Questions about radiation for prostate cancer: Can I drive myself?

Posted by paulcalif @paulcalif, Jan 31, 2024

Question to you who have been through radiation treatment for prostate cancer or have knowledge of the proceedure.
I'm considering some type of radiation treatment for my cancer. My main question is, will I be able to drive myself to and from?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Beachcomber20,
Regarding my experience at UCLA: Now I understand why it's highly recommended that you go to a Center of Excellence if possible.

Dr. Albert J. Chang was great and did a terrific job. He gets my highest recommendation. VERY experienced too; according to his UCLA bio, "Dr. Chang has performed over 1500 brachytherapy procedures." (Probably many more since that was written.)
https://www.uclahealth.org/providers/albert-chang
More discussion: https://connect.mayoclinic.org/discussion/has-anyone-had-hdr-brachytherapy-for-locally-advanced-prostate-cancer/

Dr. Chang's entire team was also great. PA's, nurses, schedulers, front desk, you-name-it -- all top notch.

Likewise excellent for after-treatment care, with UCLA doctors for oncology/urology, primary care, and (for me) cardiology.

All that said, I've also seen great reviews for other Center of Excellence hospitals, especially Mayo Clinic facilities. But I don't have first-hand experience outside UCLA.

Not sure what specifics you want. Just know that UCLA provides very detailed information to prepare you for every step in the process.

Best Wishes.

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Beachcomber20,
I don't recall how I was informed that I'd get the BioProtect spacer (ballon). But I definitely ended up getting the SpaceOar gel implant, not the BioProtect balloon.

Why? I believe because, at the time of my HDR (March 2024), BioProtect was still very new to the U.S. market: https://www.urologytimes.com/view/available-rectal-spacer-options-for-patients-with-prostate-cancer-undergoing-radiation-therapy

Anyway, SpaceOar worked well for me; after almost a year since HDR, I've had no rectal issues -- pooping is just as easy and problem-free as before HDR.

Just be aware that the diameter of your poop will likely be smaller than usual -- recovering to normal as the gel dissolves over a few months. During that time, you do not want to get constipated. I've used a stool-softener (Metamucil) for many years, never a problem. Adjust your diet as needed. And keep a spare Fleet enema handy just-in-case.

Also, after my HDR, I had 5 sessions of SBRT spread over 2 weeks. It's required to self-administer an enema just prior to each SBRT treatment. So, if you also get SBRT, you'll probably not have a constipation problem during your treatment period.

My experience at UCLA was excellent (see next post below)...

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@retiredboomer71

Bens1, thanks for mentioning the BioProtect spacer. I get it next month for HDR Brachy at UCLA, but it's relatively new compared with SpaceOar so I rarely see it mentioned.
The main advantage of BioProtect is the extra spacing it provides compared with SpaceOar. I believe BioProtect is also a bit easier to work with.
Downsides of BioProtect? I haven't seen any mentioned.
Maybe someone with first-hand experience will chime in.

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Hi RetiredBoomer71,

May I ask about your experience with the BioProtect spacer and HDR brachy at UCLA? I may be following in your footsteps and would really appreciate any specifics you can give about both the balloon and the HDR experience at UCLA. Would you recommend the balloon? And is there a HDR physician there that you can also suggest? Thanks for any details you can provide.

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@ava11

Who is the radiation Oncologist at Loma Linda treated you. I might be a candidate for radiation soon. I live about 45 minutes from Loma Linda in Irvine , ca. My other choice is UC San Diego California Protons.

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Regret the delay...I don't come to the site that frequently. My doctor 14 years ago was Dr. Bush. He remains at Loma Linda, but in what capacity..not certain.

Let just say that in the morning normally about 5 to 7 men were awaiting their "turn" with the "big machine". I would ask thinking about backgrounds and why they selected proton radiation. I recall about 60% or more were doctors/physicians. This fact reinforces my decision proton radiation the best option of me. I have a slow growth centralized right lob; PSA was 6.47 Gleason 3+3 T1. Former Army officer with many deployments..physical was required before and blood work after..so I had PSA results for many years.

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@ziggypop

Hi, can you recommend a doctor from Mayo in Rochester please. Thanks, Mike

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Yes, Dr Thompson as urologist/surgeon and Dr Ryan Phillips for radiology

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@gently

Avall, having to make that exact choice, we decided on City of Hope. Dr. Rossi doesn't think the five is a good choice. The difference would have been 28 treatments for a total of 58GY with a spacebar procedure. City of Hope is 5 treatments for a total of 40GY. The treatments are every other day so MWF and then TTh.
City of Hope is so much easier, but the genuine advantage is in the 2mm margin that they radiate around the prostate. With proton it is 3mm.
Opinions about the effectiveness of the total amount of radiation don't have enough evidence either way. Rossi suggests that 8GY a day could be more damaging in the final anaylsis. Damage from radiation treatment is sometimes not apparent for several years after treatment.
I drive 258 miles to the Lennar City of Hope Cancer Center, but would drive the extra 55. It's the MRI guidance during treatment and the lower GY total that were convincing.
If you haven't spoken with Rossi, you might want to have a zoom appointment. He has the most extensive experience. And there may be a deciding factor in the specifics of your cancer.
Ten minutes.
Best luck with your choice. I'm guessing you be at City of Hope.

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I met with Dr Percy Lee at city of Hope today. He suggested IMRT with 28 treatments and Brachy therapy and Harmone therapy. He gave me a choice if I want to skip Brachy therapy.
I am impressed with him and the facility.
I am trying to get an appointment at California proton center for zoom consultation with Dr. Rossi. They keep telling a clinical coordinator will contact me to get my medical records for the last 7 days.
Why is it so hard?

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My husband (65) is very independent and still working. He scheduled his radiation sessions to be first patient in am so he could get to work after. He drove to appointments then the 45 minutes to work everyday for the 6 weeks of treatment. PSA zero after completed.

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@ava11

jackph,
Where did you get 5 doses of proton treatment? I thought all proton treatments take several weeks?

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I received my treatment at Mayo clinic in Rochester, Minnesota.
My radiologist was doctor Bryan Traughber.
Both proton treatment and photon treatment can be administered in high-dose low frequency manners. Or low dose high frequency.
That's really up to the radiologist, each persons circumstances are unique.
I'm 10 months post treatment. Next PSA will be in May.
I'm 77, feel that I have had a good outcome.
My treatment included a 4 month course of ADT.
Side effects included a brief incident of rectal bleeding that resolved without treatment. That happened 2 months after treatment.
I live in Des Moines IA, about 2 hrs from Rochester.
After treatment I did connect with a local oncologist who has been very helpful as a care manager
My primary care doctor is also a good resource.
The most helpful education resource was the Prostate Cancer Research Institute. The organization has a great selection of youtube videos and covers most aspects of diagnosis and treatment.
Hope this is helpful.
Let me know if you have any questions

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@jackph

Most likely you will.
You do have 2 prep issues.
1. A self administered enema 60 minutes before treatment.
2. Then drinking a bottle of water about 20 min before tmt.
Empty colon and full bladder.

My experience was with Proton treatment 5 doses over 8 days.
Stayed by the hospital during the week and drove home - 2 hrs- for the weekend.
No issues with driving

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jackph,
Where did you get 5 doses of proton treatment? I thought all proton treatments take several weeks?

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