This is my first post. I have non diabetic neuropathy. But, I have yet to have my EMG and on my first appointment with neurology I was given Oxcarbazepine--apparently a anti seizure medication. After picking up the prescription and 20 minutes after taking it, the horrible, continuous nerve pain that I have had 24-7 was gone. I am to take Oxcarbazepine 150 mg twice a day. I still feel throbbing but it doesn't hurt. I can wear my Skechers for the first time in a month instead of my clunky crocs. The excruciating shooting toe pain is gone for now. I am cautiously optimistic. I had too many side effects after taking gabapentin, so I was given Cymbalta. But, I am already taking the depression medication Mirtazapine at night and do not want to take another prescription if not absolutely necessary. I was given the antibiotic Linezolid for a mycobacterium pulmonary lung disease and I took that oral medication for 4 months in addition to 3 other antibiotics for the same amount of time. Within 3 minutes after advising neurology APRN I had taken the Linezolid she told me that it was a side effect of Linezolid. My infectious disease doctor never mentioned neuropathy as a side effect. Also, I had a vitamin B-12 deficiency which cleared up after taking supplement for it. So, did the vitamin B-12 cause neuropathy or was it the Linezolid? Maybe both? I am 69 yrs old and still working as a house manager which includes strenuous house cleaning so without the Oxcarbazepine it was hell due to being on my feet for 8 hours a day. Another side effect of neuropathy was pain in my right total knee replacement. I never had ANY pain from TKR in the 3 years after surgery. I think I was having the pain because my gait has been off. I too had cold feet and had to wear my "winter" socks when it was 95 degrees outside. I had no idea what neuropathy was until my PCP suggested it during my yearly fitness exam over a month ago. I have a new-found sympathy for those fellow sufferers of neuropathy and it breaks my heart that I may have this disease for the rest of my life and the same for the folks who comment on this forum. May thoughts are with you all.
The new cream is an Rx form of capsaisin--which is now sold OTC. This new treatment is Qutenza 81--it, too, is topical but from what my podiatrist advised, it must be applied under medical supervision. I hope this is helpful. I am now so gun-shy when it comes to oral medications--too many side effects.
I had been able to get my rub A535 with capsaicin and then they stopped making it so I got some capsaicin pills but it did not work the same so I stopped the pills.
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This is my first post. I have non diabetic neuropathy. But, I have yet to have my EMG and on my first appointment with neurology I was given Oxcarbazepine--apparently a anti seizure medication. After picking up the prescription and 20 minutes after taking it, the horrible, continuous nerve pain that I have had 24-7 was gone. I am to take Oxcarbazepine 150 mg twice a day. I still feel throbbing but it doesn't hurt. I can wear my Skechers for the first time in a month instead of my clunky crocs. The excruciating shooting toe pain is gone for now. I am cautiously optimistic. I had too many side effects after taking gabapentin, so I was given Cymbalta. But, I am already taking the depression medication Mirtazapine at night and do not want to take another prescription if not absolutely necessary. I was given the antibiotic Linezolid for a mycobacterium pulmonary lung disease and I took that oral medication for 4 months in addition to 3 other antibiotics for the same amount of time. Within 3 minutes after advising neurology APRN I had taken the Linezolid she told me that it was a side effect of Linezolid. My infectious disease doctor never mentioned neuropathy as a side effect. Also, I had a vitamin B-12 deficiency which cleared up after taking supplement for it. So, did the vitamin B-12 cause neuropathy or was it the Linezolid? Maybe both? I am 69 yrs old and still working as a house manager which includes strenuous house cleaning so without the Oxcarbazepine it was hell due to being on my feet for 8 hours a day. Another side effect of neuropathy was pain in my right total knee replacement. I never had ANY pain from TKR in the 3 years after surgery. I think I was having the pain because my gait has been off. I too had cold feet and had to wear my "winter" socks when it was 95 degrees outside. I had no idea what neuropathy was until my PCP suggested it during my yearly fitness exam over a month ago. I have a new-found sympathy for those fellow sufferers of neuropathy and it breaks my heart that I may have this disease for the rest of my life and the same for the folks who comment on this forum. May thoughts are with you all.
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2 ReactionsI had been able to get my rub A535 with capsaicin and then they stopped making it so I got some capsaicin pills but it did not work the same so I stopped the pills.
I was unaware that capsaicin came in pill form