Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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Profile picture for kjn72 @kjn72

JN: I am a 72y/o woman with severe constipation & a redundant colon. 7 years ago I had 14" of colon removed and 3 additional surgeries for a rectocele, entrocele and another bowel prolapse. I have been severely constipated before and after surgeries. I have tried evert kind of otc med, laxatives, fibers and many prescribed meds, drink 1/2 gallon of water, swim 4-5 times weekly, do zumba nothing works. I have thrown up after 6 days of not going. I have pains in right upper and left lower abdominal areas. I am enema dependent to empty my bowels, it is a painful process and can last for 3 hours every time I do it. 2 surgeons recommended colectomy, 1 did not. 1 GI recommended surgery, 2 did not. I am a young 72 and want to continue living actively with less difficulty. Anyone have surgery that worked, and what kind to eliminate this problem? I have been told that colectomy can also produce bloating, gas, things I am already dealing with. Thank you for your help
JN

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@shawnkthryn, we just have a lot in common and I am glad to be able to share what worke for me. Each month gets easier. Habits build; taste buds change. It becomes easier and easier. I am really glad you are doing better! All the best for 2025!

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Profile picture for researchmaven @researchmaven

That makes good sense, @shawnkthryn. Less is more. If it is something like gastroparesis and it is acceptabley controlled by diet, that would be enough success for me. If I were in my eighties with weak muscle mass, I wouldn't want anything more invasive. I try to avoid as much medical intervention as possible. In my view, such only helps-- there is rarely a silver bullet. It seems like you are doing your homework by Googling.

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Happy New Year
@researchmaven
I want to thank you for patiently guiding me. There's been so many changes w diet since the 4th of July. I think my system went into shock since fasting day before Thanksgiving. @ that point, thank you for stepping up w positive reinforcements & excellent diet ideas. It's becoming an entirely different direction, not to be drawn to the Bakery. Meat dept & Produce- only for a lil bit. I've likely been in starvation mode w/o knowing. Realizing the deterioration of this 66yy muscles to zilch. 1st months progress report. I'm making homemade soup. Salmon patties. I could nurse on a patty all day. I'm trying to eat in peaceful environment. Egg beaters, egg whites took adjusting. But by golly, I'm w you. It is all in the diet. If you feel awful after you eat, my exp for 23y's. I'm sure my body was signaling Woe. Don't eat it. Lot of self discipline & commitment to ourselves, we won't allow this tormenting me anymore. I'm just to the point of putting a meal together. Took over a month to get that far. I've my own cupboard which works ideally. Don't have to see what I can't eat. & only open 1 cupboard, but that is my generator source. God love you & bless you for being so kind to me. Thank you

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Profile picture for kjn72 @kjn72

JN: I am a 72y/o woman with severe constipation & a redundant colon. 7 years ago I had 14" of colon removed and 3 additional surgeries for a rectocele, entrocele and another bowel prolapse. I have been severely constipated before and after surgeries. I have tried evert kind of otc med, laxatives, fibers and many prescribed meds, drink 1/2 gallon of water, swim 4-5 times weekly, do zumba nothing works. I have thrown up after 6 days of not going. I have pains in right upper and left lower abdominal areas. I am enema dependent to empty my bowels, it is a painful process and can last for 3 hours every time I do it. 2 surgeons recommended colectomy, 1 did not. 1 GI recommended surgery, 2 did not. I am a young 72 and want to continue living actively with less difficulty. Anyone have surgery that worked, and what kind to eliminate this problem? I have been told that colectomy can also produce bloating, gas, things I am already dealing with. Thank you for your help
JN

Jump to this post

That makes good sense, @shawnkthryn. Less is more. If it is something like gastroparesis and it is acceptabley controlled by diet, that would be enough success for me. If I were in my eighties with weak muscle mass, I wouldn't want anything more invasive. I try to avoid as much medical intervention as possible. In my view, such only helps-- there is rarely a silver bullet. It seems like you are doing your homework by Googling.

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Profile picture for researchmaven @researchmaven

@shawnkthryn, tests are useful, but not the final word if inconclusive. Not everything is testable. The final word is what it takes to feel better.

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@researchmaven hi, my concern w stomach angiogram is many risks w this. GES; non-invasive, let's do that again in a couple months 1st. At 80#'s I'm weak & there's no muscle mass. I'm drinking meat in protein cartons. Electrolyte pkts or gatorade all day. Eating squash, sweet potatoes, carrots & 1 sm pc fish (2 meals) or egg white sandwich (2 meals). That's my weeks intake. When I toss food, that's discouraging. Concern now is kidneys ?

