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Did you choose active surveillance? Why was it a good choice?
Biopsy showed 3 + 4 MRI showed pirad 2 bone scan CAT scan no metastasism nothing found. psma pet scan radiologists said nothing found. but oncologist says he saw a very small spot. Only concern was half of the cores showed 3 + 4 out of 12 but he said it does not show the percentage of four?? Not sure I understand this part. Told me I could do active surveillance or cyber knife or brachytherapy. I think I am going to go with active surveillance my Medicare plan I can change next year to an advantage will cover more of the cost I have original Medicare now. Can I get some opinions on active surveillance being a good choice? Thank you in advance
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They based active survalence on my node staying very small and very slight rise in psa up and down.we did discuss radiation after the next scan next months. If need be most likely will..I went 2 years undetectable after radiation. After prostatectomy 1 yr radiation after 2 yrs .came back psma showed one small spot tiny in the node..i think the time I had radiation my scan showed nothing also.but they usually target the bed area..my now is at the pelvic area locally. They said I was in no danger doing active survalence at the time..live day by day keeping our head up staying positive..good luck
yes. maybe a hasty decision. My father passed from AS. He was also 87 with other issues. I just felt my mental state would not handle letting it get worse and then get to old to fix it. I am 72. I went with fact the Dr claimed surgical statistics were 85% of no issues. Well some has to make up the 15%. Lucky me. No regrets though. I have put cancer behind me , I hope.
I'm surprised the doctor told you you could do active surveillance I had a lot of grief asking for active surveillance and mine is localized and it is not showing up on any psma scan.
I'm on the active surveillance decided to do that recently and I have more cores positive than you 3+4. Nothing found on MRI or psma scan phone scan or CAT scan. Personally no way would I have surgery with Gleason score of 6. But if you have incontinence and Ed already I guess it doesn't really matter I'm trying to avoid it myself since I do not have either problem at the moment. good luck on whatever decision you make
I guess your PSA says you’ve got something growing. I think you’d be a candidate for salvage radiation or at least SBRT to the node with something showing in a scan, right?
My feeling on this - and please understand that I am a very pro-active/prevention minded person - is that if something is actually large enough to show in a scan, how much more “might” be there that’s not showing?
Not trying to cause you alarm….but you did ask….
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1 ReactionMy experience is similar. Gleason 3+4 in 1 of 12 lymph nodes. PSA level tested every three months for past three years. My PSA has been < 0.1. I’m grateful.
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1 ReactionBe careful with Medicare advantage plans. Many men on here complain about pre-approval issues and denials of procedures...not to mention limitations of where you can be treated. We have original medicare and a supplement and they cover everything once deductable is met.
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Hi im interested the same situation. 6 months ago psa went to .20 so did a psma scan and it's in one lymph node. Every 3 months blood work and another psma scan.psa went down slightly once now back up slightly to .36 doc recommend active servalance. Going for my 3rd scan Feb 21.not sure how to feel about this situation. It's in my pelvic area.anyone with this experience I'd appreciate feed back ty.
@tuckerp
Looks like you are doing everything to keep track. I think but not sure as not medical professional is that they don't give Gleason score below 6.
The only thing I could even further suggest is a second opinion to help you understand what to do next. Has your urologist explained and looked into your incontinence cause?
Trust me you are not alone. There are so many different treatment options out there. I have posted several times that I have been on MCC now for 2 years and have seen even in that time new and different treatments being offered and available.
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