Osteoporosis, Prolia and Macular Degeneration.

Posted by joan26 @joan26, Aug 25, 2021

Is Macular Degeneration: from Prolia or Osteoporosis?

Interested in more discussions like this? Go to the Bones, Joints & Muscles group.

I've been diagnosed with macular degeneration, a disease of the retina that threatens my vision. The retina specialist treating this says this is because I'm on Prolia. The bone specialist says it's because I have osteoporosis. If I get off Prolia more bones could break (as happened before during a delay in getting Prolia.) And if the eye condition is associated with osteoporosis itself, then what would be the point? Two specialists with totally different views is confusing!

REPLY

@joan26 It’s so difficult for a patient when doctors don’t agree and just leave it to you to decide. Bummer! I did find this article on the relationship between age-related macular degeneration and osteoporosis. The study was done in Japan but has been published by the National Institutes of Health. I hope you can find some information to talk with your doctors about
https://pubmed.ncbi.nlm.nih.gov/30372730/
Did the retinal specialist specify Prolia as the cause or any of the bone building drug? Can this doctor recommend a safer drug for you to take?

REPLY

Thanks you! I found that article too and your post confirms that there just isn't much published on the topic. I too was trying to find out if the macular degeneration was part of the osteoporosis and not a result of the medication for it. I don't think there's much hope of getting these doctors to talk with each other. But I'll try at least to ask them about this conflict. Some of the other osteoporosis drugs warn of similar eye issues. I'll find out what I can from the doctors. It's confusing (and scary!) when the hots in the eye are accompanied by a lecture to "stop Prolia" while the Prolia shots are accompanied by a reminder to be back in "6 months plus five days" or risk fractures!

REPLY
Please sign in or register to post a reply.
  Request Appointment