PRRT Question

Posted by fraaseo @fraaseo, Aug 14 1:16pm

For those of you that have already had PRRT, was it done through a PICC line? Was it inserted the day before procedure or day of?
Thanks:)

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Teresa, Volunteer Mentor | @hopeful33250 | Sep 22 2:28pm

For those of you interested in learning more about PRRT, you might find this webinar interesting. Here are the details as well as the link.

The field of PRRT (Peptide Receptor Radionuclide Therapy) is evolving rapidly, and patients are hearing more about new developments like alpha therapies, the recent NETTER-2 and COMPETE trial results, and other advances. Join medical oncologist Dr. Udhayvir Singh Grewal from the Winship Cancer Institute of Emory University as he breaks down what these changes mean for people living with neuroendocrine cancer. This webinar will help patients and caregivers make sense of emerging research and therapies—and what they may mean for the future of NET treatment. If you are not available to view it "Live" it will be available on the YouTuber channel.

fraaseo | @fraaseo | Sep 1 10:43pm

In reply to @tomrennie "How have you been feeling?" + (show)

Great!

Turkey, Volunteer Mentor | @tomrennie | Sep 1 5:26pm

In reply to @fraaseo "Thank you! You are absolutely correct. You have to remain positive & forge ahead! I’ve never..." + (show)

How have you been feeling?

fraaseo | @fraaseo | Aug 20 7:26pm

Thank you! You are absolutely correct. You have to remain positive & forge ahead! I’ve never let this disease hold me back, I continue to do all activities I’ve always enjoyed albeit a little slower😊. I figure the worst is behind me so anything that pops later I’ll be handle. My biggest wish is that everyone diagnosed with NETS is one day stable & able to enjoy life!

Turkey, Volunteer Mentor | @tomrennie | Aug 20 12:21pm

In reply to @fraaseo "PRRT Update: Today I got the absolute best news😁 Had my PRRT follow-up appt with the..." + (show)

That is so awesome. Yaaaay for you. Having a good doc team really helps. But most importantly, you put in the work. Through the surgeries, the injections, the discomfort, the pain, the homework, the decision making, and the mental and emotional trauma that comes with all of that, you persevered. That takes unbelievable courage. You should be proud of yourself. So many patients want the pot of gold at the end of the rainbow without doing what they can to survive the storm. I know because I recently lost an old friend who was unwilling to do so. Enjoy your pot of gold. You earned it.

fraaseo | @fraaseo | Aug 19 11:47pm

In reply to @tomrennie "Good luck today." + (show)

Thank you!

fraaseo | @fraaseo | Aug 19 7:19pm

PRRT Update:
Today I got the absolute best news😁 Had my PRRT follow-up appt with the Radiologists. After reviewing both of my surgery path reports & all scans, all Drs agree the one small spot in lower colon/vaginal cuff is too small to treat right now. But if/when it grows I’ve been screened & can go immediately to PRRT treatment. So happy the NETS specialists & radiologists all agree! I will continue to have scans every 3-6 months (MRI, CT, PET) blood work & continue monthly Octreotide injections. Best news I’ve had since being diagnosed in 2022! Feeling so blessed!