Recurring cellulitis in arm with lymphedema following mastectomy

Posted by fisch @fisch, Aug 2 12:56pm

I am a 21 year survivor of triple negative breast cancer...so I am blessed. I have always had lymphedema in the affected arm. Over the past three years I have had recurring cellulitis in that arm, causing flu like symptoms, chills, fever, redness, heat and swelling in the arm. My doctor has prescribed antibiotics, which have always solved the problem. However, he doesn't want to continue with this, which I understand, due to the overuse of antibiotics. Has anyone else experienced anything like this, and, if so, any suggestions?

Interested in more discussions like this? Go to the Cancer: Managing Symptoms Support Group.

Laurie, Volunteer Mentor | @roch | Aug 2 2:25pm

@fisch

So great to hear your a 21 year cancer survivor.
Can I ask a couple follow up questions that might help others give you some advice.

Is your primary provider treating the cellulitis or are you seeing a dermatologist or an infectious disease specialist?

What do you do to treat lymphedema? Do you do lymphatic massage or see a physical therapist to help with the lymphedema?

sandy8043 | @sandy8043 | Aug 3 8:32am

I have lymphedema from my tongue and lymph node cancer. I use lymphatic pump made by a company called Tactile Medical. see them at Tactilemedical.com . The machine was prescribed by my doctor. It works great. I see reviews by breast cancer patients who have the same lymphedema issues you describe. My insurance paid for the machine. It uses light air pressure to massage the affected area.

Colleen Young, Connect Director | @colleenyoung | Aug 8 6:01pm

@fisch, I added your post to the Breast Cancer support group as well. I'm tagging @jane88c @rosy33 @cindylb who have discussed cellulitis in relation to breast cancer and/or lymphedema.

What is your doctor suggesting instead of antibiotics?