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Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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I have a redundant colon. I am "at risk" for colon cancer so colonoscopies have been frequent, but often required a barium enema to complete because the scope could not make it all the way. The last two times, the doctor used a pediatric scope, but it must have still been difficult because he has told me "no more." I'm 82 and have not had polyps the last couple of times, so hopefully I will be ok. I worry about a blockage or something, but no doctor has seemed concerned. I have had periods of constipation, but also periods of being very regular, like now. I don't have pain in my colon that I recognize - but a lot of indigestion - not sure the reason. I also have a lot of gas - probably SIBO. I also have functional reflux and a hiatal hernia. Digestive issues are "a pain."
Do you have constant pain? Mine gets so intense. I end up nauseated. Most of my bend is near the end of the colon.
Hello! I was searching about my twisted large intestine. Went to the doc today and she read it off my chart. I notice no matter the diet it’s still painful.
Thanks! I've been reading up on it....u may have found me an answer....
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1 ReactionHave them check for vascular compression syndromes-there’s nine different ones-MALS, Smas, May-Thurner, Nutcracker, etc.
Have you tried Motegrity?
No, I have seen orthopedic surgeon..he did MRI to rule out any spinal tumor (since severe wght loss). Is this something he would check? I've upcoming appt w him.also vascular surgeon consult (for the 2nd time)due to general surgeon saying she believes it involves veins
Have you been checked for Nutcracker syndrome?
I just was told from 2nd colonoscopy thatei now have redundant colon also.i feel as if I have a growth in my abdomen. Severe weight loss n pain in left groin.help! Would anyone no if ibgard would help?
I have taken metamucil 3x a day for over 20 years because of tortuous colon. As a senior, that is not working. Have tried probiotics, no luck.
If you have not tried metamucil, it may work for you.