Ready to throw in the towel

Posted by scottbeammeup @scottbeammeup, Jul 19 6:50am

I'm 60 and was diagnosed as Gleason 7, T2B. Was given Lupron, 5 sessions of SBRT and they want me to continue Lupron for a year. I just got my second six month shot.

I honestly don't think I can make it. I worked REALLY hard to stay in shape but now my arms and legs are like toothpicks and my stomach is huge. I've forced myself on a 500 calorie a day diet (two protein shakes and a multivitamin) for the past month and it's STILL not getting rid of my belly. I stopped going to the gym because, frankly, I'm embarrassed to be seen there among my old gym buddies.

I had a fantastic sex life with a good number of f***buddies but now it takes so long to get an erection by myself that it's not even worth it.

Worse, though, is that I am SO sad with a grief I have never felt in my life before--not even when my parents died. I feel like I am underwater looking up at a hazy world. I cry or feel sad at least 4-5 hours a day.

I sleep, at most, four hours a night even though I take a double dose of Xanax (2 mg total) and two Benadryls. The drugs knock me out but I wake up at 2 or 3 AM and can't go back to sleep.

Today, I casually told a nurse I can't wait for the next six months to be over because that's the end of Lupron and she said it's going to be more like 18 months to get back to normal because Lupron takes a very long time to leave the body. Hearing that made me want to hurl myself off the roof of the medical building--I just literally froze with fear.

I'm technically "alive" but there is no quality to anything. My day consists of faking my way through work, then coming home and crying on the couch and staring into space. Sometimes my heart will start racing at 150-180 bpm for a few minutes and I pray I will just have a heart attack and die.

My friends and family have given up on me, and I honestly don't blame them. I also got tired of their "you need to be positive," "you need to have a positive outlook" bull****.

I guess what I'm asking is how the hell do so many other guys do this and still have any kind of a life. I feel like I'm 100% destroyed inside.

UPDATE: Nov. 15, 2024

To everyone responding to this post--thank you! I will say it is an older post and I have gotten help in many ways:

I joined a support group, I have a prostate cancer mentor, I am seeing a psychologist and a sexual health physician, and of course still participating in this group. One "advantage" of getting a prostate cancer diagnosis early in the year is that I was able to quickly meet my insurance deductible so don't have any out of pocket cost for these things until January so plan to take FULL advantage of any and everything available to me through my cancer center.

I have also been exercising a lot and outdoors as much as possible. I find being in nature is helpful. I also listen to a lot of sad music which is oddly cathartic and have been writing about my life which helps me to channel a lot of feelings and ideas into things that might somehow help others.

So, while the original post was negative and is true to how I felt at the time, my outlook is improving. I'm still not quite the cheerful carefree guy I was before but I'm also not crying three hours a day anymore, either. So, progress is being made and thank you to all who are responding.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

@jc76

@paddicakes @scottbeammeup
Scottbeammeup.
Regarding your update: I see you are doing everything to help you improve your mental and physical health. We many times move away from getting mental health help because of the stigma. But mental health is just like physical health in that time to time it needs addressing and treating.

Every six months I see a specialist at Mayo Psychiatric division. She is a counselor who specializes in medications. The first thing she says is I have reviewed all your medical visits and medical notes of your appointments and their summaries.

The very first time I met with her she told me "we work here as a team." And then, "we are your Mayo Care Team." I know I am in good hands and boy did that caring help.

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When I was in hospital for a few months, I had free access to psychotherapy (along with physiotherapy, a dietician, and other similar support services).

Unfortunately, Ontario doesn't cover those services *outside* of hospital, but I was in much better shape by the time I came home.

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@paddicakes

Have you thought of seeking mental health services? A good therapist can make a world of difference. Give yourself some grace. It's OK to not be ok every once in awhile but not constantly. Our brains need treatment too. Get into therapy.

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@paddicakes @scottbeammeup
Scottbeammeup.
Regarding your update: I see you are doing everything to help you improve your mental and physical health. We many times move away from getting mental health help because of the stigma. But mental health is just like physical health in that time to time it needs addressing and treating.

Every six months I see a specialist at Mayo Psychiatric division. She is a counselor who specializes in medications. The first thing she says is I have reviewed all your medical visits and medical notes of your appointments and their summaries.

The very first time I met with her she told me "we work here as a team." And then, "we are your Mayo Care Team." I know I am in good hands and boy did that caring help.

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@paddicakes

Have you thought of seeking mental health services? A good therapist can make a world of difference. Give yourself some grace. It's OK to not be ok every once in awhile but not constantly. Our brains need treatment too. Get into therapy.

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Thanks paddicakes. Yes, I've been working with a good therapist for several months now, attending a support group and finding good support here as well.

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@paddicakes

Have you thought of seeking mental health services? A good therapist can make a world of difference. Give yourself some grace. It's OK to not be ok every once in awhile but not constantly. Our brains need treatment too. Get into therapy.

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@paddicakes, you're so right. The emotional toll of a serious diagnosis, like cancer, deserves care too. Have you been diagnosed with prostate cancer? How are you doing?

