Did you choose active surveillance? Why was it a good choice?

good. Thank you. mine was a gleason 6. 1 out 12 samples with cancer. clear margins. PSA was 1.1 or normal. Post op confirmed gleason 6 with clear margins. I did 3 month PSA's for 3 years and last 2 years every 6 months. All less than < .01. I had a PMSA scan done at 2 years. Nothing active. I admit I am not familiar with all the treatments and options available. Or all the abbreviations. I have both incontinence and ED. That has been my goal while on this site to understand where to go next. But those are a new thread. 🙂

@tuckerp
I don't see where you offended anyone. Surely did not offend me.

I just saw a poster giving your Gleason score. We all type in numbers all the time with mistakes.

If I was going to make a post reference your Gleason score knowing if it was a total 7 or total 6 would really help me post my experience.

I think you are right on with panic mode. That is why many of us suggest doing second and third opinions. That gives you different voices and time to decide what is best for you. Doing research is good but does not replace the professional advice from different urologist and R/Os.

May I asked what was your Gleason score? Did you have your prostate removed?

My Gleason was 3+4=7. And was told intermediate risk and recommendation radiation with hormone treatments. R/O suggested Decipher (I had not idea at time what that was) and I concurred. It came back low risk and changed my treatment plan to no hormone just radiation.

A decision to do A/S or to treat with radiation and or surgery is a personal decision and should not be based on what others did. It is your body, your cancer, your available treatments, insurance, etc.

I was overwhelmed when I was diagnosed but had an excellent PCP, urologist, and two different R/Os guiding me.

I wish you good luck in your journey and really you did not offend anyone that I can see.

yes. sorry if I offended anyone. I had thought I would just ask why anyone would choose AS. jeffmarc and several others responded appropriately. I should have done more research before just jumping into panic mode and telling the urologist to just remove mine. Yes it is my wish we all outlive this whether cancer free or not. Again no disrespect meant to anyone.

I had a similar experience. I was told that the L4 on my spine probably had a metastasis on it. At that time I was going on Zytiga And for 2 1/2 years, it stopped that thing from growing at all. When I stopped Zytiga And moved on to Darolutamide I decided it was time to get the thing zapped. The radiation oncologist, of course agreed, And my oncologist also thought it was a good idea, though not essential. Had it zapped and since 2 months later I have gone on a 14 month undetectable streak.

Not Treating it at all wasn’t really a problem For me either. Over that time. I also changed my diet a lot.

3 + 3 an Obvious Error .
I BET YOU NEVER MAKE MISTAKES OR HIT THE WRONG KEY ON THE KEYBOARD - I know your nit picking types . Always looking to criticize . Never an original idea or opinion , but always ready to crititize others proposals and opinions .
@Clandeboye .. MA.Sc. P.E. P.Mgr. MBA .
p.s. I will be looking for " YOUR " future typing errors . The body of my thread is the same
whether it is GLEASON 3 + 3 = 6 or Gleason 3 + 4 = 7 . Other less critical members on
this forum will understand my posting , and overlook a senior moment by an 85 year old .
Get a life .

After my surgery, I learned that I had cancer in a lymph node. I chose active surveillance to avoid radiation and hormone shots.
I change my diet and adopted the Mediterranean Diet. Plus, I’ve had my PSA checked every three months. I’ve done this for three years now. I’m grateful my cancer has remained in remission. Good luck with active surveillance; there is hope!

@tuckerp
It was a reply from clandeboye1 to you about your Gleason score of 3+3=7 and some comments about active surveillance. Should have sent to him but thought he was reflecting your post. I never saw your original post. clandeboye1 post to you is a couple of post above this.

It is great to see you are cancer free. That is the goal for all of us not matter what treatment we have.

I dont think I mentioned 3+3 = 7. Mine was 3+3 6. biopsy showed 1 out 12 samples with cancer and my PSA 1.1. I went in for the urgency to pee. I have been on the site for some time now. Everyone has pretty much told me I was crazy for asking for NS RARP. AS would have been a much better choice. I had no other testing done. My question which has mostly been answered is why would you go on AS just to watch it get worse. But I think I have a pretty good answer to that. I would probably go on AS a second time since I still ended up incontinent and ED. 5 years now I appear to be cancer free. But you never know.

@clandeboye1 @tuckerp
How do you get a =7 from 3+3?

Active surveillance has to be a personal decision based on your basis for quality of life and what you want to go through for your life not others.

For me doing active surveillance and a diagnosis of prostate cancer was not an option. I wanted to treat the cancer and work to cure it not being mentally capable of not treating it. I was one of those told "you will not die of this prostate cancer" by my Mayo urologist. Just not for me personally. But many others do not want (at the time they make decision) RP, radiation, hormones, or other treatments, and for them active surviellance is their choice and it is a personal one to make.

We are all different. Many many treatments out there these days even new ones I am seeing since coming on MCC two years ago. I just read in a Mayo newsletter I get about a new treatment of attacking only the cancer cells only and not the normal cells by special program of stem cells or proteins that attach to cancer cells (don't have the article any more so hope I am close to what was stated). It is in clinical trial but sounds really promosing.

With Gleason 3 + 3 = 7 if you are uneasy about active surveillance . Discuss Monotherapy SBRT with your Radiation Oncologist .
Good luck .