Anyone else have a Redundant/Tortuous Colon?

I have a tortuous colon and have had motility problems for 24 years. for years I have been dependent on enemas to eliminate, I simply cannot eliminate without them. Here is a brief history of how I have been helped:

in 2014 a colorectal surgeon surgically inserted an interstim, which is a colon stimulator. For eight years the interstim worked. I no longer needed regular enemas every day, only on some days. I took lots of miralax every night and was able to eliminate easily using suppositories, prep h and digital stimulation; and sometimes naturally

After the interstim stopped working, I acquired another problem.
Due to spinal fractures, I've been on regular opioids. consequently I found myself suffering from opioid induced constipation. Nothing worked. Was on linzess; it worked for six months and then I built up permanent tolerance. After two years of not being able to eliminate, I googled the problem and found that there is a class of drugs called PAMORA, which are specifically for OIC. My pain dr prescribes one of the PAMORA drugs, Relistor; I take three tablets every night plus miralax and am able to eliminate via enemas, but they are quick and I get it over with in 15 minutes. I wish I didn't have to take the enemas, but at least it's quick.

In addition, i go to colonics once a month and have a two-hour session. If you are healthy enough to tolerate colonics (pl google if you're not familiar with it), it cleans you out. However insurance does not generally cover it so hopefully, if you choose this method, you can afford to pay for it. some doctors will advise against it and say it is dangerous. If you go to a reputable colonics practitioner, they will know whether or not you can tolerate it and they will not harm you. My practitioner is an RN and really knows her stuff. So pl google colonics before listening to advice and decide for yourself. It really works! If you are able to tolerate it (and due to the conditions you described, that might not be the case), and if you can afford it once a week, you will be relatively ok, or at least better. If I were wealthy enough, I would have a two-hour session once a week because I feel so great afterwards. I take a strong dose of milk of magnesia the night before and she cleans me out for two hours. I have never been harmed by it, only helped, especially when I was suffering the most and could not eliminate at all

I hope these ideas are helpful. I'm reaching out to you with prayers and love in my heart because I know what kind of suffering motility issues can cause

Yes, I can say.I have had similar thing happen with me.
Stabbing pain when turning in bed on my left side.
Seem to coincide when I began to have gastro.Issues because of my twisted colon.
Constipation.
Is always a situation that you have to deal with all the time.
Just completed a colonoscop and it was a moderately torturous colon.
I wish that there was a way we could untwist the colons!
i'm going to look into it.

@researchmaven yes, I forgot to mention I take prenatal vitamin, super B complex & vitamin D. I'm not sure re my dietary intake. Are you eating several small meals? I eat once maybe twice a day. Either pkg spinach w carrots cooked well or a couple different veg's next days meal? I used to be much more active. I feel I have to always be on the conservative side & prioritize, where I choose to spend energy. You're actually up & going the extra mile for your health. I have Slippery Elm Bark powder on my list. I have not got this yet. I thought knowing the problem is 1/2 the battle & the other 1/2is the approach. Do you eat any white fish? Peanut butter or eggs?

@shawnkthryn,

We are eating in a similar fashion. I have detailed what I eat a number of times on this platform.

Suggestions:

Slippery elm inner bark powder - I use 1/8 teaspoon with meals, 4-5 times a day. A game changer.
Magnesium at night - both good for consitpation and anxiety.
A multi-vitamin, due to a limited diet.
Digestive enzymes with every meal/snack. I use the Intoleran brand. A game changer.
Also a product to help me break down fats and proteins.

None of the above would work as well if I hadn't switched to a mostly soft-foods diet.

I also walk for 45 minutes and stretch.

This is a bare-bones outline, but you get the idea. I do all of this and my gut is pretty normal.

@researchmaven I'm eating carrots, beets spinach, sweet potatoes, squash, outshine bars. That's what I found agrees w me. Boost 30mg & gatorade zero all day. 2 wks. going a little every day. Any suggestions

Shawnkthryn -- Have you tried eating low FODMAP or a highly liquid diet? What supplements do you take? Based on my experience, finding the foods and supps that work for you could relieve a lot of symptoms.

Considering age @66yy, what i've endured w cholecystectomy, umbilical hernia repair, rectopexy-(anal prolapse), & 40 y ago hysterectomy- scar tissue growth- doc talked re removal of excess growth- Huh? PCP i have past year offered a tetanus shot, another Huh? Petty stuff when I'm in maternity clothes w distensions & a prolapse. I kid you not. So many tests & blood work & i agree 100%

affirmed Very torturous colon. But redundant colon in chart. GI ?'d
Painful stomach distensions to swollen intestine w no food I can clearly feel difference

@researchmaven Slipper Elm inner bark powder. Hi how you doing today? I've eliminated red meat & pork & eaten fish n chix
y's. W rice ahhh wrong answer. Binds like concrete.
Fresh fruit & veggies. Doc says no fresh fruit n veg. Canned fruit & veg. No corn, seeds, nuts, skins. I thought docs diet was gonna help me. Still miserable w salmon, frozen spinach, can beets, sweet tates, w seeded squash. I've fasted 4 days for Gastric Emptying Scan. For T&W I ate salmon n sweet tates w minimal intake or I'll toss food. Yesterday poo balls in toilet look like chocolate w bubble gum wrapped in it. That's salmon. My gosh, not digesting fish properly. Not interested in wrap stomach around another organ. Or if they need remove dead colon tissue from the 3 blockages in 2021/22. Tests ran incl. EUS 2 mo ago. & 4y's CT''s, MRI, x-rays, U.S.'s, EGD- all these to confirm GERD, E.O.E., Chronic Gastritis- i aced these tests & walk away lighter in the financial & no further ahead. 5' 80#'s. Staying hydrated is mission today

@finn22 how are you? Past y w Constipation here, going 1x wk. For 52 wks. I tried Artichoke root 8000mg. w 2 meals. Tossed that. 2- 3 d's later i try again, i accept 1 a
day. There's advice in here to help you go & 🛑. At yer own risk. Psyllium?