Radiation or not after surgery for endometrial cancer?
I was diagnosed with early stage endometrial cancer at Christmas. Had complete hysterectomy on 1/9/24. There was no cancer in the sentinel lymph nodes, ovaries or tubes. My doctor is suggesting brachytherapy to cut my 10% chance of recurrence to 5%. I’m concerned about the side effects. Has anyone been thru this and what are the possible side affects of this type of radiation? Dr said I don’t have the harmful P53 gene but do have a gene that would qualify me for immunotherapy if it were to come back. Really torn about what to do next. Would like to think I could fight the return with diet and lifestyle. Ideas and experiences appreciated.
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Brachytherapy is internal radiation. In my case an applicator was used to place a high dose radiation “seed” at the location of the vaginal cuff to lower the chances of recurrence as often times this is where a recurrence occurs. The brachytherapy is targeted so as to spare other organs. You first have a CT simulation to identify the location. The entire procedure takes minutes and is a little uncomfortable but not painful I had three treatments following external beam radiation and chemotherapy fir stage 3 endometrial cancer
What does branch therapy mean? Is that is what's recommended before or after a full hysterectomy, to lower risk of reoccurrence?
Keep fighting! I'm trying to create an environment in my body where cancer is less likely to grow so take supplements. I want to avoid "snake oil" as I know nothing will be a cure, but I combed through sites like this and found what PEOPLE WITH NO RECURRENCES take. No one knows if the supplements truly played a role, but I see hope and generated a very extensive list; reducing it to a few based on peoples experiences and my own research. Until a cure is found, let's share and empower each other to fight from all possible fronts.
Thank you for yours also.
I find I am constantly exhausted from dealing with this, I have had cancer 3 times, uterus, recurrence vaginal cuff and breast. My husband has has prostrate, recurrence twice currently going through it again and lung cancer. But we manage to keep fighting on. My friends don’t understand that I think about C they should live a day in my life. Amazingly though we are both healthy. Although my husband has the beginning of MCI. I just live one day at a time and we enjoy each other and life.
I did not have open surgery. Mine was five little port holes for the arms of the robot to go in.
I'm having the robotic surgery and it's easier on the body than cutting you open.
OMG! This is the perfect example of why it's important to advocate for ourselves. It was logical, simply common sense, for doctors to examine your vaginal area yet you still had to fight for it (and save your own life!). For my hystorectomy, I fought for open surgery. Had to travel distances and even fly from California to New York to find oncologists who would do it. After the surgery, the surgeon said it was a good thing I insisted on open surgery because if they had done it robotically, the cancer likely would have spilled into my abdomen. We must continue to follow our instincts and go with our gutt feelings. Thank you, for that story.
Let your surgeon and the operating room staff know of your back issues. With me, I (and my surgeon) were so concerned about my giant hiatal hernia and avoiding trauma to that area that I really didn't care about anything else. My surgeon was also extremely highly rated, and I felt pretty darn good about three days post surgery. I had soreness for sure, but I thought it was routine, and I was telling everybody what a piece of cake the surgery was. The pain just never went away, and got worse. Pace yourself; don't jump back into regular routines for at least 8-12 weeks. (I flew for 3 hours at 6 weeks). Don't be tempted to sit up in bed in a "V" position, put a pillow under your knees, try to avoid doing anything that twists your torso. Anyway, your medical professionals will tell you all these things; just make sure to follow their instructions. Best of luck and keep us posted on your progress!
Oh wow, reading about the damage to your lower back is concerning because I'm due to have a hysterectomy on Aug 20th. This doctor has very good reviews and is loved by many people as seen on tik tok video replies my daughter has made of my cancer journey. I already have severe back issues for 20 years so I'm praying I come out of this with no injuries to other organs or areas of my body.
We previously lived in Texas where I had the surgery, we returned to California in 2013. I had annual checkups in Texas with a speculum. I went to 3 gynecologist specialists who said they didn’t feel it was necessary to use a speculum because there was only a 1% chance of recurrence. I kept going to doctors and finally found one who would use a speculum she said I am only doing it because you are so insistent. She was shocked when she saw that I had a growth so she did a biopsy which showed cancer. I checked with Sutter, then went to Stanford and the Mayo Clinic in Minnesota. I decided on Stanford because they seemed more aggressive in my treatment doing what the others didnot recommend. I still see my gynecologist oncologist annually and a gynecologist I trust in town, so I get checked every 6 months. When I look back I don’t know how I did the dilator every day for 2 years before I went to 4 times a week. It’s imperative that you do this so you can have examinations in the future.must say the brachytherapy wasn’t great.you have to be proactive and pushy it’s your life no one will keep track of it like you do.