What are other survivors doing about pancreatic enzymes replacement?
I am a 4 year survivor of pancreatic cancer. I have been on creon since my Whipple. It is very expensive. I talked to someone who was using Pure Encapsulation instead of creon. The formula doesn't match my creon, but it is about 1/4 the cost of the co-play on creon. What are other survivors doing about pancreatic enzymes replacement?
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I was on a supplement for pandemic enzymes, company is Megeagetics.
My oncologist was against it but made me feel good, no cramping but, my CA-19 went up and my liver was bothering me. So I am also looking. I am taking Ceron again and having constipation issues. Any suggestions? Meralax ?
Thanks
I am a 2 year survivor but recently spent 2 weeks in hospital with a blocked duct and infection in my pancreas. The surgeon found no cancer. 6 weeks and I am feeling a little normal. I went to a functional medicine doctor and she suggested Metagenics. SpectraaZyme Pan 9x I take one with each meal and do not have the side effects of Ceron. I could not tolerate the medication and tried for 2 years. Blurred vision, all over not feeling well, and not to mention cramping constantly. The only issue with a natural supplement is the medical doctors don’t approve. My oncologist has agreed to let me stay on it. For some strange reason my CA-19 went from 45 to 100. Nobody can give me an answer why that could happen. I am reaching out to let others know of how good I feel, but not happy about numbers. Had mri 6 weeks ago and no cancer and had been on it for months. Welcome to any thoughts. The Pure enzymes gave me the same feeling as Ceron. I know we are all different. Thank you my PC friends.
You take creon if you get gas a lot. And if your stools are floating, if you don’t need them - that’s great! Creon helps with absorption of nutrients.
@ marvinjsturing how are you doing now? I take creon.
Hi
I am 11 months post Whipple for pancreatic Ca. I have spoken to my gastroenterologist about this a few times. I do not take any enzymes, I was originally prescribed Creon and did take it for a short while, but I am able to eat without it, I have no symptoms after eating. The doctor said if it doesn’t seem to make a difference there is no reason to take it. I have been blessed with the ability to eat just about anything post surgery
Scroll up to the stage4survivor post- could be very helpful to you to find a better price or other options.
Best of luck to you.
I was diagnosed with gastrinoma neuroendocrine tumor in the pancreas head which was removed in May 2020 by Whipple Surgery. Once a while I still have occasional diarrhoea, bloated stomach, heart burnt hence try to have frequent smaller portion of meals, avoid spicy & oily food & alcohols.
For what Pancreatic issue did you have surgery?
I am also interested in Pure enzymes. I am having stomach issues with Ceron and also bowel, hemorrhoids, just don’t feel good on them the higher the dose the worse it gets. I have been told by friends that Pure encapsulations are good. Any comments?
My husband has had 2 severe cases of pancreas. He has also been prescribed creon and sadly it is very expensive. $480 for one month and $150 for 3 months with insurance after deductible has been made. I suggest checking Amazon pharmacy, goodrx, Mark Cubans pharmacy, and if it is still too expensive you can contact the manufacturer to see if you qualify for a reduced price. I was also going to try a Canadian pharmacy.
Best wishes for you.