Protein losing enteropathy - wanting information, personal experiences

Has anyone been diagnosed with protein losing enteropathy (PLE) caused by inflammation in the small bowel lining. I am interested in learning more about this--what are the symptoms, how it is diagnosed and treated, dealing with increased waist circumference (ascites?) and chest pressure. What lab results are affected with PLE (low serum albumin and total protein, low lymphocytes, low serum LDH?). I have not been diagnosed with PLE but have posted elsewhere under sclerosing mesenteritis and bowel blockages. Biopsy and/or surgery is not possible. I am currently on a trial of 40 mg prednisone and 20 g tamoxifen daily. I have 2 more months to go before the prednisone taper will begin. I take many different supplements, vitamins, calcium, protein, trace elements, etc. Any relevant information on would be appreciated.