Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
Interested in more discussions like this? Go to the Digestive Health Support Group.
@quiteachiver75
Please look at my post. It gives the name of a group on Facebook for colectomy patients.
Hi @tracy430,
It sounds like you’ve been through so much! I’m so glad you’ve joined this group, and was wondering if you had an opportunity to view this Mayo Clinic Connect discussion:
– Ostomy: Adapting to life after colostomy, ileostomy or urostomy https://connect.mayoclinic.org/discussion/ostomy-adapting-to-life-after-colostomy-ileostomy-or-urostomy/
It’s an incredibly informative conversation, where fellow members have shared their experiences, insights and tips about life before and after ostomy.
Another Connect discussion that I would really encourage you to read through is, "Three months after colon surgery” https://connect.mayoclinic.org/discussion/three-months-after-colon-surgery/ where you will meet @joyce1 @starrlight @sallyg @nannytart @travelgirl @swatson. I’d also like to bring in @maet @frane1939 @lamerex4 t see if they might be able to share more about colon resection and diverticulitis.
What is on Facebook @quiteachiver76 you mentioned in your message
PS someone above posted they take magnesium
I do too Phillips Pills and they do help I also
Ate steak a few nights ago
And Although I
Am
not allergic I tested highly reactive which sets
Up a inflammatory response ... last night during my episode I got hives on my hands .... I tend to break out in hives about once a year if Ia
Stressed.
Has anyone had fainting hives etc
Ty
Nellie
Hello Jane yes I do
I knoe your post is a few months ago but hope u receive this
I have had several colonoscopies and tend to easily become constipated ... I have had several
Episodes of being constipated with severe cramping to the point I faint several
Times during the episode ..fortunately my husband is an ER trauma physician and since these episodes have only occur at night he is home
I am recovering from last night episode and saw
The Restrictive diet fr fruits
And certain vegetables
I am
With you I don’t think mine is connected to diet
I eat fairly clean /
Green smoothies which usually helps me stay regular ... I
Think I get dehydrated and it sets up
Constipation.
The last episode was last year so I don’t faint on a regular basis and before that 6 years ago.
I would not want to have a
Partial colon removed .... I think the surgeon knows best... are u fainting too? The cramping is a ten painful and my BP drops etc I am screaming at times ...
What have you done since your post!
Did I get the surgery? Did U try the diet
I just joined this site
Great! You can ask these people anything. There's nothing that hasn't been asked before. There are newbies and veterans of this difficult thing.
Thank you so much. I am on Facebook and I'll definitely join the group.
After my surgery, I also had what I believed was magnesium coming out whole. It freaked me out as well. I had diarrhea for the first day and a half after surgery and since then I've been constipated. I haven't tried the Senekot yet.
After my 4th surgery this year, which ended up being a Deloyers Procedure, one of the things the surgeon recommended if I needed it was Senekot. I came out of the hospital with very consistent diarrhea so it was not needed. After about 4 weeks, things started firming up and I was feeling a little bit of discomfort, so I took some and it did help. Not nearly as harsh as a laxitive. I am also doing a yogurt probiotic daily as I am not digesting pills very well. All the potassium pills they gave me in the hospital came out in the toilet completely whole days 3 & 4 post discharge. Freaked me out, but at least I knew small hard things were making it out.
Still being careful, eating easy to digest foods, eggs, pancakes, applesauce, etc and drinking high protein Boost. But if I start feeling like it is getting hard to go I will take the Senekot. I hope you feel better. And I am now 7 weeks post Deloyers procedure.
@tracy430
You are fresh out of surgery. Please be patient with yourself. I know it's horribly uncomfortable! It can take a full year to recover from a resection. My first 18 months were spent with diarrhea and/or constipation. Took a long time to get a handle on what I could eat, and how to manage the discomfort and flare ups. Your body has been traumatized and it is trying to figure out how to compensate for the loss of the part of your colon, and also the trauma. Remember that your intestines are still very inflamed and not happy. Eat things that are easily digested-- very small amounts at a time. Yogurt, scrambled eggs, Ensure-- very soft stuff so your intestines don't have to work hard. Low fiber at this point. I also take a probiotic Align every day. I don't know if you are on Facebook but I'm in a wonderful, closed, private group for colectomy patients. I get the best advice from that group that you won't hear from doctors. It's amazing how clueless doctors are about telling us how to help ourselves after this type of surgery. The name of the group is Post colectomy--the roller coaster of debilitating discomfort and pain. Highly recommend. Also, magnesium capsules may help. I take it every single day. I use nature's way magnesium complex. Good luck and please let me know how you are doing. Ask any question at any time. I feel for you! I am 2 1/2 years out from my surgery. Hang in there-- it will get better!! ❤️