Post sigmoidectomy, disabled daughter issues

Posted by minajo @minajo, Feb 16 10:28am

Hello . some of you know my disabled daughter, nonverbal autism, seizures had many g. i. issues leading to a sigmoidectomy with colorectal anastomosis last October, then a ileus December, that resolved but total 49 days in hospital 2024 and mom there every day.. so now at 3 1/2 mo. mark she's still going 4 days no bm after daily Miralax, Colace 2x daily then Lactulose and enema if those 3 don't work..
Also sometimes refusing to go to toilet and also some incontinence..
We are trying to prevent another ER trip as its a 911 call with Versed because of resistance, aggression..
Then many more drugs for IVS, ct scans etc then a long 12 hr wait for room and she's more agitated by then .
Her last scan, xray showed complete anastomosis, her labs good..
Diet is steamed veggies, soft foods, enough fiber, hydration, walking
So very hard to know whats wrong with her lack of communication, and her normal life of living in wonderful care home with 2:1 staff ratio could change as its a behavior, nor medical facility if her needs increase.
Also having some issues with Lamictal for her epilepsy
Any suggestions, ? Is it just healing of nerves in intestines? Can affect bladder function,?
Thank you to all who follow my special daughter, been a very long year
Sincerely Lisa's mom

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