Post SBRT - 5 years ago - 0.2 PSA - no orgasm last 8 months...

Posted by bruinsmapaul @bruinsmapaul, Oct 7 3:35pm

My name is Paul and I’m 67 years old. I finally decided to check out the Mayo Clinic blogs and I read your story... I thought I would contribute as I went through the madness years ago (5+) and I’m still having consequences.

I was diagnosed way back during the pandemic with a similar score (Gleason 7 4+3) and in actuality I had it way before then as my PSA was rather low (under 3) but when it started creeping up I was recommended a biopsy which was fun by the way... I was seeing an old-school Urologist (Garo M. Tertzakian was born in Lebanon) and he recommended removal. I chose a second opinion with another Urologist (Dr. Leonard A. Farber) that specializes in prostate cancer and he recommended SBRT (Stereotactic Body Radiation Therapy). I also had an option to do hormone therapy with 2 shots of Lupron (every 3 months) which really sucked as the side-affects were real... Libido = 0 and hot flashes for the duration plus... my wife was pissed! ha ha. I did the hydrogel spacer, (SpaceOAR) to protect the rectum from the radiation (not 100% protection at all...).

When all that ran its course, my labido came back 2-fold and the hot flashes subsided pretty much intirely. I have scar tissue which makes peeing a little less flowing and there are minor accidents)... and my bowel movements are more frequent but not terrible and tolerable.
I was taking Viagra, Cialis which worked for a while but not for the last couple of years. I have resorted to having to take a shot at the base of my penis. It’s called Trimix. It’s really not as bad as it sounds... a very small needle and very little pain. Well worth it. The erection will last a little longer than desired tho... best at night as becomes a little rough whilst walking around for a while...

Now though... as time is going by... I’ve been having trouble having an orgasm which really sucks... (and that’s including by myself) Luckily I really enjoy oral sex which helps very much. This has been going on for about six months now unfortunately... I have an appointment coming up with my original doctor (Garo M. Tertzakian) which will be interesting... to see if there’s anything that will help with that.

I forgot to mention now that I’m proofreading... my PSA gets checked every six months and I’m happy to say it has stayed at 0.2 which is almost undetectable...

I’m hoping by writing this that yourself, or someone is familiar with this situation and what to do about it...

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

jeff Marchi | @jeffmarc | Oct 7 5:43pm

The message you posted sounds like you are talking to somebody specifically, but you have put a new message on the forum and not referred to anybody that you might be responding to.

After having radiation, the rules doctors go by is unless your PSA rises two points over the low it is reached. They don’t do anything.. In your case, that would be a PSA of 2.2, and you’re a long way from that. Sounds like you’re doing great.

Years After radiation people do have problems with erections, it is pretty common, Trimix is one of the solutions. Have you tried different amounts of Trimix to see if maybe less or more would allow you to still reach orgasm. It’s also Possible the problem is due to one of the ingredients in trimix not working right for you. You can try using Bimix With only two of the three ingredients to see if maybe that could make a difference. Ask your doctor about this.

Here is a great message from @maverick75 in this forum about how to get Trimix to work the best for you and how to get the bottle to last the longest. You may already know all this since you’ve been using it for a while.
https://connect.mayoclinic.org/discussion/my-trimix-experience/