psa continues to climb 4.0 in May now 7.5

Don’t you have a doctor working with you to help make decisions about what your treatment should be?

My PSA started rising 2 1/2 years after salvage radiation, Immediately went on Lupron and my PSA went to undetectable. When it failed, I went on Zytiga And it kept my PSA down for 2 1/2 years.

You are now castrate resistant. Median survival is two years, As many above as below. I became castrate resistant six years ago, So you can beat the two years, but they let you get way out of whack as far as PSA is concerned, You have been untreated To a state of almost malpractice.

You should’ve been on an ARSI as soon as your PSA went above around .5. That means zytiga Or one of the lutamides. This is the standard of care set by the NCCN.

The easiest drug that would keep your PSA down is Darolutamide. It doesn’t pass the blood brain barrier and causes very few side effects for most people. I’ve been on at almost 2 years and it’s working really well for me and keeps my PSA undetectable After 15 years and four reoccurrences. You probably would have no problem playing golf with it.

You need to get a PSMA pet test AS SOON AS POSSIBLE.. That will show whether or not you have visible metastasis Which is very likely with your PSA. You could get those zapped with SBRT radiation but you may have so many that it’s not possible.

I can’t understand how you can be going to a doctor and be treated so incompetently. You really need to find yourself a center of excellence and get yourself treatment that matches your aggressive cancer. If you tell us what city/area you live in, we can probably tell you where you can find a really good group of doctors.

You really will not have much time if you don’t get treatment soon. Prostate cancer is very painful and you are setting yourself up for a lot of pain.

This is not something that can wait. You need to be PROACTIVE IMMEDIATELY and get something done to get yourself better treatment.

@jeffmarc

Thanks for the insights Jeff appreciated