Peritoneal Cancer: Anyone else?

Posted by turbo48 @turbo48, Jan 24, 2020

Looking for any help with this thank you

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I have breast cancer metastasis to the peritoneal lining. Diagnosed February, 2026.
Any advice would be greatly appreciated.
Thank you.

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Profile picture for rxjoey @rxjoey

@gmapri … are you a candidate for a Whipple procedure?

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@rxjoey not a surgical candidate at all.

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Profile picture for Marsha @gmapri

I was dx with pancreatic cancer with metastasis to liver in January 2026. After 8 rounds of chemo that didn't change things (started a different chemo), a new lesion was found deep in the pelvic area, suspicious for peritoneal cancer. Because I am stage 4 pan-can, I doubt we'll test further unless it grows. Peritoneal suspicion is a small lesion. Other than fatigue, I do not have any other symptoms. The initial CT scan was to determine if I had pancreatitis, which I did, along with the discovery of pancan.

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@gmapri … are you a candidate for a Whipple procedure?

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I was dx with pancreatic cancer with metastasis to liver in January 2026. After 8 rounds of chemo that didn't change things (started a different chemo), a new lesion was found deep in the pelvic area, suspicious for peritoneal cancer. Because I am stage 4 pan-can, I doubt we'll test further unless it grows. Peritoneal suspicion is a small lesion. Other than fatigue, I do not have any other symptoms. The initial CT scan was to determine if I had pancreatitis, which I did, along with the discovery of pancan.

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I joined this tonight and have no idea what I am doing. If I am in the wrong place let me know. I had colon cancer and it seemed to have come from from my appendix. Gave me 4 chemos and said they did not work. Dx peritoneal ca,, 6 more chemo. Did not work, I don't feel horrible, labs arn't bad but had a rash on my face. Gave me steroids, cea up to 414.6. Nerves are shot. I am 84.Thinking about chemo wash with out surgery. Anyone my age. i am pretty good health other than that. I am so angry. I go by ozarklady.

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Profile picture for lacey24 @lacey24

I’ve been they suspect me to have peritoneal cancer. I am 38 years old, hysterectomy 15 years ago. Any tips? Tricks, advice?

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Best to you all. We are under an oncologist for care at Mayo and MD Anderson. Cholangiocarcinoma ( bile duct cancer) and now lesions found on CT in the peritoneal cavity per CT but awaiting doctor to confirm. It’s been a 2.5 year journey. Two surgeries and chemo and immunotherapy ( Keytruda). We are anxious about our visit tomorrow but we are both optimistic in nature and try to stay positive. My wife has two drains and had an abscess on the liver as well to deal with. Fluid into the abdomen always creates sepsis as bile is acidic and caustic to the body. She has gone through so much, recent week long hospital stay at Mayo and 50 day stay at banner with 3 bacterial and one fungal infection. She has lost 100 lbs in two years. She is a fighter however and had managed through two tough hospital stays. We are hoping for the best with our visit tomorrow for Pet scan and CT reviews and to discuss a new course of treatment. Each sepsis issue comes on faster to get her to the ER and takes longer for her to recover from. This is expected I was told. It’s a lot and very complex but trying to be a good advocate for her and ask good questions of doctors and care team. Best to you all in your journey and hoping for positive outcomes.

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Profile picture for lacey24 @lacey24

I’ve been they suspect me to have peritoneal cancer. I am 38 years old, hysterectomy 15 years ago. Any tips? Tricks, advice?

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Hi Lacey,

I also have peritoneal cancer, which I am told is somewhat rare. I agree that it is good to get a second opinion. MD Anderson in Houston is one of the best hospital for this type of cancer, and even though it wasn’t possible for me to relocate for treatment there, I found the consultation with them to be very helpful. My cancer was treated much the same way as ovarian cancer. The course of treatment was 3 rounds of chemo, debulking surgery, and 3 more rounds of chemo.

Getting a port was/is very important and helpful for me. It makes chemo and all of the bloodwork that goes along with it so much easier. I would recommend talking to your doctor about it if they don’t bring it up first.

If you are a patient at Mayo, you should also get a palliative care doctor who will help treat your side effects. This was the most helpful doctor I’ve had since I was diagnosed. They also have social workers who can help not only provide counseling but also recommend other services that might be helpful.

Sending positive energy and light to you. < 3

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Profile picture for lacey24 @lacey24

I’ve been they suspect me to have peritoneal cancer. I am 38 years old, hysterectomy 15 years ago. Any tips? Tricks, advice?

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@lacey24 I’m sorry to hear you may have peritoneal cancer.

So important to take things a step at a time.

Waiting for an exact diagnosis is difficult but so important as you will then know exactly what you are or are not dealing with. It also directs what treatment plan is best for you.

Be careful about googling and scaring yourself silly! Remember every one reacts differently to treatments so if you see life expectancy on line it is NOT yours!

It’s also so very important to have a really good medical team around you who you have full confidence in.

I was diagnosed in 2021 with stage 4 appendix cancer. Part of my treatment plan included HIPEC with a peritonectomy. One of the major advances in treatment for abdominal cancers. I’ve been with no evidence of disease now for over 3 years 😊

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Profile picture for lacey24 @lacey24

I’ve been they suspect me to have peritoneal cancer. I am 38 years old, hysterectomy 15 years ago. Any tips? Tricks, advice?

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Was your hysterectomy due to cancer?
To help you feel in control and for peace of mind I would recommend you seek a second opinion.
Here is a brief info piece from MD Anderson:
https://www.mdanderson.org/cancerwise/peritoneal-cancer--8-questions--answered.h00-159697545.html
I recently was diagnosed with endometrial cancer; 12 years ago I had an appendectomy where it burst and all of the noxious contents spread throughout my inner cavity. Though they did not find cancer in the appendix I figure there was probably 1 molecule which escaped detection and seeded my Cancer. Who knows, certainly not the Doctors.

Here are the things I have found helpful for peace of mind:
-Research on treatment
-Supplements to avoid or add to chemo (ask your Oncologist)
-Meditation
-Spend time in Nature
-Unplug from daily news (this will reduce anxiety)
-Stay socially connected, volunteer if you have time
-clean up your diet (no sugar or alcohol), avoid blood sugar spikes

Wishing you peace and some good news as you move forward:)

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I’ve been they suspect me to have peritoneal cancer. I am 38 years old, hysterectomy 15 years ago. Any tips? Tricks, advice?

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