Radiation or not after surgery for endometrial cancer?
I was diagnosed with early stage endometrial cancer at Christmas. Had complete hysterectomy on 1/9/24. There was no cancer in the sentinel lymph nodes, ovaries or tubes. My doctor is suggesting brachytherapy to cut my 10% chance of recurrence to 5%. I’m concerned about the side effects. Has anyone been thru this and what are the possible side affects of this type of radiation? Dr said I don’t have the harmful P53 gene but do have a gene that would qualify me for immunotherapy if it were to come back. Really torn about what to do next. Would like to think I could fight the return with diet and lifestyle. Ideas and experiences appreciated.
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5 Reactions@greatgrandma2025
So, no, it is not just you who has been mistreated by OB-GYNs. It happens all the time.
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2 Reactions@greatgrandma2025
An OB-GYN in my city of Knoxville, Tennessee, whom I saw for a consultation in regard to postmenopausal bleeding, told me that he wanted to do an endometrial biopsy, a transvaginal ultrasound, and saline-infused sonohysterogram (SIS), all during one appointment. Knowing that the College of Obstetricians and Gynecologists (ACOG) has issued a practice bulletin saying that an endometrial biopsy is no longer the standard of care, I refused it. However, one of his nurses told me that he planned to do it anyway during the appointment for the transvaginal ultrasound and SIS. What a weasel. I cancelled all future appointments with him and found another OB-GYN, one who is world renowned. To see him, I had to travel from my home in Knoxville, Tennessee, to New York City, but he was well worth the inconvenience and financial expense. And as it turned out, I didn't need SIS after all, just a transvaginal ultrasound, and the OB-GYN in New York City does not recommend an endometrial biopsy, either.
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2 Reactionsgreat grandma @cherylfromknoxvillet I have also been in situations that I felt out of control due to the constant calls and with one in particular I was supposed to have a consultation and I made it clear and did not sign consent and they did a procedure I knew nothing about while the did a pelvic exam. So now I'm glad it is not just me. Thank you for making it clear!!!
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4 Reactions@naturegirl5
Helen, I'm saying "no" to any medical and/or surgical treatment that has the strong potential of doing nothing more than torturing me at the end of my life (for example, but not limited to, hysterectomy, chemotherapy, and/or radiation (such as brachytherapy). For me, it's not about LENGTH of life. It's about QUALITY of life. At the age of 68, nearly 69, and without any remaining family, as far as I'm concerned, too much medicine and surgery will make my life not worth living any longer. And at the moment, I'm filled with absolute joy at being alive. Cheryl P.S. I have a Ph.D. in medical communication, and I've thought through this issue extremely thoroughly.
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1 Reaction@cherylfromknoxvillet I certainly agree that it is our right as patients to say "yes" or "no" to any medical advice or procedure. I'm confused by your last remark. What have you decided to say "no" to?
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1 Reaction@1995victoria
You are absolutely correct. NO MATTER WHAT A DOCTOR MAY RECOMMEND (such as D&C, hysterectomy, chemotherapy, and/or radiation, A WOMAN CAN SAY YES OR NO. I don't want to be tortured by the medical establishment at the end of my life, SO I HAVE DECIDED TO SAY NO.
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1 ReactionI'm interested to know your decision and results since this post was from a year ago. ❤️
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2 Reactions@dintelus6 I was diagnosed with endometroid adenocarcinoma FIGO Grade 1 Stage 1A in 2019. I asked my surgeon about the follow-up appointments and what would be involved. She told me that if I had a recurrence the most likely place would be the vaginal cuff. and so I would have a physical exam (speculum and pelvic exam) every 6 months. That's what happened as my nurse practitioner found a very tiny polyp on the vaginal cuff in 2021. Maybe this is why your doctor recommends brachytherapy?
When I had brachytherapy (2 sessions) after my recurrence the procedure was not at all painful. It was a little uncomfortable only because one must lie very still on a table, legs up in stirrups, while the device is placed in one's vagina. My radiation oncologist was very gentle and the device was easily inserted. The brachytherapy does cause scarring of tissue so after this and also 25 sessions of external pelvic radiation I need to use a vaginal lubricant on a regular basis and a dilator. I still do both of these. These measures keep the vagina in good health for future exams and if one is sexually active. I do not regret having brachytherapy.
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2 Reactions@ramidimitri, how are you and your wife doing? Did she, along with her cancer team, decide on the next treatment: external beam radiation or brachytherapy?
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