Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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Profile picture for judy75 @judy75

Does anyone have tortuous colon and bouts of diverticulitis? Found out about the tortuous colon in Jan when the GI Dr couldn’t get the scope all the way. I’ve had two bouts since late Oct and then got c-dif from the antibiotics in early March. I’ve lost about 30lbs since Oct. I worry about getting diverticulitis again. Some days I’m spending all day in the bathroom, but not diarrhea, just going a lot with firmed stool, other days nothing. Having internal hemorrhoids doesn’t help things out either, and neither does my chronic anxiety. I don’t know what to eat anymore. I don’t know if I should be eating cooked cauliflower or broccoli, or just stick with bland vegetables like green beans. Those of you who take miralax, do you take the full capful or maybe just a teaspoon? I know I have driven my GI Dr and his office staff nuts already. But it seems that every day a new problem pops up and my anxiety has me going over the deep end. Thankfully I see a psychiatrist off and on and he has prescribed Ativan to take as needed such as when my mind really starts to race.

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I’ve had chronic constipation for many years. I had a colonoscopy last November and my dr. Told me I have a tortuous colon. I had surgery in Jan. 2020 and my surgeon said “ my only advice is to do whatever it takes not to be constipated bc if I do I’d end up back in the hospital. I have tried MiraLAX, Senacot, gummy fibers, magnesium, Amitiza, and Linzess.

The ONLY thing that works is called-Lactulose. It’s a syrup and I’ve been taking it for 4 months and it’s a miracle! Best wishes!

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Profile picture for judy75 @judy75

Does anyone have tortuous colon and bouts of diverticulitis? Found out about the tortuous colon in Jan when the GI Dr couldn’t get the scope all the way. I’ve had two bouts since late Oct and then got c-dif from the antibiotics in early March. I’ve lost about 30lbs since Oct. I worry about getting diverticulitis again. Some days I’m spending all day in the bathroom, but not diarrhea, just going a lot with firmed stool, other days nothing. Having internal hemorrhoids doesn’t help things out either, and neither does my chronic anxiety. I don’t know what to eat anymore. I don’t know if I should be eating cooked cauliflower or broccoli, or just stick with bland vegetables like green beans. Those of you who take miralax, do you take the full capful or maybe just a teaspoon? I know I have driven my GI Dr and his office staff nuts already. But it seems that every day a new problem pops up and my anxiety has me going over the deep end. Thankfully I see a psychiatrist off and on and he has prescribed Ativan to take as needed such as when my mind really starts to race.

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I have severe constipation so full capfuls for me. I don't have diverticula notes on my colonoscopies nor diverticulitis (the irritation of said diverticula) but I know lots of people do. Be sure you are taking a good prebiotic (or eat fermented foods) and probiotic and figure out if there are specific foods that irritate you. The old popcorn and seeds avoidance advice is a myth. I'm sorry yours is flaring. I know lots of people drink fennel tea or ginger tea to soothe their gut, and there's a product called IBGard that is peppermint capsules to soothe the colon. It's really nothing harmful. Just pockets in your colon that can get inflamed.

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Profile picture for ashweb901 @ashweb901

Once back in September I paired daily miralax with daily fiber for 2-3 weeks and was able to shift to fiber only and it was gloriously successful for almost two weeks. Then the fiber starts to pile up inside and lose all its moisture by the time it gets to the "business end." Thanks for the suggestion.

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Does anyone have tortuous colon and bouts of diverticulitis? Found out about the tortuous colon in Jan when the GI Dr couldn’t get the scope all the way. I’ve had two bouts since late Oct and then got c-dif from the antibiotics in early March. I’ve lost about 30lbs since Oct. I worry about getting diverticulitis again. Some days I’m spending all day in the bathroom, but not diarrhea, just going a lot with firmed stool, other days nothing. Having internal hemorrhoids doesn’t help things out either, and neither does my chronic anxiety. I don’t know what to eat anymore. I don’t know if I should be eating cooked cauliflower or broccoli, or just stick with bland vegetables like green beans. Those of you who take miralax, do you take the full capful or maybe just a teaspoon? I know I have driven my GI Dr and his office staff nuts already. But it seems that every day a new problem pops up and my anxiety has me going over the deep end. Thankfully I see a psychiatrist off and on and he has prescribed Ativan to take as needed such as when my mind really starts to race.

REPLY
Profile picture for rashida @rashida

@ashweb901 would daily Metamucil or generic psyllium fibre work for your constipation problem? I take psyllium fibre from a natural foods store every day and have eliminated my constipation problem (pun unintended),

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Once back in September I paired daily miralax with daily fiber for 2-3 weeks and was able to shift to fiber only and it was gloriously successful for almost two weeks. Then the fiber starts to pile up inside and lose all its moisture by the time it gets to the "business end." Thanks for the suggestion.

