Looking to connect with people who have non-diabetic neuropathy

Posted by Ann broussard @user_ch98d0b5c, Aug 6, 2018

Would. Like to find people with this issue

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@bb0753

I am no expert and someone may correct me but I think you can have small fiber peripheral neuropathy and still have normal EMG. a nerve biopsy is what diagnoses small fiber nerve damage. I believe EMG diagnosis large fiber PN.

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What an interesting twist! Thank you for this, I'll definitely try to look into it.

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@bb0753

I am no expert and someone may correct me but I think you can have small fiber peripheral neuropathy and still have normal EMG. a nerve biopsy is what diagnoses small fiber nerve damage. I believe EMG diagnosis large fiber PN.

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This is true. In fact, with SFN, the EMG WILL be normal.

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@misu

What an interesting twist! Thank you for this, I'll definitely try to look into it.

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Just Google "Does EMG test for small fiber nerve damage"

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@1942marilyne

I found out I have L4 L5. Problem

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I fell and broke my neck after bilateral hip surgery. Had to have fusion surgery on C3-4. Had a bad spinal cord compression. I have the same diagnoses as you! My brain is saying I have neuropathy but I don’t! My feet have the bump feeling numb up to my
Knees. Hands numb and up to my elbows. I am been given Gaberpentin and 3 other drugs for seizures /epilepsy which I don’t have none of which I could take as I got weaker and dizzier with them all. I have been to close to 11 neurologists. All of whom tell me to take vitamin c or d and others. All the drs pretty much just send me somewhere else. I have been doing physical therapy for 15 months now.l supppsrd to be helping my ban e. It does some. I e had to take early retirement now hsvd applied for disability. I’m s nursing home administrator and it’s killing me not to be working! I love my job. I have been reading up on the spinal Decompression for Stenosis and neuropathy? I would be interested in someone’s opinion if they have tried this! Thank you!

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@bb0753

Just Google "Does EMG test for small fiber nerve damage"

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Oh, thank you for the extra clue ... I was wondering.

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I have non diabetic neuropathy, arthritis in my feet and ankles and have Lymphedema. I would like recommendations for socks that would help. Thin and thick socks.

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@mercuryrose

I have non diabetic neuropathy, arthritis in my feet and ankles and have Lymphedema. I would like recommendations for socks that would help. Thin and thick socks.

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I have Polyneuropathy caused by an autoimmune disease.
My feet are a patriotic red, white, and blue most of the time.
I found sock on Amazon that are like wearing a comfy sweater on your feet. They are cotton (no wool).
The brand is Polar Extreme. They are a bit pricey. I actually bought mine from a discount store (Ross).
There are others made by Columbia.

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@mercuryrose

I have non diabetic neuropathy, arthritis in my feet and ankles and have Lymphedema. I would like recommendations for socks that would help. Thin and thick socks.

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I also have lymphedema along with idiopathic small fiber PN. I have to wear compression socks which are thin. After struggling putting them on when I was first diagnosed, I found some on Amazon with a zipper in the side that make them easier to put on and have been using them for the past 5 years or so. I recently found a 2 piece compression sock set on OrthoFeet.com that are easier to get on. You put on the compression foot/ankle sock first and then slide on the calf sock over the ankle sock. Neither make my neuropathy feel better. Before the lymphedema was diagnosed I found that socks made with bamboo fiber were really comfortable on my feet. In the winter when my feet are cold, I've found that HotHands Insole foot warmers really keep my feet warm so I keep some around for the colder winter days when I have to go outside - https://www.amazon.com/HotHands-Insole-Foot-Warmers-Activated/dp/B001UQXAT6/

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That’s me as well! Also red/white/blue feet.

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Hi
I have burning, niddle pinching sensation in my feet from last 6 months and same symptoms in my left hand from 02 months. In SEP-23 I did the ANA profile, nurve conduction studay, Surel nurve biopsy, vitamins, diabatis and thyroid test all are negative with no diagnosis. I have mild nurve pinch in L4/S1 for which docter said it is due to sitting job. Presently I am taking gabapin and vitamin B12 medicine.
Last week again I did nurve conduction studay which was normal.
Please advise reasons possibly why I am feeling burning niddle pinching sensation in my feet.
Also advise if there is any other test I have to do.

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