Peritoneal Cancer: Anyone else?

@gmapri I don’t know what Duke is however I am sending you all the love in the world. Ovarian/peritoneal cancer is tough isn’t it? I have no mutations etc so targeted options are out for me. I’ve had a power port inserted as my veins are almost nonexistent so I’m hoping this will help. Also good for those iodine scans.
Please treat yourself gently and know you are not alone.

@brendaae this is Duke University in Durham, NC

@gmapri
Hello Marsha,
I am truly wishing you success with your consultation. May I ask who Duke is? Is he an Oncologist? Thank you, Brenda

It's just finished the 3rd phase of trials so is waiting full FDA approval. Duke has a special authorization to take on patients who have run out of chemo options & have a RAS mutation. I have a K-RAS mutation so waiting for a consultation with Duke to try & get into this program.

@gmapri You’re attitude is inspirational. I’m hoping that Duke will take you on. Is this a clinical trial you are waiting to hear about?

@nanoya80 just found out the chemo is not working, so I am off all treatment. Waiting for a consult to see if Duke will take me on for the new oral drug. Not in any pain, so I am doing the same and enjoying each day!

@gmapri im the same. No more surgery after debulking no immunotherapy and no radiation. Keeping me on chemotherapy until it no longer is effective.
Im living each day and appreciating every second. Hope you are too

Thank you, for your thorough and fast response! I am so sorry this is happening. Please tell her to be strong and believe she will get better. I need to get fluid drained from my peritoneal lining every ten days - sometimes, five liters, which is a lot of fluid. Anyway, I appreciate your sharing and if you have any other information in the future, please share and I will do the same. Brenda

@brendaae I never heard that she did. However, her peritoneal lining seems to be very weak and she has had multiple hernias with the bowel breaking through to the skin and with the one, it has breached the skin. This has set up a skin infection that requires daily treatment. A nurse comes to the home a couple of times a week.
All of this from a stage 1 endometrial cancer. It has truly been a nightmare but she handles it well.

@hsminc Hello:
Thank you for your message to me. If you know, did your husband's cousin have fluid buildup in the lining that needed to be occasionally drained? Brenda