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Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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@hopeful33250
Magnesium 500mg from magnesium oxide/magnesium citrate,
Other ingredients: hydroxypropyl, methyl cellulose, microcrystalline cellulose, vegetable magnesium stearate and silicon dioxide. Works like a dream n I'm watched n tested regularly cause I flushed all my electrolytes livin on coffee n tons of water n occasional food. I was takin one at bedtime n that was fantastic. Then I got severe tortuous sigmoid colon so now I take one I'm the mornin too. I'll send pic of bottle...
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2 ReactionsCould you explain what is in the magnesium complex that you take?
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1 ReactionKeith Moon, I also take an Align probiotic every day.
I use nature's way magnesium complex. Start slow and go up. I take 800mg every night and go up too 1000mg if I get stopped up. I also use nature's way vitamin c with rose hips every night. 2,000 mg
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1 ReactionI have had irritable bowel-C for over 40 years. In the last three years and a half years the constipation has become severe. Up until then, I rarely used laxatives (could count on one hand, the # of times) One gastroenterologist recommended the fodmap diet, (so restrictive and I am already restricted as a celiac) metamucil and miralax twice a day. That seemed to alleviate the constipation but all that miralax and metamucil aggravated my irritable bowel. That same gastroenterologist said in his report "her bowel will just have to get used to it": it didn't) In the last three years, I have also gone from being on no medications to three: metoprolol, prolia and repatha (evoculomab injection). One or more of these drugs has made the constipation worse.
Recently, I stopped using Miralax. It no longer seems as effective and was giving me daily lower abdominal cramping to the point where some days it was uncomfortable to walk. So much gas and terrible bloating. (Interesting how all of its advertising says no bloating, no cramping) Then, I tried milk of magnesia and it works but the cramping for me was beyond tolerable. So, a few nights ago, I tried two senokot and that worked without cramping but I'm sure if I use it daily it will be the same issue. Lizness gave me abdominal pain and bloating.
Over the years, I have taken probiotics but didnt see a difference.
My last colonscopy was 9 years ago (CT colonography and sigmoidoscopy about 3 years ago--one nonserious polyp)and it showed a "long and twisty colon".
I am waiting for my gastroenterologist appt next month. Actually beginning to wonder if there is a solution. Prucalopride called Resotran was suggested, (believe that helps with motility). However, I have an arrythmia that is now well-controlled and Health Canada has a warning saying proceed with caution re resotran if you have those problems and the drug safety clinic could not assure me it would be safe. I really do believe it is the medications that have made the IBS-C worse. That's the thing with modern medicine. The drugs fix one problem and often create some new condition (from side effects) that then needs to be treated.
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1 ReactionTiss, could you tell me which magnesium complex that you are using ?
Tiss-
Can you tell me which magnesium complex that you use ?
Thanks
I also use a magnesium complex and vitamin c every day. It's the only thing that has consistently helped my chronic constipation.
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1 ReactionI'm very sorry to hear that you are having such a hard time, I hope you find some kind of relief soon
@jcarndt I too have severe tortuous colon. I would like them to explain to me how if they can barely get the camera through that the stool isn't causing all this pain when I'm trying to have a bowel movement they're telling me I'm supposed to just feel no discomfort yeah right. I started taking those pills that I showed you I got them on eBay for like 11 bucks or something 18 bucks and I came in like 2 days but I was taking them a long time and I stopped taking them for a while cuz I was going so good and sure enough I ended up even worse I'm drinking half bottles what do you call it castor oil that was like the only thing that would break it down is the castor oil and an enema if I was lucky that would work.one time it didn't and I had to go in and I had a completely impacted colon. but those things I would take them in the morning unless you prefer to go to the bathroom in the morning if you prefer morning take them at night. I know I don't like to do it in the morning because that means I have to sit around and wait for my belly to stop acting up before I can leave. I sent you a picture of the stuff I take and like I said you can get it on eBay or Amazon just Google search it for eBay it's very cheap comes very fast Works excellent I'm I started with 2 in the morning and 2 at night and I now take one at 9 or 1 in the morning so I go at night but they work Wonderful, just get a SERIOUS cramp then screamin when the stool is moving through my colon I have scars I have three scars that meet together right above my hairline and that is where the pain if they won't go in and tried to get out the adhesion that are wrapped around my colon. I hope I was of some help I swear by those magnesium sulfate I would not try any other brand ever. Not a single drop of castor oil LOL
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