Did you choose active surveillance? Why was it a good choice?

Posted by arizobound @arizobound, Dec 27, 2024

Biopsy showed 3 + 4 MRI showed pirad 2 bone scan CAT scan no metastasism nothing found. psma pet scan radiologists said nothing found. but oncologist says he saw a very small spot. Only concern was half of the cores showed 3 + 4 out of 12 but he said it does not show the percentage of four?? Not sure I understand this part. Told me I could do active surveillance or cyber knife or brachytherapy. I think I am going to go with active surveillance my Medicare plan I can change next year to an advantage will cover more of the cost I have original Medicare now. Can I get some opinions on active surveillance being a good choice? Thank you in advance

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Some people do AS for 3+4. Yes it can get worse. It can also not change for a while, giving a break before treatment. Unlikely to not get worse over time.

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@clandeboye1

The 1st thing I suggest , Get a 2nd or 3rd opinion of your biopsy results Confirm you have Gleason 3 + 4 = 7
Active surveillance MAY bbe a good option with regular PSA ( EVERY 3 MONTHS ) FOR THE 1ST YEAR . Followed by a followup MRI to determine any growth of the liason .

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I have a question about active surveillance. I was given that option. But as jeffmarc has pointed out my 3+3 gleason 6 should be AS. But why would you wait on a 3+4. What are we waiting on. To get worse? Reduce the inevitable side effects? Would there be any likelihood its not going to get worse.

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The 1st thing I suggest , Get a 2nd or 3rd opinion of your biopsy results Confirm you have Gleason 3 + 4 = 7
Active surveillance MAY bbe a good option with regular PSA ( EVERY 3 MONTHS ) FOR THE 1ST YEAR . Followed by a followup MRI to determine any growth of the liason .

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@jc76

@arizobound
I see you asked a question for me.
My MRI does show a determination of prostate cancer.
My MRI done with a contrast showed suspicous areas and thus the urologist ordered biopsies. A MRI can give the radiologist and urologist a good image of prostate and suspicious areas. I asked my urologist after I go the suspicious areas diagnosis what the chance it was cancer and he said 70%. Mine biopsy Gleason Score came back 3+4=7 and was diagnosed with intermediate prostate cancer per pathologist.

PMSA is a very excellent test. It uses a type of radioactive injection and then scan to look for prostate cancer that has spread outside of prostate. Mine was negative. I also had a bone scan that was also negative.

I was asked if wanted Decipher test and advised would give a more specific determination of risk level. I asked for it and my diagnosis of intermediate risk was changed to low risk and changed my treatment recommendations were also changed. A very good test that uses the same biopsies already taken.
I hope I answered your questions!

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As recommended in Dr. Patrick Walsh's Book 5th Edition " Guide to Surviving Prostate Cancer "
Everyone should get a 2nd or 3rd opinion of their Biopsy Pathology results .
Take my case : Biopsy # 1 A 5 core Transperineal MRI Fusion Biopsy - ALL NEGATIVE . This was in clear conflict with my MRI PI- RADS 5 Score . Biopsy # 2 , at my request not my Urologist was a 16 core with 6 cores in the same target area as # 1 .
All 6 cores came back Gleason 3 +3 = 6 . A 2nd opinion 4 cores Gleason 6 , with 2 cores Gleason 3 + 4 = 7 . TAKE YOUR PICK .
I would have a 2nd or 3rd opinion of my biopsy slides . I have been on active surveilllance for a year , and currently reviewing my other options . My recent year-over- year MRI ( My 3rd )
showed no change . My recent Bone and CT Scans were negative - No metastasis detected . I plan on a PSMA PET SCAN -- My call .

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In reply to @arizobound "No" + (show)
@arizobound

Pirad 2

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@arizobound

Were they able to see the cancer in the MRI or the psma pet

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No

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@arizobound

Were they able to see the cancer in the MRI or the psma pet

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No

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@arizobound
I see you asked a question for me.
My MRI does show a determination of prostate cancer.
My MRI done with a contrast showed suspicous areas and thus the urologist ordered biopsies. A MRI can give the radiologist and urologist a good image of prostate and suspicious areas. I asked my urologist after I go the suspicious areas diagnosis what the chance it was cancer and he said 70%. Mine biopsy Gleason Score came back 3+4=7 and was diagnosed with intermediate prostate cancer per pathologist.

PMSA is a very excellent test. It uses a type of radioactive injection and then scan to look for prostate cancer that has spread outside of prostate. Mine was negative. I also had a bone scan that was also negative.

I was asked if wanted Decipher test and advised would give a more specific determination of risk level. I asked for it and my diagnosis of intermediate risk was changed to low risk and changed my treatment recommendations were also changed. A very good test that uses the same biopsies already taken.
I hope I answered your questions!

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@jc76

@arizobound @survivor5280
@arizobound, Good information from @survivor5280

A biopsy report cannot show that cancer is not present in other areas than the biopsies locations.

A Decipher test only test the tissues submitted that have already been taken and then does a genetic test to determine risk of those biopsies.

My pathlogy report 3+4=7 was rated as intermediate risk. My Decipher came back low risk.

I and many other you will see recommend Decipher as is more specific and better determination of biopsies than pathologist reading.

When I had my radiation treatment I asked the R/O if doing only the locations identified by pathology or all prostate. I was told all prostate. We want to make sure we get all the cancer cells and said dealing with cancer at celluar level and don't want to miss anything not seen by MRIs and biopsies.

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Were they able to see the cancer in the MRI or the psma pet

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My primary suggestion was to get a 2nd and 3rd opinion of your pathology results as assurance that your 1st Gleason Score is correct .
If you have read Dr. Patrick Walsh's book : " Guide to Surviving Prostate Cancer " , this is highly recommended as do other International Tier # 1 Urologists .
Good luck .

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