product. I take one a day. It really works.

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Profile picture for researchmaven @researchmaven

Hi ShelleyW,

Happy to hear back from you 🙂

Yes, you can certainly whip the egg whites. Consider trying egg whites in a carton -- once; they are thin compared to whole egg whites (so less gross?) and you'll have less wash-up than whipping whites.

Glad coconut oil works sounds yummy to you; there is avocado oil in your Arbonne mix (I checked), avocado oil is possible too, but maybe not as yummy. Note the saturated fat of coconut oil is between that of olive oil and butter in terms of health impact, but that may not be something you need to consider. It does taste good, even the smidgen I use (1/4-1/2 teaspoon).

I note that Azure Market (online/mail order) sells the pea protein isolate I use. It is $9.84 for 1 lb and 39.57 for 5 lb. Your Arbonne product, by volume, has that has its top ingredient.

And yes, try chia powder for fiber and whatever else is good in it. I use 1/2 teaspoon in my hot cereal mix as the quantity matters too and more than that may be harsh on my gut. I definitely avoid chia seeds due to the same concern you have.

LiveKuna Organic Plantain Flour is now solely sold on Amazon. I have to admit I love it and besides using it for hot cereal, it is my "flour" for other sweet things. I use another brand of plantain flour for savory baked goods. I have to buy 11 lb though; I get it from an online restaurant wholesaler.

All my best to you!

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researchmaven,
Thanx so much. I really appreciate the detailed explanation, I am 65, but my brain is more like 95, due to my 2 recreational accidents 18 years ago. 👋ShelleyW

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