Rash side effect of Lutathera treatment

Posted by wkellett @wkellett, 4 days ago

My 85 yr old mom received her 3rd Luta Thera treatment for Neuroendocrine tumors in her pancreas. 2 weeks post treatment, she started getting a red rash all over and it has been getting worse. It's very itchy and has been persistent for 3 weeks now. Oncologist says he's never seen it. Has anyone else experienced it? How did you treat it? How long does it stick around? What has caused this? Thanks!

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

dbamos1945 | @dbamos1945 | 4 days ago

@wkellett: Sorry to hear about your Mother’s discomfort. Rashes can appear for many reasons from strawberries , nerves, liver probs., etc… to drug interactions as you are aware.
I (80yrs) had my 4 sessions of Lutathera from June-Dec, 2024 with no side effect except fatigue. I had great resolution of NET tumors - some disappeared, and for the last 8 months after treatment ended, some tumors continue to get smaller!
So I stay up on how other patients with PRRT Lutathera treatment’s have side effects (minimal complaints) and I have never heard of RASH.
As a non-invasive treatment (aside from radioactive isotope exposure) PRRT Lutathera gets an A+ from me!
I am feeling like my ‘ol self again and sooo grateful to looking at more time to have fun!
Best of health, dbamos1945

fraaseo | @fraaseo | 4 days ago

Allergic reactions: Allergic reactions have occurred in people who were treated with LUTATHERA. Notify your health care provider if you develop symptoms of an allergic reaction. Seek emergency help right away for any serious allergic reactions. Symptoms may include trouble breathing or swallowing; raised bumps (hives); rash or itching; and swelling of the face, lips, tongue, throat, or arms. https://us.lutathera.com/side-effects/understanding-side-effects.