Post-viral neuropathy

Posted by bernst92 @bernst92, Dec 3 4:56pm

Over the past three years, I’ve learned that even a simple viral infection (like a common cold) can trigger a condition for me called post‑viral neuropathy/nerve hypersensitivity. When this happens, my nervous system becomes inflamed and over‑reactive, which causes burning or tingling sensations on my skin and a lot of pain. It’s related to peripheral nerve irritation and central sensitization (basically, the nerves and brain get stuck in “high‑alert” mode for a while). For me, this is not just uncomfortable—it can becomes a constant pain for months. Last year it took about nine months before I felt like I had entered remission.

Has anyone out there experienced something similar? Does anyone have any tips on how to treat this, as well as how to prevent it? Today marks the first day that I am now "burning" again following my most recent illness. I am extremely discouraged that I will be entering this cycle all over again.

Thank you in advance.
With love,
Brandy

Interested in more discussions like this? Go to the Neuropathy Support Group.

Brandy, I am in contact with another commenter who has severe neuropathy. He tried a Boston Scientific spinal cord stimulator. The trial was ok, but the permanent implant has not helped at all. He just mentioned that whenever he has a flu and develops a fever, most of his symptoms either diminish or disappear. Just the opposite of your situation. My research revealed that a fever can cause the blood vessels to expand, allowing blood to flow more efficiently. This can carry more oxygen to the nerve cells. Both instances(yours and his) are quite interesting. I hope you can find some help soon.

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Profile picture for heisenberg34 @heisenberg34

Brandy, I am in contact with another commenter who has severe neuropathy. He tried a Boston Scientific spinal cord stimulator. The trial was ok, but the permanent implant has not helped at all. He just mentioned that whenever he has a flu and develops a fever, most of his symptoms either diminish or disappear. Just the opposite of your situation. My research revealed that a fever can cause the blood vessels to expand, allowing blood to flow more efficiently. This can carry more oxygen to the nerve cells. Both instances(yours and his) are quite interesting. I hope you can find some help soon.

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@heisenberg34 thank you so much for your response and insight. I appreciate it.

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Brandy,

I have had this exact thing happen twice now and it takes many months to resolve. In my case it involves the trigeminal nerve and involves sinus, tooth, ear, jaw, and face pain. I put a wet washcloth in a ziplock bag ,vented, and heat in the microwave. I wrap it in a towel and place it on the affected area for 10-15 minutes several times a day. This is very helpful for me and really reduces the pain. I also use advil and naproxen for pain. My biggest challenge was getting a diagnosis. It took years and in the meantime I had two totally unnecessary root canals and lots of doctor’s visits.

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Thank you for your response. That’s very helpful and I appreciate you taking the time. It is incredibly frustrating to go from doctor to doctor undiagnosed. I empathize with you fully. Would you be able to share with me how you got a diagnosis and what doctor you saw for that? I’ve seen just about every specialist in the book, so I’m wondering who I could see to help with a diagnosis. Thanks, again.

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I diagnosed myself over the past year using AI. It was a breakthrough moment for me because I finally had answers. I had one dentist with my this episode high pressuring me to buy a $5000. Mouth guard without even looking in my mouth or listening to my symptoms. I put a 25 year history on AI and over many conversations came up with post viral neuropathy and hypersensitive nerve reaction diagnosis. I am at the tail end of this episode now. AI walked me through stress relief, symptom relief, and helping me understand the issue which gave me confidence and reassurance. AI gave me a script to take to my next doctor appointment to explain what I deal with and even a list of effective medication. AI also said a neurologist was the best specialty to help with this. There are better things than Advil to treat nerve pain but by that time I was over the worst. The first time I had this I was desperate for help and ended up with anxiety and severe depression. This time, with more information and effective coping strategies I was able to keep the anxiety and depression away. I wish you the best. I’m here if you have other questions. Please share if you have found things that help.

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