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Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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My gastroenterology clinic referred me to a specialized physical therapy by Fyzical, a nationwide clinic chain, for pelvic floor therapy for fecal incontinence. Therapy for urinary incontinence was added. With introductory education about bladder and bowel function, I recorded a 3 day log of voiding and bowel function. Learning to manage urinary urgency and bowel control, the therapist provided five basic pelvic floor contraction exercises to strengthen the muscles and reflexes, and then three lower trunk strengthening exercises with bridging, clam shell, and inner thigh muscle contraction. My challenge is doing 2-3 sets of exercises. With some cardiac surgery, I had a setback, and have an extra month of strengthening.
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1 ReactionHello @ceclark41,
I appreciate your posting about the different products and methods that you have used to help you with constipation and incontinence. I was especially interested in your discussion on the value of pelvic floor therapy.
I would appreciate a little more information about pelvic floor therapy. Would you be able to share a little about the exercises that helped you? Were they breathing exercises or perhaps stretching exercises?
This year in May, as an older woman with non-cardiac chest pain and constipation problems, I started a new journey to rule out acute liver problems and to treat constipation. With a gastroenterology referral, after EGD and colon scopes, the group decided that the non-cardiac chest pain was probably a bile duct blockage and that the constipation and fecal incontinence would improve with pelvic floor physical therapy. Adding Psyillium in capsules, and re-starting yogurt has improved my health as well as exercises and new ways of managing incontinence of the urinary tract system as well as fecal incontinence. Keeping up the exercise routine is difficult for me, especially with our 2020 pandemic limiting my usual recreational exercises.I do recommend pelvic floor therapy for us older folks with less exercise than ever before. Hoping for a safe effective anti-Covid-19 vaccine soon.
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2 ReactionsHi @les2436, Fungus Clear appears to be an probiotic formula (ingredients: Lactobacillus Acidophilus, Bifidobacterium Lactis, Lactobacillus Plantarum, Lactobacillus Paracasei, Marine Polysaccharide Complex, Fructooligosaccharide) taken internally to treat nail fungus. I can’t see anywhere that it is indicated for constipation.
I’m glad you found something that works for you after not finding solutions for over a year. Was this something that was recommended by your doctor? How long were you told to take it?
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1 ReactionHi, I suffered with redundant colon severe and horrible colonic inertia (meaning I did NOT GO POOP) for 2 years. Did all Testing. Ps. Get Sitz Marker Test done... I was scheduled for total colon and large intestine removal. Went on a product called FUNGAS CLEAR. Amazingly, I am going to POOP everyday... Give it a try. Sold, on amazon.
@lesliedenny I have experienced similar symptoms like yours for years with no diagnoses. After days of constipations, I pass out and when I regain consciousness I am drenched in cold sweats and the worse part is that I know that I am about to pass out! I dread these attacks. I have been on high fibre diet, drink a more of water, more than 8x8oz water every day and follow vegetarian diet. I wish there was some treatment to end this suffering!
I have a tortuous colon too also AVM's which bleed and I don't see the blood. Wound up in the hospital 2017 as I lost too much blood. Had to have Blood transfusion and iron infusions. I am monitored for the blood but for the colon, it is horrible having colonoscopies and I need them as I get adenomas. My gastro doctor never said anything to me about it at all. Wonder why.
Wonderful! Thanks!
Oh, you sound just like me. I don't have IBS-C but a redundant, slow transit colon. My transverse colon barely moves. At the moment all I eat is soft fruit and vegetables, eggs, rice and some fish. I can't eat alot in one sitting so graze throughout the day. I have list about 13 kg. My colorectal specialist put me on prucalopride with my laxitives which has done nothing. Ten days with a small result but I think it is only because I doubled my laxatives on the 8th day. I think I want surgery but I'm concerned I am concerned that maybe I am not bad enough.
@katiaserra .. Could you tell us what foods you are eating when using this Meal Plan.. examples of what meats, examples of what dairy, examples what fiber.. what vegetables, what fruits.. How much liquid and what liquids..