Radiation or not after surgery for endometrial cancer?

Posted by marceyw @marceyw, Feb 4, 2024

I was diagnosed with early stage endometrial cancer at Christmas. Had complete hysterectomy on 1/9/24. There was no cancer in the sentinel lymph nodes, ovaries or tubes. My doctor is suggesting brachytherapy to cut my 10% chance of recurrence to 5%. I’m concerned about the side effects. Has anyone been thru this and what are the possible side affects of this type of radiation? Dr said I don’t have the harmful P53 gene but do have a gene that would qualify me for immunotherapy if it were to come back. Really torn about what to do next. Would like to think I could fight the return with diet and lifestyle. Ideas and experiences appreciated.

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Profile picture for aardvark2118 @aardvark2118

For what it’s worth I had 25 external beam and 3 brachytherapy which follows what your md said

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Thank you for response,how long ago were you diagnosed and treated?

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Profile picture for RefluxGoAway @njp515

I had two Brachy treatments. Mine were high dose AND I did not have EBRT or any other type of treatment. I think (and I'm not an expert) that most dosages are around 5-7 Gray (Gy) each; each of mine was more than double. Maybe you had high dose?

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It was 2 High dose treatments. Sorry forgot there were high/low

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Profile picture for tdfraze @tdfraze

I'm reading on here most had 3 brach. therapies, I only had 2 brach, 28 external radiations for/stage 3 endometrial cancer w/POLE mutation. I asked why I hear most have 3 brach treatments it seems and I only had 2. Doctor said was cause I did more external which is harder he stated. ...any thoughts

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I had two Brachy treatments. Mine were high dose AND I did not have EBRT or any other type of treatment. I think (and I'm not an expert) that most dosages are around 5-7 Gray (Gy) each; each of mine was more than double. Maybe you had high dose?

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For what it’s worth I had 25 external beam and 3 brachytherapy which follows what your md said

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I'm reading on here most had 3 brach. therapies, I only had 2 brach, 28 external radiations for/stage 3 endometrial cancer w/POLE mutation. I asked why I hear most have 3 brach treatments it seems and I only had 2. Doctor said was cause I did more external which is harder he stated. ...any thoughts

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Profile picture for mydeb00071 @mydeb00071

What does branch therapy mean? Is that is what's recommended before or after a full hysterectomy, to lower risk of reoccurrence?

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Ok thank you!

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I concur that the set up is weird, but not painful. The enclosed radiation room with the well-protected tech was a bit surreal, but I played word games in my head to manage the anxiety.
Best of luck!

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Brachytherapy is internal radiation. In my case an applicator was used to place a high dose radiation “seed” at the location of the vaginal cuff to lower the chances of recurrence as often times this is where a recurrence occurs. The brachytherapy is targeted so as to spare other organs. You first have a CT simulation to identify the location. The entire procedure takes minutes and is a little uncomfortable but not painful I had three treatments following external beam radiation and chemotherapy fir stage 3 endometrial cancer

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Profile picture for marceyw @marceyw

I absolutely would like to avoid any recurrence so am leaning toward the brachytherapy. Thank you!

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What does branch therapy mean? Is that is what's recommended before or after a full hysterectomy, to lower risk of reoccurrence?

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Profile picture for jeanadair123 @jeanadair123

Thank you for yours also.
I find I am constantly exhausted from dealing with this, I have had cancer 3 times, uterus, recurrence vaginal cuff and breast. My husband has has prostrate, recurrence twice currently going through it again and lung cancer. But we manage to keep fighting on. My friends don’t understand that I think about C they should live a day in my life. Amazingly though we are both healthy. Although my husband has the beginning of MCI. I just live one day at a time and we enjoy each other and life.

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Keep fighting! I'm trying to create an environment in my body where cancer is less likely to grow so take supplements. I want to avoid "snake oil" as I know nothing will be a cure, but I combed through sites like this and found what PEOPLE WITH NO RECURRENCES take. No one knows if the supplements truly played a role, but I see hope and generated a very extensive list; reducing it to a few based on peoples experiences and my own research. Until a cure is found, let's share and empower each other to fight from all possible fronts.

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