P1NP and CTX

Posted by codythedog @codythedog, 21 hours ago

Hello,
I have never had P1NP and CTX tests done before. I have seen an Endo chronologist, and she did not order these. I would like to see if my Primary care would order these so that I could have a baseline along with the Bone Density Tests. I am trying to do as much as I can without medication as of yet. Let me know if anyone has had success with their Primary Care Doctors.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Is your endo refusing to do these tests? If not let her know again that you would like them. Wouldn't hurt to contact your PCP about it also. If you are unsuccessful then you can always go to a private lab and pay out of pocket. Labcorp or quest diagnostics or?

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I asked my oncologist who had recommended a Zometa infusion to have these bone markers done before starting treatment as a baseline. She declined and referred me to my primary care doctor who also declined and referred me to an endocrinologist. Both of these doctors said they didn't know anything about bone markers.

I found an endocrinologist who listened to my history and reluctantly agreed to order bone markers. She told me they are used to monitor whether an osteoporosis drug is working, but when I pointed out it didn't make sense to do that without establishing a baseline BEFORE beginning any drug, she reluctantly conceded and ordered the bone marker tests. It's another shocking reality that many doctors who routinely prescribe osteoporosis medications are not familiar with or do not believe in the use of bone marker tests.

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Profile picture for gravity3 @gravity3

Is your endo refusing to do these tests? If not let her know again that you would like them. Wouldn't hurt to contact your PCP about it also. If you are unsuccessful then you can always go to a private lab and pay out of pocket. Labcorp or quest diagnostics or?

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@gravity3
She did refuse and only ordered the basics parathyroid, etc. I was not happy with my visit with her after waiting a year. I think I may try to get my primary to order or will pay out of pocket. This has been a frustrating journey to say the least.
Thank you for your help.

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