Pancreatic NET pain

@ceefer Stomach pains can happen unfortunately. For me, they have come from digestive issues like gas. I was prescribed omeprazole and still take one pill every morning. It has helped me. Are you taking anything to help you with the stomach pain?

Hi. Thanks for that info. Unfortunately I’m not and I have an appointment with a NET Doctor in June. Hopefully that Doctor can prescribe something, as of now the gastroenterologist I’m seeing has just ignored it and keeps saying I shouldn’t be having the pain but not addressing it nor prescribing anything for it.

I have constant stomach pain for over a year and a half. Omerprozale and other acid reducers have not helped. Rapid Release Extra strength Tylenol 1000 mg helps me get through the days. Like u, I have Pnet and am waiting for surgical consults in Palo Alto and Stanford. A GI friend (not my Dr) recommended this pain relief.

I have been taking Tylenol for the pain. It’s hit or miss for me. Sometimes work and sometimes just barely.

@ceefer Until you know what is causing the pain, it is hard to pinpoint something specific to try. Even when you do know, each person's body is different. What works for one person, might not work for another. I believe the brand name for Omeprazole is Prilosec. Like @kathyfujii shared, it didn't work for her. I am glad that she found something that worked for her.

The GI that did my Endoscopy Ultrasound (EUS) said my pain is caused by the tumor. He offered a procedure that would control the pain with another EUS with medicine, but I'm waiting for the surgical consults and can manage with Tylenol around the clock.

@kathyfujii I understand. Sometimes, you have to do what you can to get by until the Calvary of help arrives.