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@paddicakes

Have you thought of seeking mental health services? A good therapist can make a world of difference. Give yourself some grace. It's OK to not be ok every once in awhile but not constantly. Our brains need treatment too. Get into therapy.

Jump to this post

If that was addressed to @scottbeammeup , you'll be happy to know that he has made huge progress since last July when he started this thread, and his posts have been inspiring. You can see his later posts by clicking on his user name.

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Have you thought of seeking mental health services? A good therapist can make a world of difference. Give yourself some grace. It's OK to not be ok every once in awhile but not constantly. Our brains need treatment too. Get into therapy.

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@heavyphil

Hey Chamblee, That was such a great post! You really distilled all the emotions and turmoil men face when they no longer see the ‘ME’ they always knew.
Men suffer as much shame and feelings of inadequacy sexually - perhaps more- than breast cancer patients. Not trying to minimize their anguish but breast reconstruction has really come a long way - and you DON’T need a breast(s) to perform sexually.
This disease robs the majority of men of their ability to achieve penetration; pills and injections MAY help some, but others like me who are totally impotent have to think about implants, pumps and inserts to even come close!
Lucky for me I am married for almost 40 years to a wonderful woman who really understands my literal shortcomings. She’s not happy for either of us but even though our sex lives are non-existent (ADT as well) our love is even stronger than before. I never believed it when someone said that (yeah, right…) but I’ve found it to be true. Best to you!
Phil

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This is a great post. Sex is just one way to express your love and care for your partner. However, it is not a necessary one. Faith, love, fidelity, loyalty, presence.....these are what make a truly, loving relationship.

15 years ago my wife had to have an early full hysterectomy. They took everything. It put her into immediate menopause. We both decided that she should not do hormone therapy because of the serious side effects. However, one of the most troublesome side effects of women losing their hormones is that the skin becomes non-elastic: it doesn't give. Intercourse becomes extremely painful because of that lack of elasticity. She felt like "not a whole woman" anymore. However, other sexual expressions can be quite fulfilling. Now, she feels that everything is ok, that she is a complete person and our sex life (up until the prostate stuff) was quite satisfying. You just have to be imaginative.

We have been married 48 years and we love each other more each day.

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@chamblee54

I hear ya. It’s the ADT. I went through a period of Grief - feeling like my old self was gone and I don’t like the new self. My body - same. Lost muscle and gained belly. I saw a picture of myself recently from a family function and deleted it. I was going to the gym regularly and when I was I felt better. I went out of town twice and had family in and got away from the habit. I’ve got to get back to it. Maybe change gyms for you ?
I think we need to look longer term,.. ya. It sux but it beats the alternative. I’m 2 months post ADT drugs and the side effects are wearing off some. I was out socially with a girl friend (not dating) and I told her I was out of the dating circuit and why. She had her own battle with breast cancer and gets the shame factor on new limitations of performance. I’m starting to just get used to it but it’s a sad deal to know that isn’t an option now. Like I suddenly got Old over a short period.
All this is short term in the big picture and I’ve put my energy into other things. Other interests. I’m getting better at putting energy into just friendships. There are so many that have it worse. So I’m adjusting and finding a new normal. You will get better. You will adjust. Read the side effects of the ADT and it will help you know it’s just the drug and it will be over soon.

Jump to this post

Hey Chamblee, That was such a great post! You really distilled all the emotions and turmoil men face when they no longer see the ‘ME’ they always knew.
Men suffer as much shame and feelings of inadequacy sexually - perhaps more- than breast cancer patients. Not trying to minimize their anguish but breast reconstruction has really come a long way - and you DON’T need a breast(s) to perform sexually.
This disease robs the majority of men of their ability to achieve penetration; pills and injections MAY help some, but others like me who are totally impotent have to think about implants, pumps and inserts to even come close!
Lucky for me I am married for almost 40 years to a wonderful woman who really understands my literal shortcomings. She’s not happy for either of us but even though our sex lives are non-existent (ADT as well) our love is even stronger than before. I never believed it when someone said that (yeah, right…) but I’ve found it to be true. Best to you!
Phil

REPLY

I hear ya. It’s the ADT. I went through a period of Grief - feeling like my old self was gone and I don’t like the new self. My body - same. Lost muscle and gained belly. I saw a picture of myself recently from a family function and deleted it. I was going to the gym regularly and when I was I felt better. I went out of town twice and had family in and got away from the habit. I’ve got to get back to it. Maybe change gyms for you ?
I think we need to look longer term,.. ya. It sux but it beats the alternative. I’m 2 months post ADT drugs and the side effects are wearing off some. I was out socially with a girl friend (not dating) and I told her I was out of the dating circuit and why. She had her own battle with breast cancer and gets the shame factor on new limitations of performance. I’m starting to just get used to it but it’s a sad deal to know that isn’t an option now. Like I suddenly got Old over a short period.
All this is short term in the big picture and I’ve put my energy into other things. Other interests. I’m getting better at putting energy into just friendships. There are so many that have it worse. So I’m adjusting and finding a new normal. You will get better. You will adjust. Read the side effects of the ADT and it will help you know it’s just the drug and it will be over soon.

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