Problem with Chronic constipation

Posted by bb03 @bb03, Feb 1, 2021

I have a history of hypothyroidism, severe endometriosis/treatment was a hysterectomy 17 years ago.I also have a hx of IBS. My thyroid hormone levels are stable. I eat like a rabbit(I poop like one too, LOL!!!!!!). I eat a large amount of fiber and drink almost every hour(nonalcholic).ONly prescription drugs I take are armour thyroid and my estrogen/prosterone troche. I make a coconut bread and I add psyllium husks,flax seed and chia seed to it. I eat it practically every am. I also eat a spinach salad for lunch daily with nuts and yogurt and eat a lean meat and veggie and more coconut bread at night. I do one cheat meal with a cheat dessert once per week. I am relatively active for my age of 60. I've been to a gastroenterologist and we have tried Linzess which didn't help at all. I take miralax, and a Super Cleanse tab one per day which has herbs to soften the stool and to stimulate the bowel and It barely works. I am at a loss. I have not tried Montegrity yet. I don't know if it will be helpful and the side effects scare me. I had a CT of my abdomen and it was ok, no obstructions. The gastroenterologist that I go to practically accused me of abusing laxatives. I would be impacted if I didnt use the miralax and the Super Cleanse. Diet/water and activity do not help. I had diarrhea from my late teens to the age of 36 when my intestines out of the blue just shut down completely. I was diagnosed with hypothyroidism, I was put on Synthroid but the constipation didn't go away. So if there is any gastroenterologist out there that can help me, please let me know.I feel defeated and worry about my health.

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Profile picture for razelrosey @razelrosey

For the past year or so my rib cage area is like really painful the other day I had a small backache that radiated around to the front and I went to ER and they discovered which I have had problems before that I had backed up constipation so I have been taking MiraLAX Fiber supplement magnesium citrate stool softener, and I still have not evacuated like I should have a gastrologist a new one in a month. I hope I don’t explode before the month is over. Any suggestions out there?

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@shellyw from Shaylyn4
I sent Creon Dave a long message and he sent one back to me. He and I have EPI and on Creon to help. Problem for people with other GI issues being on that med. can give you other GI concerns. I went from atonic colon to gastroparesis to EPI. I’m hearing from of this group is that trying to get a good GI doc or even a caring ER doc can sometimes be difficult. Our symptoms resemble so other GI disorders. I was told that I probably had had IBS and who knows I might have that also. There is no actual test to diagnose it like EPI and Gastroparesis or even my atonic bowel.
Hope I made all this less confusing for you.

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Profile picture for razelrosey @razelrosey

For the past year or so my rib cage area is like really painful the other day I had a small backache that radiated around to the front and I went to ER and they discovered which I have had problems before that I had backed up constipation so I have been taking MiraLAX Fiber supplement magnesium citrate stool softener, and I still have not evacuated like I should have a gastrologist a new one in a month. I hope I don’t explode before the month is over. Any suggestions out there?

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Wow! You’ve had some serious diseases! I have some thoughts on why but can you tell me where & how you had all those very interesting diseases and can still talk about it! If you’d rather not I can understand.

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Profile picture for shaylyn4 @shaylyn4

Hi @creondave I was diagnosed with EPI Nov.2023 because I had horrible diarrhea and it looked greasy. The tests were done & I was put on Creon. I also gastroparesis ( stomach empties way too slowly - special diet needed )I was also diagnosed with atonic bowel back in my early thirties. Many people who have it end up having repeat surgery on the blocked segment of the bowel. No way!, I have been in the hospital a few times for, it but still have all of my intestines.
After Iwas on =Creon for less than a week I became quite constpated and it took a lot to have a good poop. Dr. stopped the med. People who have history of bowel obstruction, thickening of the colon or with kidney disease shouldn’t take it but.he was monitoring me well. Then in Jan. the wicked diarrhea started again and I lost a lot of weight. Back on Creon but lower dose. No more greasy poop,gained wgt. I didn’t want and I need to keep my Miralax somewhat more than I was taking. If I feel sluggish I’m to take 2 Dulcolax ( which I hate because it makes me very crampy).
I didn’t mention - I have never drank anything stronger than a coffee and I have never smoked. My parents died from cancer and and I come from a long line of, alcoholics.
I was just to try more foods that I couldn’t eat because of my gastroparesis a nd then I get EPI. I was told that my pancreas was damaged over my life ( 78 ). If you google causes you will see that herpes infections ( cold sores ), mono, elevated Epstein Barr and many childhood diseases can cause EPI. I grew up having cold sores and then warts.
I hope I helped you.
Shaylyn4

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Wow, I didn't know that other diseases from so long ago could be attributed to EPI. I have had dengue fever, malaria, and typhoid, as well as a plethora of other things living / working in places with poor sanitation. That is food for thought, thank you for that.

