Radiation or not after surgery for endometrial cancer?

Posted by marceyw @marceyw, Feb 4 9:49pm

I was diagnosed with early stage endometrial cancer at Christmas. Had complete hysterectomy on 1/9/24. There was no cancer in the sentinel lymph nodes, ovaries or tubes. My doctor is suggesting brachytherapy to cut my 10% chance of recurrence to 5%. I’m concerned about the side effects. Has anyone been thru this and what are the possible side affects of this type of radiation? Dr said I don’t have the harmful P53 gene but do have a gene that would qualify me for immunotherapy if it were to come back. Really torn about what to do next. Would like to think I could fight the return with diet and lifestyle. Ideas and experiences appreciated.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

My total hysterectomy was August 2021. I was told the cancer was contained in the endometrial lining and a PET scan confirmed it. I was also told they got it all. 6 months later recurrence in the form of 2 tumors in my abdomen. 6 chemo infusions with immunotherapy and it was gone again. "CR" compkete response. The don't use "remission" with me.
To answer your question about radiation: the 1 tumor I have now (it grew back in the same spot) is too close to the colon for radiation.
I don't know if that helps, but I thought I'd share.

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My hysterectomy is scheduled for May 20...marcyw. I'm interested in knowing what you decided about going thru the brachy therapy.

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I was diagnosed with stage 1A endometrial cancer in early 2023 and had 4 sessions of brachytherapy after a complete hysterectomy. I think I made the right decision; I have not had any side effects. I felt that the risk of cancer recurrence would be much more serious than the side effects of brachytherapy.

I understand how stressful this can be. I was incredibly stressed when I went through my treatment and quite honestly, believed I was going to die. It was a terrible time. I am grateful for my supportive family, friends and pets. I couldn't have gotten through it without them. The one thing I kept at the forefront of my mind and I would say to myself several times throughout the day: "In this moment, you are safe, well cared for and loved." It helped me cope.

I wish you peace and healing.
GratefulCat

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@naturegirl5

@sschoenherr Welcome to our Support Group. I’m sure our other members will appreciate your input as it’s comforting to know others have been through what we’ve been through.

Did you have surgery (a hysterectomy) prior to the brachytherapy? How are you feeling today?

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Yes. Total hysterectomy.
Some bladder control issues other than that, feel fine.

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@sschoenherr Welcome to our Support Group. I’m sure our other members will appreciate your input as it’s comforting to know others have been through what we’ve been through.

Did you have surgery (a hysterectomy) prior to the brachytherapy? How are you feeling today?

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I was diagnosed with the same cancer. Grade 2, Stage 1B.
I had 5 sessions of the brachytherapy's finished my sessions right before Christmas. Although a little uncomfortable, my only side effects were some fatigue and occasional loss still
stool.

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Thanks for support. I will share my next steps.

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@pat2628

I am being treated at Fl Mayo at present time. And I have only been reading about Proton radiation. Mayo has suggested several options. Waiting for next tests to make some decisions

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@pat2628 I'm sending you my heartfelt wishes as you go through this process. When will the tests be happening? I hope you will come back and share with us and I'm quite certain that you will receive support from us but your information will help to support others. I'm so glad you are here.

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@pat2628

I am being treated at Fl Mayo at present time. And I have only been reading about Proton radiation. Mayo has suggested several options. Waiting for next tests to make some decisions

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Best of luck. I'd be interested to hear what you're going to do, if you want to share.

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@val64

Have they offered you proton radiation? Where are you being treated?

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I am being treated at Fl Mayo at present time. And I have only been reading about Proton radiation. Mayo has suggested several options. Waiting for next tests to make some decisions

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