Ready to throw in the towel
I'm 60 and was diagnosed as Gleason 7, T2B. Was given Lupron, 5 sessions of SBRT and they want me to continue Lupron for a year. I just got my second six month shot.
I honestly don't think I can make it. I worked REALLY hard to stay in shape but now my arms and legs are like toothpicks and my stomach is huge. I've forced myself on a 500 calorie a day diet (two protein shakes and a multivitamin) for the past month and it's STILL not getting rid of my belly. I stopped going to the gym because, frankly, I'm embarrassed to be seen there among my old gym buddies.
I had a fantastic sex life with a good number of f***buddies but now it takes so long to get an erection by myself that it's not even worth it.
Worse, though, is that I am SO sad with a grief I have never felt in my life before--not even when my parents died. I feel like I am underwater looking up at a hazy world. I cry or feel sad at least 4-5 hours a day.
I sleep, at most, four hours a night even though I take a double dose of Xanax (2 mg total) and two Benadryls. The drugs knock me out but I wake up at 2 or 3 AM and can't go back to sleep.
Today, I casually told a nurse I can't wait for the next six months to be over because that's the end of Lupron and she said it's going to be more like 18 months to get back to normal because Lupron takes a very long time to leave the body. Hearing that made me want to hurl myself off the roof of the medical building--I just literally froze with fear.
I'm technically "alive" but there is no quality to anything. My day consists of faking my way through work, then coming home and crying on the couch and staring into space. Sometimes my heart will start racing at 150-180 bpm for a few minutes and I pray I will just have a heart attack and die.
My friends and family have given up on me, and I honestly don't blame them. I also got tired of their "you need to be positive," "you need to have a positive outlook" bull****.
I guess what I'm asking is how the hell do so many other guys do this and still have any kind of a life. I feel like I'm 100% destroyed inside.
UPDATE: Nov. 15, 2024
To everyone responding to this post--thank you! I will say it is an older post and I have gotten help in many ways:
I joined a support group, I have a prostate cancer mentor, I am seeing a psychologist and a sexual health physician, and of course still participating in this group. One "advantage" of getting a prostate cancer diagnosis early in the year is that I was able to quickly meet my insurance deductible so don't have any out of pocket cost for these things until January so plan to take FULL advantage of any and everything available to me through my cancer center.
I have also been exercising a lot and outdoors as much as possible. I find being in nature is helpful. I also listen to a lot of sad music which is oddly cathartic and have been writing about my life which helps me to channel a lot of feelings and ideas into things that might somehow help others.
So, while the original post was negative and is true to how I felt at the time, my outlook is improving. I'm still not quite the cheerful carefree guy I was before but I'm also not crying three hours a day anymore, either. So, progress is being made and thank you to all who are responding.
Interested in more discussions like this? Go to the Prostate Cancer Support Group.
One other thing I experienced early on was the irrational (but apparently common) belief that if I refused to accept cancer and the changes it brought to my life, there was somehow still a magical chance that things might go back to the way they were. I never would have articulated it this way, and would have agreed that it was dysfunctional (and absurd) if anyone asked me, but still, it was there.
What I was really doing was refusing myself permission to learn to love my new life — after all, time doesn't have a reverse gear — but I'm not beating myself up for it, because I think I had to go through that then to get to where I am now (loving my life exactly as it is).
Acceptance means making peace with change and uncertainty, not giving up hope.
I do have to say that exercising is one of the few times during the day when I'm NOT ruminating about prostate cancer so even if it had no other benefits (and it does) that alone will compel me to keep doing it.
I think about cancer Several times per day, but it is less intense now than before. I was diagnosed 3 years ago, had 12 months of ADT and Erleada and robo surgery and off of all meds now for 18 months. I retired a little before I was diagnosed and Being retired or working less is a good thing.
I think what upsets me most is that, when I asked about Lupron side effects, I was told "you will likely have some hot flashes" (I haven't had any) but that was about it. I read all the side effects on the brochure and when I saw the alarming ones they were downplayed. Depression wasn't even listed as one, neither was insomnia, though I suppose it can be argued that the cancer diagnosis itself causes depression and insomnia rather than the medication.
Thanks. Do you ever reach a point where you can go an entire day without thinking about cancer?
Edmond, thank you so much for that. I never had a true "midlife crisis" where I bought a new car and wanted to date 20-year-olds or any of that stuff. It was always onwards and upwards for me--I made a plan of what I wanted then went out and got it.
Now, for probably the first time, I'm facing a serious diminishment and I think it's just the start of many to come. I see younger people on the ladder behind me trying to knock me from my perch at work which would normally make me more competitive but now I'm ambivalent.
I was always stoic and had a good poker face, but now emotions are pouring out of me and I'm not used to it. I do volunteer work for troubled youth (am taking a break from that until I'm in a better mental space myself) and think of some of them I've helped in the past and, for the first time, I have a very real idea how they feel rather than just knowledge of their circumstances and what material things they require.
Your advice on kindness is something I already try to do but I feel that lately there is more sincerity behind it. I also have been walking five miles every day with my dog which is sometimes comforting and I sometimes wish I could be more like my dog--just living in the moment with no awareness of illness or death.
It gets better, much better. I'm sitting here in my Lazy Boy feeling your pain. We've all walked the same prostate cancer path. Pain, depression, and fatigue are a part of fit. But, so is learning to live with cancer. Creating Quality of Life goals are mega important.
We live two lives. One, our life before our prostate cancer diagnosis and two our life after our prostate cancer diagnosis. For most of us on this board we've been disgnosed and our life is getter better.
Hi all, A reminder about the Community Guidelines, in particular guideline number 1.
1. Be careful about giving out medical advice
- Sharing your own experience is fine, but don't tell other members what they should do.
- Experiences and information shared by members on the Mayo Clinic Connect are not a substitute for professional medical advice, diagnosis or treatment.
- Never disregard professional medical advice or delay in seeking it because of something you have read on the community.
See the complete community rules here: https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/
Scott: I know what your are going through as I had a Gleason 7 and 8 and had radiation and 18 months of ADT. It sucked!
I found that helping others helped me a lot. I volunteered to drive the shuttle bus at the local hospital one day a week and did some volunteer work at the church. It helped in getting my mind off of my own problems and gave me something to do. I also had a wife who I loved and I could complain to her often and she understood.
I did get some counseling and that helped me as I was just MAD that I had prostate cancer. Again, gave me someone to complain to.
Good luck and God Bless. Take it a day at a time.
Mike
@scottbeammeup, you've gotten incredible support and tips from the gang here. I knew they would come through. I have but one thing to add. Sometimes it can be hard to find people who are qualified to work with people who have cancer like mental health professionals, physiotherapists, personal trainers, etc. I suggest asking if your cancer center has a social worker specializing in oncology. They can help recommend people and places.
Learn more about oncology social work in this blog post:
- - How an Oncology Social Worker Can Help https://connect.mayoclinic.org/blog/cancer-education-center/newsfeed-post/how-an-oncology-social-worker-can-help/
PS: This discussion is helping many people. Thanks for starting it.