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Diagnosed with both papillary and follicular thyroid cancer: Advice?

Posted by jack1516 @jack1516, Sep 8, 2023

Hello! Feeling very overwhelmed today. Trying to be positive but having a hard time with it. I just had a TT Last Tuesday and got my pathology reports back yesterday afternoon. It came back both Papillary and Follicular cancer and classified it PT4a. I am scared and having a lot of anxiety. I was just hoping for some good advice and anyone experiencing results similiar to mine.

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jack1516 | @jack1516 | Sep 11, 2023
In reply to @colorado73 "I'm sorry to hear this. I know it can be very overwhelming. I too had thyroid..." + (show)
@colorado73

I'm sorry to hear this. I know it can be very overwhelming. I too had thyroid cancer just diagnosed this March. Had my surgery in April. Dr had to take whole thyroid due to papillary follicular cancerous tumor on the gland. Plus had to take whole thyroid due to my gene mutation that I had run last year. Chek2 gene is a multiple cancer gene. I had just had double mastectomy in January of last year due to stage 2 breast cancer. But having thyroid out was uncomfortable, yes, but necessary. If you've had your tonsils out at any point, it's kinda like that. In the sense it hurts to swallow, your throat is swollen for awhile & sore. Hard to talk. I had long issues with swollowing afterwards so Dr said just do protein powder shakes for a bit & I did. Eventually it did clear up but took couple months. I'm on Synthroid for medicine to replace thyroid hormones. I see my oncologist every 3 months for blood tests to check TSH level. And she adjusts my medicine if needed. I'm not gonna lie, I struggled with tiredness for a few months till we got the Synthroid right. So it is a journey, unfortunately. I'm sure you'll do fine. Listen to your Dr, listen to your body. Get rest when you can. It'll be ok. If you want to talk more about it I'm here.
Good luck to you.

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Thank you for responding. Did you do the RAI treatment?

REPLY
colorado73 | @colorado73 | Sep 10, 2023

I'm sorry to hear this. I know it can be very overwhelming. I too had thyroid cancer just diagnosed this March. Had my surgery in April. Dr had to take whole thyroid due to papillary follicular cancerous tumor on the gland. Plus had to take whole thyroid due to my gene mutation that I had run last year. Chek2 gene is a multiple cancer gene. I had just had double mastectomy in January of last year due to stage 2 breast cancer. But having thyroid out was uncomfortable, yes, but necessary. If you've had your tonsils out at any point, it's kinda like that. In the sense it hurts to swallow, your throat is swollen for awhile & sore. Hard to talk. I had long issues with swollowing afterwards so Dr said just do protein powder shakes for a bit & I did. Eventually it did clear up but took couple months. I'm on Synthroid for medicine to replace thyroid hormones. I see my oncologist every 3 months for blood tests to check TSH level. And she adjusts my medicine if needed. I'm not gonna lie, I struggled with tiredness for a few months till we got the Synthroid right. So it is a journey, unfortunately. I'm sure you'll do fine. Listen to your Dr, listen to your body. Get rest when you can. It'll be ok. If you want to talk more about it I'm here.
Good luck to you.

REPLY
1 reply
koh | @koh | Sep 9, 2023

I do not have this type of cancer, however I think the stress of being told that you have cancer is always overwhelming. The internet can be good and bad when researching your diagnosis, so be careful with where you look for articles. Definitely keep up with follow-up appointments and don’t be afraid to go for second opinions if you are unsure about the follow-up. I am hopeful that someone on his site with a similar diagnosis can share first hand experience.
Good luck!

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