Hi I'm just wondering if anyone has treatment in Mayo for recurrent radiation-induced sarcoma? I know it's rare, especially when it's recurrent. If you do, I'd like to learn about your experience.
Hi I am actually concerned about this too. My radiologist says in it is a 1 in 50K chance to recur at the spot they are radiating and doesn't seem to be concerned. Plus I am feeling zero affects at this time after about 8 treatments. Do you think you got the sarcoma from radiation treatment?
Hi I am actually concerned about this too. My radiologist says in it is a 1 in 50K chance to recur at the spot they are radiating and doesn't seem to be concerned. Plus I am feeling zero affects at this time after about 8 treatments. Do you think you got the sarcoma from radiation treatment?
Hi I was just diagnosed with radiation induced leiomyosarcoma last month.want to know what kind of treatment you get after first diagnosis. Doctor said my surgery has a margin positive on one side due to space limitation. Seems no target treatment for radiology induced sarcoma (Gene mutation is different, not on a single DNA), no immune treatment, so the only option is chemo? Plan to visit MD Anderson for some advice.
Hi I was just diagnosed with radiation induced leiomyosarcoma last month.want to know what kind of treatment you get after first diagnosis. Doctor said my surgery has a margin positive on one side due to space limitation. Seems no target treatment for radiology induced sarcoma (Gene mutation is different, not on a single DNA), no immune treatment, so the only option is chemo? Plan to visit MD Anderson for some advice.
Have you had surgery already? I did AIM chemo, surgery(negative margin but from the treatment), and proton therapy for the first time. Yeah, seems like targeted therapy and immunotherapy aren't options.
Hi I was just diagnosed with radiation induced leiomyosarcoma last month.want to know what kind of treatment you get after first diagnosis. Doctor said my surgery has a margin positive on one side due to space limitation. Seems no target treatment for radiology induced sarcoma (Gene mutation is different, not on a single DNA), no immune treatment, so the only option is chemo? Plan to visit MD Anderson for some advice.
By the way, my sarcoma is also inside my mouth after Head and neck treatment at the original cancer location. Radiology damaged my mandible bone and created leiomyosarcoma.
Have you had surgery already? I did AIM chemo, surgery(negative margin but from the treatment), and proton therapy for the first time. Yeah, seems like targeted therapy and immunotherapy aren't options.
By the way, my sarcoma is also inside my mouth after Head and neck treatment at the original cancer location. Radiology damaged my mandible bone and created leiomyosarcoma.
Have you had surgery already? I did AIM chemo, surgery(negative margin but from the treatment), and proton therapy for the first time. Yeah, seems like targeted therapy and immunotherapy aren't options.
Proto therapy is a type of radiology treatment. One paper said radiology treatment don't work on radiology induced sacorma based on some patients data.
Proto therapy is a type of radiology treatment. One paper said radiology treatment don't work on radiology induced sacorma based on some patients data.
Yes, it's radiation. I also read a paper about how it still prevents radiation-induced sarcoma from coming back, and it was what was recommended by my doctor at that time. I think overall if it doesn't cause too much side effect, radiation is still recommended, somehow. One hospital suggested me to do SBRT this time since the tumor might be radiation resistant.
I was also reading Carbon ion radiation, seems it might help with inoperational tumors sometimes
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Hi I am actually concerned about this too. My radiologist says in it is a 1 in 50K chance to recur at the spot they are radiating and doesn't seem to be concerned. Plus I am feeling zero affects at this time after about 8 treatments. Do you think you got the sarcoma from radiation treatment?
It’s already a recurrent radiation induced sarcoma
Hi I was just diagnosed with radiation induced leiomyosarcoma last month.want to know what kind of treatment you get after first diagnosis. Doctor said my surgery has a margin positive on one side due to space limitation. Seems no target treatment for radiology induced sarcoma (Gene mutation is different, not on a single DNA), no immune treatment, so the only option is chemo? Plan to visit MD Anderson for some advice.
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1 ReactionHave you had surgery already? I did AIM chemo, surgery(negative margin but from the treatment), and proton therapy for the first time. Yeah, seems like targeted therapy and immunotherapy aren't options.
By the way, my sarcoma is also inside my mouth after Head and neck treatment at the original cancer location. Radiology damaged my mandible bone and created leiomyosarcoma.
I also just created a facebook group for radiation induced sarcoma if you're interested to search and join
My sarcoma was in my neck near brachial plexus, now it moved down a little and invade my T1 vertebra
Proto therapy is a type of radiology treatment. One paper said radiology treatment don't work on radiology induced sacorma based on some patients data.
Yes , it's me. Thank you very much!
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1 ReactionYes, it's radiation. I also read a paper about how it still prevents radiation-induced sarcoma from coming back, and it was what was recommended by my doctor at that time. I think overall if it doesn't cause too much side effect, radiation is still recommended, somehow. One hospital suggested me to do SBRT this time since the tumor might be radiation resistant.
I was also reading Carbon ion radiation, seems it might help with inoperational tumors sometimes