I understand the anxiety. But what a blessing that you went from unresectable to now surgery!
I can only tell you that the stronger you are going in, the easier the recovery. You are at a center that does so many of these that you should be in very good hands. Especially post op
You are on my calendar for prayers that week. Allow yourself to breathe deeply each day and stay out in that garden!
Hello Jim,
I did 12 rounds of Fulfurinox which greatly shrunk my tumors and caused necrosis.
With a precision radiation treatment and 2 more chemo rounds, I had pancreadectomy and spleenectomy with clear margins. Then liver Mets resected in February!
Hello Jim,
I did 12 rounds of Fulfurinox which greatly shrunk my tumors and caused necrosis.
With a precision radiation treatment and 2 more chemo rounds, I had pancreadectomy and spleenectomy with clear margins. Then liver Mets resected in February!
As I read more about it, the MRNA vaccine in Germany has been used in a very small trial with good results. It was used with people that were NED to see if it could prevent reoccurrence. After 18(?) months some success was seen.
I am stage IV but currently NED and searching for what to do next to keep this bad boy away! As I gather information from consults I hope to schedule, I will post.
Right now I am carefully watching my diet, staying active, smiling as much as possible, and being grateful .
You can also call to find out about clinical trials available for pancreatic cancer or specifically for you at Mayo Clinic 855-776-0015 (toll-free) https://www.mayo.edu/research/clinical-trials
I had several of Dr. O'Reilly's publications open on my other screen when I opened this thread, and my oncologist cited Dr. O'Reilly in his rationale for my current treatment. Sounds like a big win if you can get in to see her!
Dr. Eileen O’Reilly is the Section Head for Hepatopancreaticobiliary/ Neuroendocrine Cancers, Gastrointestinal Oncology Service at MSKCC. Dr. Kelson reports to Dr. O’Reilly. She has authored or co-authored hundreds of abstracts and scientific articles and has been the principal investigator of many clinical trials. She is one of the top-cited pancreatic cancer specialists worldwide. https://www.esmo.org/about-esmo/profiles/eileen-m.-o-reilly
Thank you again. I did read the bios, and agree I want someone w pancreatic specialty. I wanted my husband to see someone more senior, but he is anxious for an earlier appointment, so for now, we are seeing a dr in the pancreatic group, who has done research, trials etc w pancreatic cancer. Dr O"Reilly wasnt available for 5 -6 weeks, so we will see how it goes next week with the dr we have, and see if it makes sense to see Dr. Kelsen or Dr OReilly as our second appointment. Not sure how "switching drs" works, but I presume my husband could see another dr if requested.... Thanks again for your response.
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I understand the anxiety. But what a blessing that you went from unresectable to now surgery!
I can only tell you that the stronger you are going in, the easier the recovery. You are at a center that does so many of these that you should be in very good hands. Especially post op
You are on my calendar for prayers that week. Allow yourself to breathe deeply each day and stay out in that garden!
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1 ReactionI am scheduled for Whipple June 21st. Nervous.
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4 ReactionsHello Jim,
I did 12 rounds of Fulfurinox which greatly shrunk my tumors and caused necrosis.
With a precision radiation treatment and 2 more chemo rounds, I had pancreadectomy and spleenectomy with clear margins. Then liver Mets resected in February!
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2 ReactionsHi-May I ask what treatment you have received to achieve NED?
Here is a recent (May 15) posting in the Pancreatic Cancer Action Network (PANCAN).
https://pancan.org/news/recent-mrna-vaccine-study-answers-for-patients-families/
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4 Reactions'Hi @johnbc, like @mayoconnectuser1 said, all major cancer centers are researching new treatment options for cancer.
Cancer vaccines are a research priority at Mayo Clinic. You can read more here:
https://www.mayo.edu/research/centers-programs/discovery-translation-labs-cancer-research/focus-areas/cancer-vaccines
Find clinical trials at Mayo Clinic for Vaccine Therapy here: https://www.mayo.edu/research/clinical-trials/search-results?keyword=vaccine%20therapy%20cancer
You can also call to find out about clinical trials available for pancreatic cancer or specifically for you at Mayo Clinic 855-776-0015 (toll-free)
https://www.mayo.edu/research/clinical-trials
I had several of Dr. O'Reilly's publications open on my other screen when I opened this thread, and my oncologist cited Dr. O'Reilly in his rationale for my current treatment. Sounds like a big win if you can get in to see her!
Dr. Eileen O’Reilly is the Section Head for Hepatopancreaticobiliary/ Neuroendocrine Cancers, Gastrointestinal Oncology Service at MSKCC. Dr. Kelson reports to Dr. O’Reilly. She has authored or co-authored hundreds of abstracts and scientific articles and has been the principal investigator of many clinical trials. She is one of the top-cited pancreatic cancer specialists worldwide.
https://www.esmo.org/about-esmo/profiles/eileen-m.-o-reilly
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1 ReactionGood luck to you. Seeing a top expert may be well worth your while to get the most you can from your second opinion.
Thank you again. I did read the bios, and agree I want someone w pancreatic specialty. I wanted my husband to see someone more senior, but he is anxious for an earlier appointment, so for now, we are seeing a dr in the pancreatic group, who has done research, trials etc w pancreatic cancer. Dr O"Reilly wasnt available for 5 -6 weeks, so we will see how it goes next week with the dr we have, and see if it makes sense to see Dr. Kelsen or Dr OReilly as our second appointment. Not sure how "switching drs" works, but I presume my husband could see another dr if requested.... Thanks again for your response.
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