1. < Thyroid Cancer

Pap follicular- help with treatment options

Posted by catealexis @catealexis, Oct 19, 2023

Got diagnosed with Papilary follicular going to have my whole thyroid and left lymp node chain removed it was only detected in one lymph node.

Nodule on thyroid 2mm

I want to avoid radioactive iodine therapy because after reading the second cancers risks , side effects and effects on fertility I don’t see how that could be needed for the small likelihood it comes back, we would love to have one more child etc

Has anyone else declined Radioactive iodine therapy? Thank u in advance for help🙏🏻🫶

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teanna | @teanna | Oct 28, 2023

Hello I also had my thyroid removed in march of 2020 it for cancer , And 1 Lymph node with with cancer I also declined the radioactive iodine Because of secondary things and just not being sure, I'm am monitoring now and my endocrinologist orders is blood work every 6 months And a ultrasound depending on my blood results There have been suspicious spots that they have seen but nothing that makes me have to do anything else at this point just monitor it. Good luck to you on your decision.

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1 reply
catealexis | @catealexis | Oct 28, 2023
In reply to @teanna "Hello I also had my thyroid removed in march of 2020 it for cancer , And..." + (show)
@teanna

Hello I also had my thyroid removed in march of 2020 it for cancer , And 1 Lymph node with with cancer I also declined the radioactive iodine Because of secondary things and just not being sure, I'm am monitoring now and my endocrinologist orders is blood work every 6 months And a ultrasound depending on my blood results There have been suspicious spots that they have seen but nothing that makes me have to do anything else at this point just monitor it. Good luck to you on your decision.

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Thank u for sharing appreciate your help!

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 29, 2023
In reply to @catealexis "Thank u for sharing appreciate your help!" + (show)
@catealexis

Thank u for sharing appreciate your help!

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@catealexis, you may also be interested in this related discussion:
- Tall cell papillary thyroid cancer: What treatments did you have?
https://connect.mayoclinic.org/discussion/tall-cell-papilliary/

I might also recommend making your cancer team aware of your desire to have another child. They may adjust the treatment recommendations accordingly or offer fertility sparing options.

When will you have surgery? Do you have papillary- or follicular-type thyroid cancer?

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1 reply
catealexis | @catealexis | Oct 29, 2023
In reply to @colleenyoung "@catealexis, you may also be interested in this related discussion: - Tall cell papillary thyroid cancer:..." + (show)
@colleenyoung

@catealexis, you may also be interested in this related discussion:
- Tall cell papillary thyroid cancer: What treatments did you have?
https://connect.mayoclinic.org/discussion/tall-cell-papilliary/

I might also recommend making your cancer team aware of your desire to have another child. They may adjust the treatment recommendations accordingly or offer fertility sparing options.

When will you have surgery? Do you have papillary- or follicular-type thyroid cancer?

Jump to this post

Thank u for sharing that other thread! I have found An amazing surgeon at clayman thyroid institute in Florida hoping to get surgery this month. They r top notch there . I made her away of wanting more kids and she treats each patient on a case by case basis in regards to the Radioactive iodine pills , which I love. Thanks for the help and great idea’s appreciate you!
I have papillary

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1 reply
bens1 | @bens1 | Jan 29 6:51pm
In reply to @catealexis "Thank u for sharing that other thread! I have found An amazing surgeon at clayman thyroid..." + (show)
@catealexis

Thank u for sharing that other thread! I have found An amazing surgeon at clayman thyroid institute in Florida hoping to get surgery this month. They r top notch there . I made her away of wanting more kids and she treats each patient on a case by case basis in regards to the Radioactive iodine pills , which I love. Thanks for the help and great idea’s appreciate you!
I have papillary

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catealexis: would you mind sharing the surgeons name at Clayman?

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catealexis | @catealexis | Jan 29 7:07pm

Rashmi Roy you can fill out all paperwork online she calls you within a few days and I got booked for surgery the next month 5 ish weeks: also she got it all out no radioactive iodine needed . A complete seamless process and impeccable center. If you have any specific questions feel free to ask! I can’t say enough great things

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 7 7:56pm
In reply to @catealexis "Rashmi Roy you can fill out all paperwork online she calls you within a few days..." + (show)
@catealexis

Rashmi Roy you can fill out all paperwork online she calls you within a few days and I got booked for surgery the next month 5 ish weeks: also she got it all out no radioactive iodine needed . A complete seamless process and impeccable center. If you have any specific questions feel free to ask! I can’t say enough great things

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@bens1, tagging you to make sure you saw @catealexis reply to your question. 🙂

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1 reply
bens1 | @bens1 | Feb 7 9:23pm
In reply to @colleenyoung "@bens1, tagging you to make sure you saw @catealexis reply to your question. :-)" + (show)
@colleenyoung

@bens1, tagging you to make sure you saw @catealexis reply to your question. 🙂

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Thanks Colleen.

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