Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
Interested in more discussions like this? Go to the Digestive Health Support Group.
Miralx take the purple cap a.m & p.m.
Take 1 equate stool softner dulcosate sodium 100mg gel caps @ p.m. I've been told a suppositorie also. Attack it from mouth to bottom. Drink water. Juices. Dilute juices. Add lemon to water. Ginger is hot get powder n add to Herbal tea. We've needed answers 5 y's.
Is this group still open. I couldn't find on facebook. how will I know if I'm in the group?
I would like join this group as I have a torturous twisted sigmoid colon
I just had my 1st colon cleanse with SUTAB pills. 12pills and 16 oz.. of water with 6, then 16 oz.. of water with the last 6. Then two more 16 oz. of water for two more 30- minute periods. The same thing the next morning 9 hours later.
No drink and no Miralax.
My result on my final exam- Excellent clean out.
Have you tried the pill. I feel for your dilemma.
Thank you for your reply. You make a very good point. My diarrhea
followed surgery on my colon following a cancer diagnosis. The tortuous
colon may not be the problem. It is bile malabsorption that causes
my diarrhea. However, the Cholestyremine stops the diarrhea.
shelleyW - I am sorry you had two recreational accidents and that they are still bothering you. I assume you mean your gut and other body parts aged due to the accidents. I am so sorry to hear that happened, but very glad you are coping as best you can.
barjar -- Glad you found relief. I Googled the drug and NIH said it is used for bile-acid diarrhea or ileal resection/disease. Is that what you had/have? Note that I have read that even with a tortuous colon, it doesn't always bother people and a gut health problem can lie elsewhere.
About a year ago I had a colonoscopy that revealed this diagnosis. I have had GI issues for years, and this was the first time I had heard of this. For this procedure, I took a double dose of the cleanse drink given my slow transit issues. The doc said I still needed an enema of some sort to clean me out given stool was still in the colon. How is that possible when you basically are all liquid coming up the back end, and could not understand how anything could be left in you. Well, 10 months later I am back to where I was feeling miserable, and jammed up. I did a colon cleanse 5 days ago (regular strength) and nothing changed. Is there a more high powered enema that I need to have? Trying to convince my doc to do that, but they insist on trying medication first which to this point has not helped. So frustrated.
I have a tortuous colon and suffered with chronic diarrhea. A new
Gastroenterologist prescribed Cholestyremine. I believe it is a natural
product. I take one a day. It really works.
researchmaven,
Thanx so much. I really appreciate the detailed explanation, I am 65, but my brain is more like 95, due to my 2 recreational accidents 18 years ago. 👋ShelleyW