Prostate cancer radiation failed

Posted by jmonte @jmonte, Jul 30 2:48pm

Radiation cancer failed. No plans right now for any more treatments. Did not take hormone treatment and not looking for any oncology treatments. Going to die of something, why not this.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

I'm sorry your treatment didn't work. As far as other treatment options, only you can decide. As for "why not this", I'm hoping for me it's something else that is not so painful. I wish you the best on your journey. Best to all.

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Did you have biochemical failure or clinical failure? They're both different. You could still live a long time with biochemical failure. From what I've read online, the time from biochemical recurrence to metastasis is ~8 years. A lot depends on your PSA doubling time.

I'm not going to be hypocritical and try to talk you into additional treatments. My own treatment with ADT has been very rough, just trying to point out that you may have longer than you think.

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jmonte, how long ago was your radiation. I like your attitude, but like scottbeammeup I'd like to know how it failed. Do you have metastasis. If that's all you have to say, thanks for the post. I wish I had your courage.
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@gently

jmonte, how long ago was your radiation. I like your attitude, but like scottbeammeup I'd like to know how it failed. Do you have metastasis. If that's all you have to say, thanks for the post. I wish I had your courage.
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Jump to this post

Orgovyx/arbiterone is tolerable for me and since it is pill form you can discontinue if intolerable. My psa got to undetectable in 4 weeks. I don t know how jmonte defines failed but adt is a way to buy decent quality of life while you contemplate your treatment strategy.. Don t despair

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Not sure what opinions outside your current institution you have had but it would not hurt to use Telehealth at a center of excellence to talk about other options and treatment decisions. It may be helpful whether you get treatment or not.

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That is of course a personal call. There are many treatment options available.

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I am genuinely sorry for what you’re going through. Many of us on this form have been through moments of great despair so to a large extent
we understand how you feel.

Giving up is always an option, but it isn’t the only option. Talk to us. Respectfully, if you give us more information, maybe one of us can sure information that might help you on your journey for whatever that means for your situation.

When were you first diagnosed?
What was your Gleason score?
What stage were you initially and what stage are you now?
What was your initial treatment; surgery or radiation?
What was your initial PSA?
What was your lowest PSA after your initial treatment?
Have you had a PET – PSMA scan and if so, what does that show?

I’m on my second go around with prostate cancer. Stage three with lymph node involvement this time. I was given a stage 4 diagnosis in December with a little hope for a cure. I pivoted and found a better healthcare provider with a better strategy. Got re-staged as stage three and with the treatment plan I am on. I may die with the disease, but I probably shouldn’t die from it. I’ll take that as a win.

Never give up. We are here for you. Talk to us.

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DO NOT GIVE UP!!! My third bout with radiation failed with a 2.3cm tumer on my ischium went on lupron for the second time tumer almost gone 3months later psa0.05, having my right hip replaced this month this will be my second hip replacement!! Feel pretty good except for the hot flashes but you learn to live with it.looking forward to my new hip, hang in there give it a shot 3months no pun intended,

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Thank you for replying and wish you well with your hip.

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I am very sorry to hear that. As I've posted before, you're CEO of your care team, so you get to make the final decisions. When people are replying here, it's not to disrespect your decision, but just to make sure you have all the available information.

Even advanced (stage 4b oligometastatic) prostate cancer like mine is manageable now for many years, if not indefinitely, but it's not an easy road. If you're already elderly and or have a lot of other health issues, it makes sense that you might not want to put yourself through it. But I'll just add my personal experience that after two rounds of radiation and almost 3 years on ADT and ARSI (Erleada), I'm living a happy, almost-normal life, and just got back from a 2-week trip to Europe last month. I was young when I was first diagnosed (56), so that helped, but treatment might not be as bad as you fear right now.

That said, best wishes whatever road you choose, and keep us all informed. There's a lot of caring in this forum.

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