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Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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Oh so I don’t know what would be worse not going are going all the time thanks for the input
Besides the resections, they took out ileocecal valve. That causes SIBO and explosive diarea 😱😱
No, but my colon’s the length of a freakin’ fire hose, so if anyone wants a section of it, be my guest. I have plenty to spare.
No experience with that, but have had 3 small bowel resections, because of bleeding & ulcerations, anyone have this experience?
So what do you all think about a part of the colon being removed did any have this done and feel better and take less meds for constipation and have less constipation thanks LaNette
Yes I am thank you
Ok thanks so much I will check it out
Lanette, my doctor put me on amitriptyline which helps a lot with the pain. It's an anti-anxiety med, but apparently also helps calm down nerves in the gut. I also started the Plant Paradox diet, which also helped with the pain in a few days. It's not for everyone, but might be worth looking into. There is a whole website devoted to it, and 2 or 3 books.
It makes sense to me because estrogen maintains the mucosa in parts of the reproductive tract as well as the urinary tract. I have the reference for the paper I read, if you are interested, I can post it.
Hello all I am new to this group I too was just told that I have tontuous colon a long with 1.) chronic ldiopathic constipation 2.) dysfunction constipation outlet 3.)rectocele 4.) diverticulosis 5.) some more polyps and 6.) adhesions from many abdominal surgeries.. Most days the pain is unbearable but I work through it, but I feel that I am short with family, friends, and people in general and that isn't who I am I am at a loss
I have no idea what would be the best way too deal with all this. I have tried all the meds out there different diets and now I just don't know what the best treatment would be. Help, ideas, any advise would be welcome. Thanks LaNette