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Profile picture for kjn72 @kjn72

JN: I am a 72y/o woman with severe constipation & a redundant colon. 7 years ago I had 14" of colon removed and 3 additional surgeries for a rectocele, entrocele and another bowel prolapse. I have been severely constipated before and after surgeries. I have tried evert kind of otc med, laxatives, fibers and many prescribed meds, drink 1/2 gallon of water, swim 4-5 times weekly, do zumba nothing works. I have thrown up after 6 days of not going. I have pains in right upper and left lower abdominal areas. I am enema dependent to empty my bowels, it is a painful process and can last for 3 hours every time I do it. 2 surgeons recommended colectomy, 1 did not. 1 GI recommended surgery, 2 did not. I am a young 72 and want to continue living actively with less difficulty. Anyone have surgery that worked, and what kind to eliminate this problem? I have been told that colectomy can also produce bloating, gas, things I am already dealing with. Thank you for your help
JN

Jump to this post

@shawnkthryn, tests are useful, but not the final word if inconclusive. Not everything is testable. The final word is what it takes to feel better.

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Profile picture for dedhambeth @dedhambeth

Thank you so much!!

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@dedhambeth, I also rely on stomach massage and stretching on the floor with my legs and torso. The various compressions of my gut help my food move along.

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I also have a redundant , twisty colon. My colonoscopy was very painful. I take Biogest also known as Thorne a digestive enzyme helps with digestion and take Meta Mucil capsules seems to help. I also get filled up very fast and have a sluggish digestion. I drink lots of water and coffee seems to help. I also feel nauseous alot due to this.

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Profile picture for researchmaven @researchmaven

Well, I cannot eat fish or chicken w/o constipation. I do not vomit. An orange its juice would send me into IBS-C purgatory. Bland foods are my ticket too. For your Q, I would use a seed butter that is smooth. Lots of folks like sunflower butter. It is nutritious and sold in grocery stores by the peanut butter. Glad egg whites are working for you. Best to you, too!

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@researchmaven dr isn't concerned re throwing up orange. Cannot reorder GES test for 2 months to redo. Doc wants a CT angiogram. That was the negotiation, I do this to please him & he'll do another GES to please me. Sounds like a marriage. Fair trade

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Profile picture for researchmaven @researchmaven

@dedhambeth - Slippery elm inner bark works best for me with every meal. It can be in homemade food (bread, hot cereal, cocoa, etc.), added to suitable commercial food (instant oatmeal) or dissolved in hot water. I started taking it with my morning meal, then thought about it, and tried using it with every meal (4- or smaller meals a day).

It definitely works better with every meal. I have an incredibly sensitive gut, so 1/8 teaspoon with a meal. When I was taking it once a day in the morning, I took 1/2 teaspoon. If I can't add it to my food, I put in in a hot liquid.

For me, it seems to work by softening and providing slip best for the meal I take it with. So it does make a world of difference for me when I take it with each meal.

(I think there are slipperly elm bark "chunks" (outer and inner bark) that could be steeped normally like any tea. If so, that may be best for a meal in the work environment.)

Since school teachers are on holiday now or soon, it is a good time to experiment to find a dose that works.

Whether it creates an urgent need to toilet, that may depend on the dose. I find that with my optional dose of 1/8 with a meal.

I am currently checking to see if 1/8 a teaspoon with a meal, when it is a six-meal day, is still the right dose. Maybe taking it four or five times a day is my limit, with a sixth 1/8 teaspoon dose too much.

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Thank you so much!!

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Profile picture for dedhambeth @dedhambeth

For those of you that take slippery elm…do you take it at night? In the morning? Did it affect you quickly? I want to start taking it but am nervous about how quickly it will work and so when to take it. I’m a teacher so do not always have the opportunity to run to the bathroom. Thank you.

Jump to this post

@dedhambeth - Slippery elm inner bark works best for me with every meal. It can be in homemade food (bread, hot cereal, cocoa, etc.), added to suitable commercial food (instant oatmeal) or dissolved in hot water. I started taking it with my morning meal, then thought about it, and tried using it with every meal (4- or smaller meals a day).

It definitely works better with every meal. I have an incredibly sensitive gut, so 1/8 teaspoon with a meal. When I was taking it once a day in the morning, I took 1/2 teaspoon. If I can't add it to my food, I put in in a hot liquid.

For me, it seems to work by softening and providing slip best for the meal I take it with. So it does make a world of difference for me when I take it with each meal.

(I think there are slipperly elm bark "chunks" (outer and inner bark) that could be steeped normally like any tea. If so, that may be best for a meal in the work environment.)

Since school teachers are on holiday now or soon, it is a good time to experiment to find a dose that works.

Whether it creates an urgent need to toilet, that may depend on the dose. I find that with my optional dose of 1/8 with a meal.

I am currently checking to see if 1/8 a teaspoon with a meal, when it is a six-meal day, is still the right dose. Maybe taking it four or five times a day is my limit, with a sixth 1/8 teaspoon dose too much.

REPLY
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