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Profile picture for creondave @creondave

I'm curious, as I am on Creon, and the pancreas expert told me that my pancreas looked fine (I had a ton of various exams on it). However, it simply isn't functioning, as if it stopped making enzymes, and there is no visual damage from anything such as drinking wine . I did drink several glasses a day in the Covid lock down, but am a non-smoker, and am not a heavy drinker relate to my French and Italian co-workers, an I stopped drinking immediately when told to do so. I also do not smoke. Perhaps the doctor didn't mention the visual quality of the pancreas...but he told me he had seen 70 year old alcoholics that had a pancreas that functioned better than mine, and that their pancreas had significant visual damage from drinking. It's so odd to hear that their pancreas works better than mine.

As far as the Creon goes, it does help with the diarrhea, but often results in constipation and the issues associated with that.

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Hi @creondave I was diagnosed with EPI Nov.2023 because I had horrible diarrhea and it looked greasy. The tests were done & I was put on Creon. I also gastroparesis ( stomach empties way too slowly - special diet needed )I was also diagnosed with atonic bowel back in my early thirties. Many people who have it end up having repeat surgery on the blocked segment of the bowel. No way!, I have been in the hospital a few times for, it but still have all of my intestines.
After Iwas on =Creon for less than a week I became quite constpated and it took a lot to have a good poop. Dr. stopped the med. People who have history of bowel obstruction, thickening of the colon or with kidney disease shouldn’t take it but.he was monitoring me well. Then in Jan. the wicked diarrhea started again and I lost a lot of weight. Back on Creon but lower dose. No more greasy poop,gained wgt. I didn’t want and I need to keep my Miralax somewhat more than I was taking. If I feel sluggish I’m to take 2 Dulcolax ( which I hate because it makes me very crampy).
I didn’t mention - I have never drank anything stronger than a coffee and I have never smoked. My parents died from cancer and and I come from a long line of, alcoholics.
I was just to try more foods that I couldn’t eat because of my gastroparesis a nd then I get EPI. I was told that my pancreas was damaged over my life ( 78 ). If you google causes you will see that herpes infections ( cold sores ), mono, elevated Epstein Barr and many childhood diseases can cause EPI. I grew up having cold sores and then warts.
I hope I helped you.
Shaylyn4

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Profile picture for razelrosey @razelrosey

For the past year or so my rib cage area is like really painful the other day I had a small backache that radiated around to the front and I went to ER and they discovered which I have had problems before that I had backed up constipation so I have been taking MiraLAX Fiber supplement magnesium citrate stool softener, and I still have not evacuated like I should have a gastrologist a new one in a month. I hope I don’t explode before the month is over. Any suggestions out there?

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Hi @johnbishop
Best of luck. May patience, allowing stress to dissolve and natural methods bring relief and better health to you. It took me a number of months to consider myself regular. What a relief after so many years. Like my Naturopath says it is likely something you have to continue for best results.
@farmersmith

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Profile picture for razelrosey @razelrosey

For the past year or so my rib cage area is like really painful the other day I had a small backache that radiated around to the front and I went to ER and they discovered which I have had problems before that I had backed up constipation so I have been taking MiraLAX Fiber supplement magnesium citrate stool softener, and I still have not evacuated like I should have a gastrologist a new one in a month. I hope I don’t explode before the month is over. Any suggestions out there?

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Hi again merrilypierson,
Carob
has twice the amount of calcium compared to cocoa
is free of a migraine-triggering compound
is caffeine- and fat-free
Cocoa
contains oxalic acid, which interferes with calcium absorption
can trigger migraines in some people
is high in sodium and fat

I use a tablespoon of carob in the morning along with soaked ground seeds from the night before - I don't worry about making a "dish" or how I serve it. There is room to make a unique recipe. I just want to stimulate action when I drink the warm water.

Hugs and thanks, @ farmersmith Look forward to your progress and solutions!

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Profile picture for razelrosey @razelrosey

For the past year or so my rib cage area is like really painful the other day I had a small backache that radiated around to the front and I went to ER and they discovered which I have had problems before that I had backed up constipation so I have been taking MiraLAX Fiber supplement magnesium citrate stool softener, and I still have not evacuated like I should have a gastrologist a new one in a month. I hope I don’t explode before the month is over. Any suggestions out there?

