Has anyone had the PSMA-PET scan? Was cancer found?
My prostate was removed 5 years ago. Two months ago, my PSA went from 0.00 to 0.09, and this month the PSA increased to 0.2. My urologist believes I am a candidate for the new PSMA-PET scan approved in 2020 that is more sensitive than previous scans in detecting small tumors. Has anyone had this scan? If so, what was your PSA at the time and was the cancer found?
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Hi Coleen,
Yes thats it.
Part 1 of 3 videos, which are all worth watching
Hi Chris,
Is this the video about PET scans with Mayo Clinic's Dr. Kwon that you're referring to?
I received a .2 psa, 8 years post RP. My psa went to .3 a few weeks later and had the PSMA scan. They think they found it and radiated the area. The Radiologist said it was non-conclusive, but I think they believe that was it in the lymph mode. Unfortunately not where I was hoping, but hopefully they got it early, or they didn't really find it, but treated the entire area anyhow. My concern is micro-metastasizing. I went the 37 radiation treatments and have about 1 month to go on Orgovyx, 6 month total.
I had the PSMA PET scan when my PSA was 19.8. I had several Gleason scores including some 3+4’s and 4+3’s. The scan did show cancer, but happily, all confined to the prostate. I’m on Lupron, dammit to the side effects, and am scheduled for surgery late August.
I don't think I answered in this thread yet...but for the sake of more information...
PSA 11 at discovery 13 just prior to RP, Gleason 4/3, 8 of 12 cores, RP in Sept of 2021.
Margins clean, right pelvic lymph removed & tested clean (most cancer on that side of the prostate), minimal invasion in blood vessels and nerve tissue.
PSA 3 mos later <.2
PSA 3 mos later 0.039
PSA 3 mos later 0.091 off to the radiation oncologist.
PSMA PET CT ordered by urologist at that time.
PSMA PET CT showed nothing, which I guess is a good thing? Started 40 IMRT sessions (around #10 now) and orgovyx (Lupron substitute). It seems to have the same side effects they just don't seem as extreme as I see for Lupron, or, I'm just lucky enough to tolerate it better, who knows?
Your story is almost identical to mine. Although I was not able to get the PSMA scan. I agree with your comment on Lupron. The side effects are horrible. I would recommend you stay the course however. Lupron is just extending your life in hopes that some miracle drug is released. Relish in the fact that your are still alive
You have left out a lot of info so difficult to answer your question. Was the cancer that was found treated with radiation? Was it in an area that could receive radiation? Before my reoccurrence cancer was found I received intermittent Lupron giving my body time to recover some and feel better. I too HATE LUPRON. It is nasty stuff and I have made a decision to quit it for the time being.
Bandit,
I had surgery a year and a half ago(robotic in March of 2021) a psma scan detected cancer in 1 lymph node. I started lupron a year ago July. I had 37 radation treatments in Oct/Nov fall of 2022 my psma scan indicated the lymph node. Ive been at 0.02 psa since January. I understand that is lowest possible reading. My gleason score(interesting word score!) is 9.
Chris here from the UK. Ive had one so far and due another one following my recent 20 shots of radiotherapy to prostate and 2 lymph nodes in pelvis. Theres a series of 3 videos on Y. tube by Dr Eugene Kwon from Mayo clinic.
The first one covers PET imagining.
Worth watching all 3 if you haven't seen them.
From memory he says for detection of small PC tumours, from their experience at Mayo, PET scans will detect these 6 years before picked up by other scans. So he is a big advocate for using PET particularly for re- occurance and chasing down metastatic PC
Great question. I’m anxious to hear what others have experienced.