1. < Neuroendocrine Tumors (NETs)

Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Posted by johndurbano @johndurbano, Aug 13, 2024

Looking to speak with others who have had a successful Whipple procedure, but cancer metastasized to your liver

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kbower1611 | @kbower1611 | Jan 31 1:54pm

I had Whipple procedure in October of 2024 . I caught the cancer early stage 1 . My team suggested chemo first 8 treatments every 2 weeks would come home with chemo pump. Then had 3 weeks off and then started radiation and also took a chemo pill. This all happened before the surgery. Had surgery was out of the hospital in 5 days after the Whipple. I had to wait 3 months before I had CA-19 blood and a CT scan. My CA -19 blood test in September of 2024 was 190. When I had in done 3 months after my surgery it came back in the 3000's. My CT scan also showed that I have 5 spots on my liver. My biggest spot is 2.6 cm all the rest are smaller. Just had a liver biopsy and started chemo again ( different regiment) Hoping this will work. I feel great I have energy so I can't believe this is happening. If anyone out there has experience the same thing let me know. Would like to know how you are doing and what worked for you. I am keeping very positive!

REPLY
1 reply
montyd | @montyd | Feb 1 7:39pm
In reply to @kbower1611 "I had Whipple procedure in October of 2024 . I caught the cancer early stage 1..." + (show)
@kbower1611

I had Whipple procedure in October of 2024 . I caught the cancer early stage 1 . My team suggested chemo first 8 treatments every 2 weeks would come home with chemo pump. Then had 3 weeks off and then started radiation and also took a chemo pill. This all happened before the surgery. Had surgery was out of the hospital in 5 days after the Whipple. I had to wait 3 months before I had CA-19 blood and a CT scan. My CA -19 blood test in September of 2024 was 190. When I had in done 3 months after my surgery it came back in the 3000's. My CT scan also showed that I have 5 spots on my liver. My biggest spot is 2.6 cm all the rest are smaller. Just had a liver biopsy and started chemo again ( different regiment) Hoping this will work. I feel great I have energy so I can't believe this is happening. If anyone out there has experience the same thing let me know. Would like to know how you are doing and what worked for you. I am keeping very positive!

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2 questions…

1. What were your CA-19 numbers immediately after the surgery?
2. Why did you have to wait 3 months for a CA-19 test?
I received CA-19 tests immediately before and immediately after the surgery. I also received CA-19 tests from my surgeon, my oncologist, and my PCP each time I saw any of them. I receive a CA-19 test at least twice every 3 months… sometimes as often as 3 times. I too had the Whipple surgery and was diagnosed stage 1b.

REPLY
1 reply
kbower1611 | @kbower1611 | Feb 2 7:09am

They did not do a CA-19 test after surgery. And when I went to see my surgeon a month after surgery I asked about CA-19 test and he said we do that at 3 months. That and the CT scan. Just can't believe it went to my liver that fast. Showing no signs anywhere else but the liver. I had the CA-19 blood test through out my treatment.

REPLY
kbower1611 | @kbower1611 | Feb 2 7:11am
In reply to @montyd "2 questions… 1. What were your CA-19 numbers immediately after the surgery? 2. Why did you..." + (show)
@montyd

2 questions…

1. What were your CA-19 numbers immediately after the surgery?
2. Why did you have to wait 3 months for a CA-19 test?
I received CA-19 tests immediately before and immediately after the surgery. I also received CA-19 tests from my surgeon, my oncologist, and my PCP each time I saw any of them. I receive a CA-19 test at least twice every 3 months… sometimes as often as 3 times. I too had the Whipple surgery and was diagnosed stage 1b.

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Glad you are doing well! How long has it been since your Whipple surgery?

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1 reply
montyd | @montyd | Feb 2 8:14am
In reply to @kbower1611 "Glad you are doing well! How long has it been since your Whipple surgery?" + (show)
@kbower1611

Glad you are doing well! How long has it been since your Whipple surgery?

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My Whipple was in June 2023 and I completed my last treatment in November 2023. I did 6 rounds of chemo pre surgery and 6 rounds post surgery… 5FU.

REPLY
1 reply
kbower1611 | @kbower1611 | Feb 2 10:18am
In reply to @montyd "My Whipple was in June 2023 and I completed my last treatment in November 2023. I..." + (show)
@montyd

My Whipple was in June 2023 and I completed my last treatment in November 2023. I did 6 rounds of chemo pre surgery and 6 rounds post surgery… 5FU.

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My Whipple surgery was the first part of October of 2024 .

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