Prostate Cancer- getting help-questions answered

I was on abirateron for two years. Now on apaulutimein (?) (Ebearlea) for no apparent reason. I could not take the recommended dose as it made. Me very nauseous and so I split the medication two pills in the morning and two pills at night
I have become convinced that my doctors are treating me, and not trying to cure me . So I have started my own research into cancer cures and have added more vitamins, even more stringent, diet changes, prayer, etc. My numbers have been on a downward trend since I started my cancer cure. Thanking I’m not putting this out there to criticize, but to bring awareness. I do think these huge cancer center buildings have to pay for themselves and the way they do it is treating you not curing you.

Honestly your dr or drs need to be more aggressive in their treatment! I sought multiple opinions at 11 PSA
I first cut out sugar including very little fruit ( so I could eliminate natural sugars as well)
I restricted carbs a lot, but I did not eliminate them. I increased salads with olive oil, vinaigrette, type dressings. No sodas, no, french fries, almost no beef, or processed red meat of any kind, increased consumption of fish. Then I saw a naturopathic person and added magnesium glycinate (specifically) a super B complex, double the daily dose of vitamin C, with rose hips. Multiple vitamins, saw palmetto, iron, D3, melatonin, and two I don’t remember how to spell. I take the majority in the morning with a small breakfast. The chemo pills I take have the side effects of increasing belly fat in men or women, it’s just a side effect and so you have to eat less and exercise more. Walking is good dumbbells are good. I am still researching minerals to take and I am going to add a broccoli pill or a plankton pill I am going to continue this research on cures. No sugar seems to be the most beneficial first step

Would you mind sharing what vitamins you are taking?
I was on Bilutamide for 2 months, PSA 72 down to 28 then switched to Zytiga
and my blood pressure increased and PSA up to 37

I was on abirateron for two years. Now on apaulutimein (?) (Ebearlea) for no apparent reason. I could not take the recommended dose as it made. Me very nauseous and so I split the medication two pills in the morning and two pills at night
I have become convinced that my doctors are treating me, and not trying to cure me . So I have started my own research into cancer cures and have added more vitamins, even more stringent, diet changes, prayer, etc. My numbers have been on a downward trend since I started my cancer cure. Thanking I’m not putting this out there to criticize, but to bring awareness. I do think these huge cancer center buildings have to pay for themselves and the way they do it is treating you not curing you.

Hello,
I was on Zytiga, and noticed a slight breathing problem which over a short period of time became more serious. When I couldn’t walk one block without feeling a heaviness in my chest I called my nurse and told her I would no longer be taking Zytiga. My Doctor told me that when her patients complain about this problem she recommends another medication. I don’t understand why we all can’t get out in front of the wrecking ball, but that seems to be the way it is. I have been using Relugolix for 11 months with no breathing issues.

Colleen, it says there is a prostate cancer support group meeting right now but there is no Zoom link posted.

DD, I don't see a Zoom support group specifically for prostate cancer listed in the Events. Many inperson support groups at Mayo moved to Zoom over the past couple of years. @muradangie might know more.

Colleen, I was fortunate enough to be at Mayo Rochester for radiation therapy last week when the prostate cancer support group met in person for the first time since COVID. Interesting, they also did it on Zoom but the Zoom didn't work. IT (information technology) was not involved but I think they could have easily fixed it.

DD, I don't see a Zoom support group specifically for prostate cancer listed in the Events. Many inperson support groups at Mayo moved to Zoom over the past couple of years. @muradangie might know more.

My husband’s oncologist prescribed Abirateron (Zytiga) treatment assuring us there was no risk of seizure side effects. Three to four weeks into treatment, husband had a gran mail seizure and was transported to ER. Thankful he was home and not driving, etc. Three of his doctors (oncologist, pcp, and now neurologist) still say this is not a side effect. They don’t like it when we do our own research, My husband has been seizure free for over forty years. He will be having an MRI and EEG just to be sure something else isn’t going on, but it seems the Abiraterone was the culprit. Any thoughts? Thank you.