REPLY
Profile picture for ashweb901 @ashweb901

That is EXACTLY right. "Ta-daaah." Then they're done. Getting them to move to the next level of digging for the underlying issue is a huge feat. My anorectal manometry and sitzmarker tests plus the 3 PT sessions to train my anal sphincter cost me $1500-$2k and I'm still severely constipated.

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@ashweb901 would daily Metamucil or generic psyllium fibre work for your constipation problem? I take psyllium fibre from a natural foods store every day and have eliminated my constipation problem (pun unintended),

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Profile picture for pacificnw @pacificnw

LONG FIBER VEGES IS THE KEY!

I haven't seen this suggestion in this thread. I've had problems with constipation since I was a kid, but heard the phrase "tortuous colon" for the first time when I turned 50 yrs. old and had my first colonoscopy. What works for me is vegetables with long fibers - especially celery (raw) and asparagus (lightly cooked). The asparagus is the best. I've made it a mainstay of my diet. I cook it different ways to keep it interesting, although lightly roasting it in a 375 degree oven for about 10-13 minutes (depending on thickness of the vegetable) works best for me. I season it with garlic and herbs. I also think kale has long fibers, but I haven't found a decent way to prepare that vege. Asparagus is a great vege and it provides lots of health benefits beyond the fiber - so it's a great addition to any diet. Also, like many have said here - lots of water all day long.

In my opinion, eating celery (great with lunch - add some carrots!) and asparagus is a natural way to help your colon move things along without completely changing your diet. I love food as much as the next person, but don't want to have a special diet that interferes with my life. I stay active (walking, hiking, strength training), drink a good amount of water and use "outside help" (i.e., laxatives) only when absolutely needed.

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@pacificnw I cannot swallow long fibre veggies or fruits. I have a swallowing problem and these fruits and vegetables manage to make me choke.

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Profile picture for sickofbeinsick1. AKA Tina @sickofbeinsick1

I have noticed...not so recently, most Dr.s, after they’ve done they’re “procedure”, given your findings, they are out of the picture. There is NO CONTINUITY in care anymore. I have done more research than I care to think about. Too many problems, too many solutions, too many topics! I thought that’s what Drs were for.

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My Health, My team! Perhaps the financial demands of the times require seeing more patients. i do request more records after a medical appointment, about a month later. I get tired of doing that. Sometimes I read about something that I would like to discuss with that provider.

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Profile picture for ken82 @ken82

@sickofbeinsick1 Where did you go to get that kind of medical treatment? Certainly was not Mayo MN...Mayo and I keep in touch via the prescription renewals and when they require that I check-in the pharmacist tells me.. and during the Pandemic I have had 2 telephone sessions with my GI doctor there in Rochester. Now that I have had my 2 shots we plan an onsite visit in May ...(I live a 3 hour drive away from Mayo MN.). When I do other than GI visits at Mayo my GI doc always mentions those visits or problems during our sessions.. Mayo has a different pay arrangements with doctors than most places.. so given that they Mayo doctors act differently ...and as a team.

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If you don't mind my asking, what shots?

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Profile picture for sickofbeinsick1. AKA Tina @sickofbeinsick1

I have noticed...not so recently, most Dr.s, after they’ve done they’re “procedure”, given your findings, they are out of the picture. There is NO CONTINUITY in care anymore. I have done more research than I care to think about. Too many problems, too many solutions, too many topics! I thought that’s what Drs were for.

Jump to this post

@sickofbeinsick1 Where did you go to get that kind of medical treatment? Certainly was not Mayo MN...Mayo and I keep in touch via the prescription renewals and when they require that I check-in the pharmacist tells me.. and during the Pandemic I have had 2 telephone sessions with my GI doctor there in Rochester. Now that I have had my 2 shots we plan an onsite visit in May ...(I live a 3 hour drive away from Mayo MN.). When I do other than GI visits at Mayo my GI doc always mentions those visits or problems during our sessions.. Mayo has a different pay arrangements with doctors than most places.. so given that they Mayo doctors act differently ...and as a team.

REPLY

That is EXACTLY right. "Ta-daaah." Then they're done. Getting them to move to the next level of digging for the underlying issue is a huge feat. My anorectal manometry and sitzmarker tests plus the 3 PT sessions to train my anal sphincter cost me $1500-$2k and I'm still severely constipated.

REPLY
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