Questions about radiation for prostate cancer: Can I drive myself?

Posted by paulcalif @paulcalif, Jan 31, 2024

Question to you who have been through radiation treatment for prostate cancer or have knowledge of the proceedure.
I'm considering some type of radiation treatment for my cancer. My main question is, will I be able to drive myself to and from?

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@jrhamp

2010 for 10 weeks of proton radiation therapy at Loma Linda. I understand currently, the time frame is much less due to better targeting and "mapping" of the prostate cancer. I had absolutely no post issues. Each day after radiation, I played racquetball at the March AFB gym..where I stayed for 10 weeks.

Proton radiation was initially invented to cure brain cancer in children with precision and less issues with post standard (then) radiation options. According to the physician who I met and who remains there today, proton radiation for prostate cancer was a logical followon for treatment. Every morning about 0800 five or six of use would be awaiting a call to take the proton radiation and I recall about 75% of those I met were doctors...which reinforce my decision making process initially. Do your homework..don't accept singular opinions and consider all options. RH/LTC, US Army (ps: My TriCare for Life insurance paid the entire bill)

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Who is the radiation Oncologist at Loma Linda treated you. I might be a candidate for radiation soon. I live about 45 minutes from Loma Linda in Irvine , ca. My other choice is UC San Diego California Protons.

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@michael219

In my opinion, you should definitely be able to drive yourself. I underwent 29 Proton radiation treatments and was fully able to drive myself - even when my better half was with me I drove. If you haven't yet researched Proton vs. Photon, please do so to educate yourself on the (big) differences. We met with several top-level cancer centers and were given multiple options from 5 SBRT sessions, 20-30 Photon, and 29 Proton sessions (or zaps as we called them. I came away confused as the experts were offering different options, willing to modify if I wanted and it was "us" who ultimately needed to do the research. We also saw the Inherent built-in medical bias as cancer centers that did not offer Proton offered reasons why it was not appropriate.......yet this was because they currently did not offer Proton and wouldn't for several years (sell what you have, not what is coming in a few years).
I came away extremely pleased with my decision to go with Proton (early 2023), I had zero side effects, other than some brief fatigue. It was the ADT that kicked my butt!

I wish you all the best as you research and make this important decision!

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The doctors who dint have proton at their facility always say that proton is no more curative than photons which is true but they sidestep the other concern which is the collateral damage that proton minimizes.

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@jc76

@gently
Really a personal decision and should be based on what you think is best for you after doing research and talking to your doctors. I would always get a second opinion.

I did discuss the newer 5 high dose treatment being done now versus the 20-30-40 lower dose treatments. I had the 30 dose at UFPTI (proton beam). My EP stated that his research was showing some increased side affects with the high dose which you would expect. The main benefit for the 5 dose is TIME. The both have equal success.

I discussed this with my oncologist/radiologist at UFPTI who has been doing proton radiation treatments since 2006. He also stated the increased risk and statistics showing an increased in side affects with high dose.

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Some research shows that fewer higher doses may be more effective than more lower doses.

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@gently

paulcalif, stuck between 28 proton fraction, 5 proton fractions and 5 MRgRT fractions. I can't tell which would cause the fewest side effects. If your studying yields any convictions, let me know.

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@gently
Really a personal decision and should be based on what you think is best for you after doing research and talking to your doctors. I would always get a second opinion.

I did discuss the newer 5 high dose treatment being done now versus the 20-30-40 lower dose treatments. I had the 30 dose at UFPTI (proton beam). My EP stated that his research was showing some increased side affects with the high dose which you would expect. The main benefit for the 5 dose is TIME. The both have equal success.

I discussed this with my oncologist/radiologist at UFPTI who has been doing proton radiation treatments since 2006. He also stated the increased risk and statistics showing an increased in side affects with high dose.

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I had 28 sessions of proton radiation treatments during April-May 2021, (plus Casodex and Eligard, and SpaceOAR Vue).

The proton radiation treatments were uneventful, and I had no significant side-effects. (My wife later told me that if she hadn’t known I was undergoing radiation treatments, she wouldn’t have realized it from any change in me.) There was no special support system necessary; I drove myself to and from the proton radiation center each day (40 minutes each way), and stopped by the gym to work out every day right after treatment.

Yes, you should be able to drive yourself.

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@toolbelt

Not only can you drive yourself, but one month after finishing SBRT we went on a two week SCUBA trip which ends today.

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And..... apparently, if needed you can run through the DFW airport like you own a white Ford Bronco........

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Not sure, but I would look into a rectal barrier. I'm taking a break for a few days. Let us know what you find out.

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@paulcalif

So many options, even just between the different types of radiation. So easy to find accolades for a particular proceedure from the manufacturers of their device. That's why posts from men who have actually gone through treatment are so insightful and much appreciated. I wish there were more reports from men being treated with FLA (FOCAL LASER ABLATION). It Appears to have almost no permanent side effects. Still studying....

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paulcalif, stuck between 28 proton fraction, 5 proton fractions and 5 MRgRT fractions. I can't tell which would cause the fewest side effects. If your studying yields any convictions, let me know.

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I've posted my status on other threads but not here so here it is 🙂
My last PSA was 5.1 (Sept 23)
My Gleason is 7.
5 of 12 samples positive for cancer.
2 sites 3+3
3 sites 3+4
My biopsy was guided by ultrasound and ordered due to my elevated PSA.
My doctor has ordered a PSMA PetScan/CT
I have not had an MRI
I have an appointment scheduled with RadNet for the PetScan on Feb 20th. but still waiting for insurance approval.
Insurance is Blue Shield CA. Network provider is Optum Care Corona.
Any advice or insight greatly appreciated.

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@bens1

I finished my 5 mridian linac built in MRI and narrow margin radiation in February 2023. Someplaces are still using the machine but the manufacturer, Viewray, is no longer around. Margins are important. The narrower the mapping around the prostate, the less healthy tissue gets exposed and the fewer the side effects. My margins were 2 mm but most radiation machines are 3-6 mm. You might also want to consider Elekta.com: MRI/Radiation machine combination unit which is Similar to the Mridian or Mevian.com: Proton therapy radiation machine manufacturer. I had spaceoar to separate the prostate from the rectum to reduce healthy tissue exposure as well. The FDA last year approved BioProtect which is supposed to protect an even larger area.

I used Flomax after the 3rd session to help open up the urination flow. No other radiation symptoms for me.

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Ask your Dr about alfuzosin I think you'll get better results as far as sexual function goes.

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