Diagnosed with both papillary and follicular thyroid cancer: Advice?

I do not have this type of cancer, however I think the stress of being told that you have cancer is always overwhelming. The internet can be good and bad when researching your diagnosis, so be careful with where you look for articles. Definitely keep up with follow-up appointments and don’t be afraid to go for second opinions if you are unsure about the follow-up. I am hopeful that someone on his site with a similar diagnosis can share first hand experience.
Good luck!

I'm sorry to hear this. I know it can be very overwhelming. I too had thyroid cancer just diagnosed this March. Had my surgery in April. Dr had to take whole thyroid due to papillary follicular cancerous tumor on the gland. Plus had to take whole thyroid due to my gene mutation that I had run last year. Chek2 gene is a multiple cancer gene. I had just had double mastectomy in January of last year due to stage 2 breast cancer. But having thyroid out was uncomfortable, yes, but necessary. If you've had your tonsils out at any point, it's kinda like that. In the sense it hurts to swallow, your throat is swollen for awhile & sore. Hard to talk. I had long issues with swollowing afterwards so Dr said just do protein powder shakes for a bit & I did. Eventually it did clear up but took couple months. I'm on Synthroid for medicine to replace thyroid hormones. I see my oncologist every 3 months for blood tests to check TSH level. And she adjusts my medicine if needed. I'm not gonna lie, I struggled with tiredness for a few months till we got the Synthroid right. So it is a journey, unfortunately. I'm sure you'll do fine. Listen to your Dr, listen to your body. Get rest when you can. It'll be ok. If you want to talk more about it I'm here.
Good luck to you.

Thank you for responding. Did you do the RAI treatment?

No, my Dr advised me to not take the treatment due to the risks of cancer coming back in different form from the RA treatment, due to my CHEK2 gene mutation. She said she would stay on top of my blood draws watching for cancer markers, TSH level & etc & do ultrasounds of my throat of the void where thyroid was to watch for anything abnormal. Mayo also suggested same thing to my oncologist. Hope this helps.

Sounds like you have been through a lot more than what I have been. I am sorry.
I am very fearful of the scans and finding it in other places. It had already spread to my trachae.

Is that CHEK2 gene mutation hereditary?

Yes it is hereditary unfortunately. Yes I've definitely been through the wringer. Skin cancer, breast cancer then thyroid cancer all a year apart. In my case I had an Aunt & 2 cousins with the chek2 gene that had thyroid cancer & colon cancer & an Aunt, grandma & cousin with breast cancer also. So all that being in my family, I guess I was destined to get it too. Not many family members left to ask questions either. Only 4 cousins left & the ones I referred to about cancer are passed & so have my aunts. Dr is staying ontop of my health, which I'm grateful for.
I'm sorry yours has spread. I hope they can take care of it quickly for you. Good luck to you.🙏

How are you doing, @jack1516? Have you had a chance to discuss your treatment plan and next steps with your oncology team?

Thank you for asking. I have my appoitment with the Endocrinologist Monday. That is where my ENT who did the surgery sent me first.

Not sure what to expect.

Well, my timing seems to have been spot on. 🙂 If you scroll to the bottom of this long page about thyroid cancer from Mayo Clinic, you'll see a helpful list of questions to ask as you prepare for your appointment https://www.mayoclinic.org/diseases-conditions/thyroid-cancer/diagnosis-treatment/drc-20354167

These ones seem to be particularly relevant to your situation and I added a few of my own:
Will I need further treatment?
How can two different types of thyroid cancer be treated effectively?
What are my options?
What are the benefits and risks of each treatment option?
I have other health problems. How can I best manage them together?
Will I be able to work and do my usual activities during thyroid cancer treatment?
Should I seek a second opinion?
Should I see a doctor who specializes in thyroid diseases?
How quickly do I need to make a decision about thyroid cancer treatment? Can I take some time to consider my options?
What might happen if I decide to have regular checkups but not have cancer treatment?

I'll be thinking about you on Monday and will be interested to hear what you learn?