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Great merrilypierson,
Best of luck. Just wanted to add, I have been enjoying carob in moderation because it is a carb with natural sweetness but it is excellent for regularity.
@farmersmith

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Profile picture for farmersmith @farmersmith

Hi @razelrosey,
Disclaimer: This is only my experience going natural. I have used organic, integrative, functional, holistic Naturopathic doctor's advice along with my MD’s since the early 1980's. There is science in alternatives too. Because I work closely with my ND, he told me to study the Migrating Motor Complex and Osmotic Gradient and bet that I would find what worked for me. I had a longer thank normal pipe that needed consistent moisture….
I have tried laxatives and they are not consistent and have side effects like bloating, etc. And all say for occasional use. They disrupt the system if take continuously. I liked a response from a co-redundant colon person: “It’s physical” so regular constipation suggestions may not work.
Last Dec the doc had me do non sedated colonoscopy. He could get through my colon as I watched on TV. I had had a baby years ago (natural and could stand pain) so figured I could stand it – it was no big deal. Most people in world don't get put out. Very interesting and it helped allow the scope to get through because I relaxed. No wonder I had been constipation on and off starting in my teens. I’m now in my early 70’s.
OptiMag and K2+ Potassium are great supps. I often take them when I go to bed and once if I get up to pee. Be sure to include prunes, winter squash, sweet potatoes, rhubarb etc in your diet. I like to grind 2T chia, T of sesame seeds and 2 T flax seeds, then soak in prune juice overnight. Take half in the morning and half at night. Throw sugar out, processed and refined foods and drink lot of water starting with a quart of hot water in the morning - Boy Scouts. Coffee and Smooth Move are my back ups. I don't like coffee and never have drunk it much but it usually works for me in a pinch. Thankfully I only need coffee a few times a month.
Helpful research of biological processes that take place in our gut:
- Migrating Motor complex which is the electroactivity in the GI tract during meals and fasting
- Osmotic gradient. If too much water is pulled into the colon, diarrhea results. If not enough water is pulled into the colon constipation results. Balance of minerals is important. Magnesium, potassium and sodium brings water into the colon. I have found balancing these help prevent constipated. I have to watch my calcium intake because it tends to encourage constipation. Calcium carbonate seems to be the most constipating. I depend on blood work from time to time to make sure my minerals are balanced.
Good luck, @farmersmith

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Thank you so much for this detailed and helpful information. Today is the kind of day that I especially needed something like this. I'm off to the store to buy many of the supplies you mentioned, I'll let you know the results. Thanks again.

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Profile picture for shaylyn4 @shaylyn4

Hi Shelly Nice to hear from you. Because of my gastroparesis I can’t eat all the fresh fruits & vegetables that I should eat since it can cause wicked diarrhea and or constipation. I had a heart attack in 2009, have an aortic arch aneurysm of 4 c.m. CAD high blood pressure ( controlled by meds. & high cholesterol ( controlled by meds & by diet ( ha ha!) I have a specialist for problems from my head to my toes. No one mentions age but I’m almost 79. I retired at 71 & have been sick since then.
My EPI - About 8 mos. I started with liquid diarrhea & was losing weight. Could it be Miralax - lower the dose - continued poop looked greasy- told my GI ( whom I love ). He did the testing and I was diagnosed with severe EPI & put on Creon ( which is 3 pancreatic enzymes. My pancreas doesn’t produce them, especially with fats & protein. If unchecked it can cause malnutrition. It’s quite expensive ( no generic )- $80/ 15 days. He gave me the samples he had. The med comes in like 5 different doses and the higher the dose the more expensive!! Problem is that it screws with my gastroparesis.
I couldn’t figure out why my pancreas is damaged since I never drank any type of wine, beer or alcohol. Both of our parents & grandparents were alcoholics. I googled pancreas damage and found it can be caused by many childhood diseases, meds. & Epstein Barr ( can cause mono- which I never had). Every winter I would have s&s of mono - swollen lymph nodes & fever + no mono but very high Epstein Barr.
The older We get the more things we learn that we wished we had known many years ago
Hope I didn’t bore you with all this info. Wei get back to you on the other thing which you asked me about.
Shaylyn4

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Shaylyn4,
Another member, Creondave brought up pancreas, GI issues and taking Creon. I am going to start a new discussion about it, cuz I'm getting confused with this longggggg thread.

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Profile picture for creondave @creondave

I'm curious, as I am on Creon, and the pancreas expert told me that my pancreas looked fine (I had a ton of various exams on it). However, it simply isn't functioning, as if it stopped making enzymes, and there is no visual damage from anything such as drinking wine . I did drink several glasses a day in the Covid lock down, but am a non-smoker, and am not a heavy drinker relate to my French and Italian co-workers, an I stopped drinking immediately when told to do so. I also do not smoke. Perhaps the doctor didn't mention the visual quality of the pancreas...but he told me he had seen 70 year old alcoholics that had a pancreas that functioned better than mine, and that their pancreas had significant visual damage from drinking. It's so odd to hear that their pancreas works better than mine.

As far as the Creon goes, it does help with the diarrhea, but often results in constipation and the issues associated with that.

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Creondave,
I am going to start a new post re: pancreas, and GI tract issues. I am getting too confused with these longgggg threads.
Shelley

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