Radiation or not after surgery for endometrial cancer?

Posted by marceyw @marceyw, Feb 4, 2024

I was diagnosed with early stage endometrial cancer at Christmas. Had complete hysterectomy on 1/9/24. There was no cancer in the sentinel lymph nodes, ovaries or tubes. My doctor is suggesting brachytherapy to cut my 10% chance of recurrence to 5%. I’m concerned about the side effects. Has anyone been thru this and what are the possible side affects of this type of radiation? Dr said I don’t have the harmful P53 gene but do have a gene that would qualify me for immunotherapy if it were to come back. Really torn about what to do next. Would like to think I could fight the return with diet and lifestyle. Ideas and experiences appreciated.

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Not to alarm anyone, but awhile back, in a thread, I was reading posts from few years ago, lady stage 1 is how it started. She was given hysterectomy only, not follow up therapy or treatments since doctor said low risk. I've read that A LOT w/stage 1 endometrial cancer it seems. Well, her follow up scan showed all clear, but she was having some ongoing issues of some type, so she pressed further with doctor. They did some kind of very specific MRI scan, found cancer in bone or breast, can't remember right now, but it had spread and reg scan they do at follow up screenings, as reg maintenance, didn't find it. Anyways, there were some posts in between, back and forth, but then she came back, said had spread to her brain in just less then year past that. She was very VERY Upset, that her original doctor has not advised treatment, since she was only stage 1. Did only hysterectomy, no follow up. People had been going back on her thread to check on her later, no response. I only tell this, because it was very upsetting, and I'm stage 3, pole mutated. So, it told me to be very vigilant and proactive in my own care. I was thinking before reading all that thread, "I wish I were only stage 1, needing hysterectomy only...,"as me and Dr talked about. That they sometimes don't do any other treatments if stage 1. Well, after reading that, I realized, at no matter what stage of cancer, definitely do your reseach, and be proactive, seek answers as you are, because "caught early" is very good, but not a guarantee its not to be taken seriously. Prayers for wisdom, complete healing for you.

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Profile picture for aardvark2118 @aardvark2118

For what it’s worth I had 25 external beam and 3 brachytherapy which follows what your md said

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Thank you for response,how long ago were you diagnosed and treated?

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Profile picture for RefluxGoAway @njp515

I had two Brachy treatments. Mine were high dose AND I did not have EBRT or any other type of treatment. I think (and I'm not an expert) that most dosages are around 5-7 Gray (Gy) each; each of mine was more than double. Maybe you had high dose?

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It was 2 High dose treatments. Sorry forgot there were high/low

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Profile picture for tdfraze @tdfraze

I'm reading on here most had 3 brach. therapies, I only had 2 brach, 28 external radiations for/stage 3 endometrial cancer w/POLE mutation. I asked why I hear most have 3 brach treatments it seems and I only had 2. Doctor said was cause I did more external which is harder he stated. ...any thoughts

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I had two Brachy treatments. Mine were high dose AND I did not have EBRT or any other type of treatment. I think (and I'm not an expert) that most dosages are around 5-7 Gray (Gy) each; each of mine was more than double. Maybe you had high dose?

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For what it’s worth I had 25 external beam and 3 brachytherapy which follows what your md said

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I'm reading on here most had 3 brach. therapies, I only had 2 brach, 28 external radiations for/stage 3 endometrial cancer w/POLE mutation. I asked why I hear most have 3 brach treatments it seems and I only had 2. Doctor said was cause I did more external which is harder he stated. ...any thoughts

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Profile picture for mydeb00071 @mydeb00071

What does branch therapy mean? Is that is what's recommended before or after a full hysterectomy, to lower risk of reoccurrence?

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Ok thank you!

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I concur that the set up is weird, but not painful. The enclosed radiation room with the well-protected tech was a bit surreal, but I played word games in my head to manage the anxiety.
Best of luck!

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Brachytherapy is internal radiation. In my case an applicator was used to place a high dose radiation “seed” at the location of the vaginal cuff to lower the chances of recurrence as often times this is where a recurrence occurs. The brachytherapy is targeted so as to spare other organs. You first have a CT simulation to identify the location. The entire procedure takes minutes and is a little uncomfortable but not painful I had three treatments following external beam radiation and chemotherapy fir stage 3 endometrial cancer

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Profile picture for marceyw @marceyw

I absolutely would like to avoid any recurrence so am leaning toward the brachytherapy. Thank you!

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What does branch therapy mean? Is that is what's recommended before or after a full hysterectomy, to lower risk of reoccurrence?

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