Uncontrolled diarrhea after gallbladder removal surgery: Any advice?

Posted by JerryP @jfperrone, Aug 22, 2020

After a very painful event I had surgery to remove my gall bladder. Surgery took 2.5 hours. Follow up seems ok except I have uncontrolled diarrhea. I am living on imodium . I am weak as a baby with no aid in sight. The doctors offer no real help except telling me what to eat or not. Any similiar experience or advice.

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@donnabe

@mef51, thank you for the feedback! Sometimes medication with diet works for me most often not..fats seem to be the problem. Cholestyramine and multiple immodiun don’t help if I have eaten something to cause the FLUSH. I was hoping to be able to treat/cure/heal the cause instead of treating the symptoms (one can hope). Might need to try colestipol. So glad that you found a protocol that is working for you and that you are willing to share with others!!

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Have you tried a low fat diet ? Fat digestion begins in the gall bladder, so if you avoid fatty foods and fat, you will have less diarrhea. We are too quick to do surgery in the USA. My cousin had appendicitis in Japan. He was given a course of antibiotics and decades later, still has his appendix. Go figure.

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@jfperrone That sounds dreadful.

My sister had hers out some years ago. No problems. One of her daughters had hers out recently on an emergency basis. No problems. I had mine out as part of cytoreductive surgery with HIPEC as part of my treatment for stage 4 appendix cancer. No problems.

It sure sounds like something else may be going on here.

I saw the possibility of c-diff mentioned. That’s the sort of thing you may need to look into. I didn’t get it but I have been shocked how many people do get c-diff in hospital as a result of surgery.
https://www.mayoclinic.org/diseases-conditions/c-difficile/symptoms-causes/syc-20351691

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It's possible that you caught "C-diff" in the hospital. Get it checked out.

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@marman101

That is not normal. You need to ask more questions. I had in and out surgery and I felt good until a few days later and the dam busted and been busted. I had the surgery in 2016. It has qotten worse. No long trips or eating out far from home. I get no answers. But, a tube in your body aaks for more detail.

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I had mine out a few years ago 2014. No more greasy steaks or hamburgers. You really have to be careful with your diet. Cheese has a bit of grease/fat in it. Homemade Mac & cheese will make it happen too. Good luck 👍

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@jfperrone

I have read the comments from a number of others who had their gall bladder removed and I guess my experience so far is better than most. I had the op 10 days ago and because it must have been difficult they kept me in hosp 2 more days. Currently I have a drain sticking out of my stomach which I empty twice a day. (Very difficult to sleep with that thing sticking out of you.) I have a little soreness but no actual pain. I have zero appetite but manage to eat the minimum. I have been drinking a lot of water; eating jello, toast fruit and a little cheese. Still the problem continues. I was told to drink Propel water which has the electroiytes you mention. Any suggestions dietary or otherwise would be appreciated.

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That is not normal. You need to ask more questions. I had in and out surgery and I felt good until a few days later and the dam busted and been busted. I had the surgery in 2016. It has qotten worse. No long trips or eating out far from home. I get no answers. But, a tube in your body aaks for more detail.

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Yes, I take two colestipol tablets at one time daily. They are very hard for me to swallow. I use a pill cutter to make several small pieces. Has anyone tried the powder form? It sounds like it is a bit more expensive.

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@mef51

I had horrible diarrhea after my gall bladder removal. What works for me is one serving of Metamucil mid morning, and 2 tablets of colestipol (prescribed) mid afternoon. You need to take the colestipol 1-2 hours after your other meds, or 4 hours before your other meds. Your pharmacist can help you with that. If I (rarely) feel a diarrhea episode coming on I take 1/2 an Immodium AD and it stops it. This method has changed my life for the better! Good luck!

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Hi to all, I had my fb removed also, and the only thing that helps me is Colestpol, (and staying away from fat)but taking it is a real nuisance, because I take a lot of meds. But, it’s better than diarrhea! Good luck to all!!

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@donnabe

@jkarmazin No I have not been tested for EPI. Crohn’s in remission- lactose intolerant. EPI never mentioned since prior episodes of diarrhea was from IBD. According to 2020 colonoscopy no signs of Crohn’s and asked why I still had diarrhea was told diarrhea was probably IBS. Eat fiber. Able to control with immodium. Then had gallbladder removed and the FLUSH is unstoppable.

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Normally with bile salt diarrhea s/p cholecystectomy Colestid ow Questran does the trick.
However with EPI it is definitely related to diet. No fiber, no fatty foods and from there every patient is different.
I would recommend a 72 hour high fat stool study to check for fat in the stool to rule out EPI.

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Colestid, cholestyrine are the best for bile salt diarrhea post gallbladder removal

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@donnabe

Did they help you?

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Yes, that’s why I asked for the test!

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