Anyone else have a Redundant/Tortuous Colon?

@marilynmiller Thank you so much!

@lapxp
His name is Shane Svoboda ( pronounced slo bo da the 2 o's are long o and a is short a) 520 382 0458 6130 La Cholla Blvd Tucson 85751. Associated with Northwest hospital. He has a very good website too
He looks much better in person! His looks aren't important his expertise is. And his kindness is very. I'm unbelievable he acts like he knows you! His physician assistant is quite good too. If you want to message, please PM me on this site.

@marilynmiller Hello! May I message you to ask about your surgeon? I am willing to travel anywhere to find a surgeon familiar with this condition and who understands the different mechanical relationships involved with a redundant colon, rectal issues, motility, etc. I have met with over a dozen colorectal surgeons, of course very skilled in the traditional indications for surgery (cancer, diverticulitis, etc.), but they do not seem to have much experience in more complex motility (such as outlet dysfunction) issues. Thank you so much for your generosity in sharing your story.

I was also diagnosed with Redundant Colon. This was in 2024 at age 58.

I was prepping for yet another Colonoscopy, where the actual prep NEVER started in time to finish, before time to leave/arrive at Colonoscopy Center.

I am talking about me food fasting for as long as 3-4 days pre-scope. Then, starting the liquid prep at least 2 days prior.

FINALLY, my Colo-Rectal Surgeon told me that my entire colon was just too long and wide for my body.

I thank God he figured that out before he attempted my Rectal Prolapse repair, because that is the ONLY surgery that has ever come close to killing me. I am quoting my surgeon.

After nearly a 2 years of recovery, I am ok, except for the chronic constipation that all of the above apparently caused.

At least that beats the heck out of the chronic diarrhea that I had right after and for months after the surgery. 😡

@debschmitt I am 86 years old and I have a twisted tortuous colon. I have been constipated for years. I use laxatives. Unfortunately I know one day they may not work at all. I have considered the sigmoid resectioning surgery, but I feel at this point. I'll just have to live with what I have and hope for the best.

@dfloyd1133 I was diagnosed with a redundant torturous colon in 2023 and I have been searching for answers solutions ever since. As soon as I think, I have an under control with diet and exercise and meditation bam a flareup. And the flareups are coming more often and more intense. The last one had me in bed for two days with excruciating pain. I had emptied my bowels, but it felt like every inch of my colon was inflamed and on fire. I am at my wits end. I’m 73 years old. I have lots of energy, but I can’t make any plans because of my unpredictability of my colon issues. It has affected every aspect of my life. And it is so difficult to explain to people why you can’t drink alcohol why fiber doesn’t help and why you have to eat certain foods and avoid others. My wish of living a somewhat normal life in the last season of my life has vanished. Is there anyone out there can give me any kind of hope at all🙏

@ameyc2 Hi, thenk you so much for your reply, lots of good information, I also have small meals throughout the day and eat lentils, youghurt, vege and stay hydrated. Blending sounds like a great idea, goatsTake Care,
Heather

@heathert
i've just stumbled onto your entry. I also have been diagnosed with a redundant bowel. I have been dealing with bowel issues now since cancer of the uterus long story short scar tissue from surgery and radiation exacerbate my problem. I have had a number of hospitalizations due to obstructions in the bell. I have been taking in my diet soluble fiber, but I've also discovered that it is volume small meals. I've lost a lot of weight over the years because of this condition drinking a lot of fluid obviously helps the bowel stay hydrated and moving things along. I blend a lot of of my food when I have an obstruction, I've ate very little if nothing over several days starting gradually again with vegetable broth, crackers I love fiber I miss my diet, but I am still able to manage. I eat red lentil pasta, which has fiber and much better for you. Better flour I think lots of fish wild caught obviously I love beetroot, but can only treat myself with a serving of beetroot. Maybe once a week twice if I'm lucky it's all about managing what you can handle and of course smaller meals. Slice of toast in the morning with yogurt, avocado, and Vegemite lunch will be the pasta and tuna. I use a lot of yogh for my sources, adding different flavors and spices. I have to be careful not to irritate my bowel too much with spicy but all in all they end of an evening because my digestion is so slow I'm not usually very hungry I may have some crackers with goat cheese or cheese and a little bit more avocado stewed pears in the baby food aisle. Also add with yogurt. I am trying to figure out if I should have a resection of my bowel. I'm 71 Very active garden. I walk three or 4 miles every day do my walking lunges and squats. I wish you well I hope any of this information has been helpful in someway and all the best. God bless and good luck.

I had a surgeon who said that I needed surgery in my sphincter muscles. Due to the pressure of everything that was happening in my colon my sphincter muscles had become very tight and almost closed. I had botox, in one sphincter, muscle and dilation in the other this was done under anesthesia. It took a few weeks to stabilize, at least those muscles were working. So you might want to check what's happening with the muscles. In the meantime, I have taken liquid magnesium sitrate at night, like 4 oz to make it flow quicker. And easier, I make sure I do Yoga and crunch. The muscles of the colon tighter on the outbreast, an expand the muscles of your colon on the inbreath
Working the inside organs, I do a lot of that. My surgeon said for me every three or four days, I need to take an enema to clear out the residue of the feces collecting in the corners of my colon. I also do high fiber which you probably do lots of water because even though food isn't the problem. It is an element of what I must be considering.So that the feces is able to be thin and flexible enough to pass through the tiny openings in my colon

Yes, redundant colon. Symptoms mostly resolved from onset one month ago. Still noticing reddish gel like residue. The side effects of the antibiotics have resolved. Colonoscopy in April. Yeah