Anyone have metaplastic squamous cell carcinoma of the breast?

Even if you don't get a response I hope you post anyway.

I found the mayo boards off of a Google search for help with a similarly rare side effect, based on a post from 2021, and it was immensely helpful.

I agree that we’d love for you to share your positive story. Lots of us have and/or had breast cancer of various types so we’re all in this together. Lots of us also have other rare conditions so we get how it is to deal with those too. Zebra

Yes please share your positive story for us.

@susan528
Hello,
I was diagnosed with
Low-Grade Adenosquamous. It is a type of Metaplastic Carcinoma. This type is less than 0.2% of all breast cancers.
So it is not exactly the same type as yours, but also extremely rare.

@susan528
I would be very interested to hear about this and see what the differences are compared to my rate cancer.
Thank you!

Please share your positive story.

I was diagnosed with metaplastic breast cancer squamous in January of this year. It started out as triple negative breast cancer and mutated to metaplastic sometime during chemo. I completed chemo, surgury and radiation and now will start on an oral chemo intended for tnbc. There is absolutely no research to show that this will help, but my oncologist thinks I should try it. Any advice on this? Also, I'm wondering if anyone is taking fish oil and what kind? Thanks!

I also had TNBC, but am unfamiliar with the type you developed. You don’t mention the stage of your cancer.
You might check MD Anderson and their research on lipophilic statins with regard to TNBC reoccurrence. I take Lovastatin in hopes that it will have a positive effect. There is so little available for TNBC

Hi! Susan, @susan528:

Hope you've been well all through this time since you wrote this post more than 6 weeks ago:)

Perhaps none of us experienced the same rare BC as you did; but frankly I am still waiting for your positive story to boost our spirits. Could you please share with us your positive experience to guide folks like us on this journey, please?

Thanks in advance!

I would ask what are the secondary effects of the oral chemo so you can have all the information you need to make a decision.
Also asking for a second or even third opinion is helpful.

It was in my case , because the size of my tumor after the surgery was three times what the images showed, two oncologist said you need chemo but the third one said , I cannot believe that’s the size of the tumor something should be wrong, so she asked the pathologist to review that again and it turns out that the size was wrong , so I went from T3N0M0 to T1N0M0. The treatment was completely different from that point.