Interested in hearing people's experiences with PRRT
Sorry if this has been discussed before, but I was interested in hearing peoples experience with PRRT (Peptide Receptor Radionuclide Therapy)? I live in Georgia and have an appointment at Mayo in Jacksonville next month and I was wondering if this was something they would discuss...
Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
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@sophiarthappse thanks kurt,
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2 Reactions@kurtjazzy01
Other than 3 days later I washed my bedding and all my clothes I wore
I really didn’t worry to much about anything else
Good luck
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2 ReactionsWas wondering if anyone new if you have have to do something with bedding pillows etc thanks kurt
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2 ReactionsI started the prrt treatment in 1-04-26 had second treatment 3-07-26 did not any problems.
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1 ReactionWhat can you do to get your platelets up mine dropped below 100 and i need them up before my next trip to the hospital. Thanks kurt
After prrt what do you do with your pillows and blankets due to the radiation??? Thanks kurt
@lu7 he only has occasional back pain lately but it goes away. Thanks
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1 ReactionMy very best as well. My doctor always reminds me he has lots of tools in his toolbox. It helps me to know that. Does your son have lots of symptoms? I'm lucky. Mostly fatigue. I hope he isn't suffering all the time.
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3 Reactions@lu7 thanks for your prompt reply. Hope your treatment will continue to work for you. The petscan is scheduled in early November and we hope my son can benefit from the first 2 treatments of PRRT. All the best to all of us.
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2 ReactionsI'm so sorry your son saw that platelet drop! I started with really high platelets, so the did drop a little, but still well within normal range. I had no major side effects. A little fatigue and GI issues, but really could be because of the cancer more than the treatment. Will they restart if his numbers come up? Hoping for the best for him. There are other new treatments on the horizon according to my oncologist! Maybe there's a great option out there!
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