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Osteosarcoma on my left mid tibial bone, Hospital recommendations?
I’m 18yrs old , l have diagnosed with Osteosarcoma cancer on my left mid Tibial bone. Anyone with good experience of Limb Salvage surgery hospital.
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In 2005 I was diagnosed with osteosarcoma of the tibia. I was referred to Oregon Health & Science University in Portland. I had limb salvage surgery using a cadaver bone. I was doing ok for about 6 months but then got an infection and had an above knee amputation in 2006. I would assume that in 20 years there have been improvements. I have never really had regrets about the amputation and have done quite well. I am now 80 and now have to use crutches or a walker.
Part of the reason I had an infection was because of the very intense chemotherapy I was getting. Please feel free to ask me anything. Karen
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3 ReactionsI would try Doctor Herbert Swartz at the Vanderbilt medical clinic in Nashville, Tennessee.
I was diagnosed last year with fibroblasticsarcoma I had a 13 cm tumor attach to my femoral artery with blood vessels. At first I was at skyline hospital in Nashville.The trauma surgeon told me I'd bleed to death.If they removed it then they sent me to vanderbilt and he removed it been a long road back I don't know if he does that type of surgery but I would call and ask my prayers are with you
Where are you located? Most Medical Universities have Sarcoma-specific clinics. Your doctor should be able to refer you to a reputable institution with well-qualified sarcoma oncologists, radiaologists, and surgeons. Unless you have unlimited funds, use your local cancer center to get started with references and resources to receive discounted lodging, mileage reimbursment and free mental health/support groups. Most of all, stay positive.
@jamespnsolo, if you would like to seek a second opinion with Mayo Clinic sarcoma experts, you can submit a request here or ask your current doctor to submit a referral http://mayocl.in/1mtmR63
How are you doing?
Sarcoma is rare cancer. Suggest researching to find a hospital that is noted for treating Sarcoma. The hospital that is treating my sarcoma cancer is recognize as a center for treating the cancer. It is Barnes Jewish Hospital in St. Louis, Mo. Mayo may have the same noteworthy capability.
I’m not sure where you are located but Dr. David G. Mohler at Stanford Hospital in California is excellent. His bio on the Stanford website says
“Orthopaedic surgical oncologist, Sarcoma specialist, Musculoskeletal tumors surgeon”. I’m a PT who has worked with many of his limb salvage patients when I was at Stanford Hospital. He is excellent and has very good outcomes.