Radiation for benign tumor?
Hi there,
Sorry if I am not posting this in the right group, I am not too sure where to...
My son has been accepted as a patient at Mayo within the vascular malformation center, just waiting for our turn on the waitlist to come up.
He's been treated at Rush for vascular of veinous malformation origin soft tissue tumors, nested in the knee area, one was taken off no problem because it was in lower thigh. But the other one is inside kneecap, it is called "synovial" i think. It was deprived of its main blood supply with an interventional radiology procedure 2 and a half years and is just there now, it's not causing pain anymore but the problem is as his legs are growing it's moving and he has lost 20 degree of bending range. Anyway doctors at Rush don't want to do anything anymore, the surgeon doesn't want to touch that area with a 10 ft pole because it's not cancer, and the interventional radiologist is afraid of causing nerve damage, and that's why we are seeking the help of Mayo Clinic.
Something that was never discussed is radiation therapy. Anyone know if that's a thing in this area for soft tissue tumors even benign? I know it sounds like it is extremely agressive especially for a non life threatening condition but this tumor is making it hard on my son especially with the movement limitation which doesn't affect him for routine life stuff but he does martial arts and it limits him
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It does limit him from doing what he wants to do.
Radiation, as in all procedures, comes with risks. The options are probably more than "radiation". Go for the consult. Losing 20 degrees of movement IS an issue!
We will go now just waiting for our turn off the waitlist.
You are right this is an issue. I am coming out of almost 5 years being gaslighted by the Rush doctors telling me "it's not a serious condition" because it's not cancer, and their overly conservative approach is frustrating. It's too bad because both procedures he has done have had great outcomes, the pain is gone and my son lives a normal teen life (the 20 degrees don't affect daily use of his leg) but they aren't willing to help us with this new problem